January 2020 Newsletter
Happy New Year from C.U.R.E.
Thank you for subscribing to our newsletter. We hope you can attend a program or event or support C.U.R.E. this month. Please share our newsletter on your social media profile to spread the word about C.U.R.E..
Welcome, Sara!
We are thrilled to welcome Sara Harrison as our new Events & Community Coordinator here at C.U.R.E. She will be responsible for internal & external fundraising, social media content contributions and much more! Sara joins us with an extensive background in event planning & execution. Please join us in welcoming Sara to our team.
C.U.R.E. Spotlight - Leukemia & Lymphoma Society & Northwestern Mutual
The LLS is delighted to share that the AML, MDS & Myeloma Co-Pay silos is reopen.
As with previous openings, funding is limited and we anticipate becoming fully subscribed quickly.
As per the new procedure, LLS now reserves the full value of the patient’s award for all newly approved patients.
Patients can apply online here:
https://www.lls.org/support/financial-support/co-pay-assistance-program
or by calling our Financial Assistance line at 1-877-557-2672. We encourage them to call as soon as possible because this program fills up quickly.
Northwestern Mutual is pleased to announce the childhood cancer scholarship applications opened on Sunday, December 1st for the ’20 –’21 school year. The application closes on Thursday, January 30th, 2020.
As of the ’19 – ’20 school year, Northwestern Mutual has awarded 70 scholarships to childhood cancer survivors and siblings and are
excited to enter their 3rd year of helping kids realize their dreams of obtaining higher education.
Northwestern Mutual offers two scholarships:
Childhood Cancer Survivors: http://bit.ly/34T0YV0
Childhood Cancer Sibling Scholarship program: http://bit.ly/38cr1bV
Spotlight on Zoey
Zoey is a joyful and kind child who just started kindergarten. She loves learning and loves
being with friends. Zoey enjoys playing soccer and practicing gymnastics, and she is looking forward to starting dance classes this fall. She is
always singing and moving and laughing and only slows down to practice writing her letters or catch an episode of one of her favorite shows. Being
young, Zoey is just starting to understand more about her Sickle Cell Disease and what to be mindful about, but she does not let it slow her down. Zoey likes to proclaim she is strong and brave, just like the superheroes she loves
so much (especially Captain America and the Hulk). Zoey is a friendly and energetic child, whose thoughtfulness, along with her smile and dimples, brings joy to everyone who knows her.
Upcoming C.U.R.E. Programming and Events
January Book Club:
The Climb (1997), republished as The Climb: Tragic Ambitions on Everest, is an account by Russian-Kazakhstani mountaineer Anatoli Boukreev of the 1996 Everest Disaster, during which eight climbers died on Mt. Everest. The co-author, G. Weston DeWalt—who was not part of the expedition—provides accounts from other climbers and ties together the narrative of Boukreev's logbook.
January Book Club:
Open to all C.U.R.E. parents & caregivers past and present
Meeting:
Wednesday, January 22nd.
at the CURE office (200 Westfall Road)
from 6:30 p.m. - 8:00 p.m.
Please let Adella know if you'd like to come!
585-473-0180 or adella.ivison@curekidscancer.com
We want you to participate! Can't get the book? LET US KNOW! We will work with you to get you access to a copy!
Thank You For Your Support
Tacky Sweater Party at Nosh
A HUGE thank you to our friends at Nosh, The Bonadio Group and Bacardi for sponsoring this event! Congratulations to our winner, 🎅! Thank you to our #CUREYPC who helped to plan this event!!
Thank you Bente
Local 2419, Council 66 and School of the Arts
The C.U.R.E. Childhood Cancer Association’s ANNUAL HOLIDAY PARTY, Hosted by BENTE Local 2419 and Council 66, was so much fun! We had over 150 C.U.R.E. Children in attendance this year. Thank you to Grease Paint Alley Clowns, Empire Magic, Avian Salon, Nick Hadad as the Reindeer, the Knighthawks, Zuriel on the Harp, and Air Affair for making this years party so AWESOME!
Upcoming Fundraisers
Awareness Coffee
Our friends at Awareness Coffee are helping to spread awareness about Pediatric Cancer with their coffee made from a specialty bean out of Peru, and roasted to perfection with subtle floral and chocolate notes.
A portion of proceeds will be donated to C.U.R.E., Golisano Children’s Hospital and Camp Good Days – your choice at checkout!
Buy the coffee here!
Mermaid Tail Headbands
Who doesn’t want to be a mermaid?
By purchasing your C.U.R.E. Mermaid Headband, you will provide one for a child going through cancer treatment and you get to keep one for yourself!
Check it out at: https://curecca.ejoinme.org/headbands
Headbands can be mailed to the purchaser!
KidCents Rite Aid Round Up Program
By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!
See the steps to enroll here! for information on this fundraiser
Baby Boomer Baseball
Our friend, author Robert Kravetz, will be donating $10 for every book purchased to C.U.R.E.!
Want to check out this wonderful book full of stories and stats? Contact him today: rkravetz@brightonsecurities.com or sfasciano@brightonsecurities.com
We Want to Hear From You!
We are looking for volunteers for upcoming events in 2020!
If you are interested, please contact Adella at Adella.ivison@curekidscancer.com
We know it can hard to make ends meet with the expenses of the holidays. We at C.U.R.E. want to help! Please contact the office if you would like to stop by and pick up a food bag. We have staples like peanut butter and jelly and mac and cheese that we hope you’ll find helpful!
Please call the office (585-473-0180) or e-mail adella.ivison@curekidscancer.com to set up a pick up time!
We are currently looking for interns for Summer 2020!!
If you are interested, please email adella.ivison@curekidscancer.com
Tell us your story.
Has C.U.R.E. helped you? We would love to hear stories about how C.U.R.E. has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com.
What programming would you like to see at C.U.R.E.? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to staff@curekidscancer.com
Young Professional Committee
Email Brittany Charles Gold in you are interested in learning more about C.U.R.E.’s new Young Professional Group!
charlebc11@gmail.com
Wish List Items Needed
We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support. If you or a community group you belong to is looking for something to do for a charity, please consider donating items from C.U.R.E.’s wish list so that we can continue to provide for our families.
Items Needed:
A cure for childhood cancer, blood diseases and brain tumors!
- Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
- Gift cards for McDonalds, Wendy’s, Taco Bell, Burger King, Arby’s, Dunkin Donuts and Starbucks
- Weighted blankets
- Essential oils
- Mini diffusers
- Heating pads
- Crafts for young adults and children
- Paper towels and toilet paper
- Facial Cleansing Wipes and body wash
- Items for teens or young adults
- Word searches, adult coloring books and crosswords
- Legos
- Word searches, adult coloring books and crosswords
We ask that all items be new and recently purchased. Thank you!
Support
Are you looking for someone to help tutor your child?
Are you looking for someone to help tutor your child? C.U.R.E. Childhood Cancer Association works with Boost to provide supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. The group of teachers at Boost Tutors, will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. The tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors, also. For more information please contact Adella Ivison, Program Coordinator for C.U.R.E. at 585-473-0180 or Adella.ivison@curekidscancer.com and she will make a referral.
Educational Consultant Services from C.U.R.E.
Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? C.U.R.E. can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong. If you would like to speak with Kathy Wissler either in person or via phone, please contact Adella Ivison, C.U.R.E. Program Coordinator, at 585-473-0180, or Adella.ivison@curekidscancer.com and she will make a referral. This service is provided free for C.U.R.E. families.
Facebook Live
Kiersten Kunick and Michelle Magin, Parent Advocates, go live on Facebook.
They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.
Have a topic you’d like to hear about? Feel free to reach out to Kiersten at kiersten.kunick@curekidscancer.com or Michelle at Michelle.Magin@curekidscancer.com
They will do their best to answer your questions and address topics you’d like to hear about!
Brian Bisgrove Home of Courage
The Brian Bisgrove Home of Courage, located an hour away from Rochester, is a retreat and respite home for families with children who have life-altering conditions. Children and their families are invited into the beautiful, handsomely-appointed log cabin for a 3 or 4 day stay and rest and repose, all completely free of charge. At the Home, medically fragile children can experience a different kind of healing, one of the mind and the spirit. It’s a place to let go of anxiety and stress and focus on the family.
The website, with more detailed information on the Home and the application is: www.homeofcourage.com.