Parent Advocate Program
Through the work of our Parent Advocates, staff and devoted volunteers, CURE offers families a wide range of emotional support and care by:
• Helping families understand their child’s diagnosis and acting as their liaison to medical and psychosocial staff.
• Providing comfort and support through visits with patients and families who are hospitalized or at the Outpatient Clinic / Treatment Center.
• Supplying a CURE Tote Bag filled with comfort items for newly diagnosed patients and their families.
- Delivering CURE’s Patient/Parent Organizer, a tool to help newly diagnosed patients and caregivers keep track of vital information about the patient’s illness and treatment
How We Help
CURE’s Voyage Beads
CURE Voyage Beads are a visual way for children to record their voyage through cancer treatment. Beads of various colors and shapes, each representing a particular treatment or procedure, are strung on a necklace. For example, the red bead represents a blood transfusion while a white bead represents a chemo treatment. Children will add beads as they go through treatment and will build a tangible documentation of their journey.
How do CURE Voyage Beads work?
The Voyage Bead program is a voluntary program and children who wish to participate in the program will be given a length of string or cord strung with beads that spell their first name. Colored beads representing treatments and procedures will be available to add to the necklace.
New in 2018:
A childhood cancer diagnosis affects the whole family. At CURE, we acknowledge this and have created a Sibling Voyage Bead Program so that the siblings of our children can actively participate in the childhood cancer journey and track their own experience.
The Parent Advocates provide each new family with a CURE Comfort Bag. These bags contain the Patient/Parent Organizer, a “Comfort Kit” with toiletries for an overnight stay, a blanket, teddy bear and other items to help them and their child through those first difficult hours and days. Beginning in 2017, CURE has been afforded the opportunity to also provide $100 gas gift cards to newly diagnosed families, to help with the transportation costs that follow a diagnosis.
Parent Support Groups
CURE’s Parent Advocates host a Facebook Live session at 12 PM that can be accessed by anyone on Facebook – including families who are inpatient, outpatient or even long-term survivors. They cover topics ranging from meeting hospital staff to handling a pediatric cancer diagnosis to how to handle losing a child.
Parents’ Night Out
CURE introduced this program in the summer of 2016. The intent is to offer our parents a night out and includes fun activities such as painting, kayaking, ice skating and more! We have gone to Haunted Hayrides, Red Wings games and The Great Escape room. The goal of the night is to connect parents with other parents experiencing the same thing they are (or similar) and give them an opportunity to network with one another. We also hope our parents have a great time and enjoy getting out of the house!
New in 2019:
CURE will begin offering a “Book Club” to parents. The books will be selected by CURE Program Coordinator, Adella Ivison. A monthly Book Club meeting will be held to gather parents, give them the opportunity to chat about the book and to socialize together!
CURE provides parking passes to help each and every family who is fighting childhood cancer or chronic blood disorder so they never have to worry about parking when visiting their child in the hospital or attending essential appointments. When a child is hospitalized, parents are provided with parking vouchers for as long and as often as their child is an inpatient.
In addition, a parking voucher is provided to parents during each outpatient/clinic visit.
The parking voucher program has been an enormous source of financial relief as hospitalizations can often last a month or longer, creating a huge financial burden for many families. CURE’s parking program saves families up to $60,000.00 annually.
CURE Resource Library furnished by the John F. Wegman Fund
The CURE Office is home to many books and resources that are free for our families to use. We have books available for families to take home and read, some to keep and some to borrow. We have a wide selection of books in which we have one or two copies of. We have multiple copies of the following books:
Learning to Dance in the Rain by Rachel A. Ormsby
I Want to Grow Hair, I Want to Grow Up, I Want to go to Boise by Erma Bombeck
Young People With Cancer; A Handbook for Parents
Chemo, Craziness and Comfort by Nancy Keene & Trevor Romain
Helping to Heal by Patti Wood
Perfect Vision: A Mother’s Experience With Childhood Cancer by Sharon Higgins Brunner
Purpee the Purple Dragon and the Stone-Eyed Snake by Anthony Fasano & Brianna Fasano
Oliver’s Story: For ‘Sibs’ of Kids with Cancer by Michael Dodd