December 2019 Newsletter
Happy Winter From C.U.R.E.
Thank you for subscribing to our newsletter! We hope you can attend a program or event or support C.U.R.E. this month. Please share our newsletter on your social media profile to spread the word about C.U.R.E..
Get the #1 Resource for Families Impacted
by Childhood Cancer
Alex’s Lemonade Stand Foundation (ALSF) now publishes these peer-reviewed, childhood cancer guides. Our books, Childhood Leukemia, Childhood Brain & Spinal Cord Tumors, Childhood Cancer, Your Child in the Hospital, and Childhood Cancer Survivors, are comprehensive guides containing essential information for families and friends coping with childhood cancer.
Topics include:
* Understanding diagnoses
* Advice for open communication with schools
* Receiving excellent treatment
* Addressing side effects of treatment
* Finding emotional support
* Identifying helpful resources
* Ensuring follow-up care in survivorship clinic
Special Offer:
These books are now available as free downloads on the ALSF website.
Buy one, get 30% off – go to the IPG website and use the code: CCGF19
The SuperSibs Comfort & Care Mailing Programs
The SuperSibs Comfort & Care Mailing Programs send age-appropriate support over two years to children ages 4-18 residing in the U.S. who have experienced the childhood cancer diagnosis of a sibling.
To find out more about Alex’s Lemonade Stand Foundation’s SuperSibs program, please visit their website here.
C.U.R.E. Spotlight - Cydney
Cydney is 13 years old and is in 8th grade. In February 2018, she began treatment for B cell Acute Lymphoblastic Leukemia. She is a very active teenager who enjoys swimming and spending time with her friends. Cydney is also a voracious reader who really likes school.
End of Treatment Bell Ringing
Join us as we congratulate Jack in his end of treatment bell ringing. Jack and his family came over to the C.U.R.E. office for a handprint party and celebration after the bell ringing at Golisano Children’s Hospital.
Congratulations, Nina!
Congratulations on ringing the end of chemo bell, Nina! We had the opportunity to celebrate with Nina, her friends and family! We loved hearing about her wish from Make-A-Wish, her German Shepherd Harper!
Upcoming C.U.R.E. Programming and Events (ADD EVENTS TO CALENDAR)
Irish domestic worker Norah King's decision to ask her wealthy employer, Caroline Parker, for an elegant red coat that the Beacon Hill matriarch has marked for donation ignites a series of events that neither woman could have fathomed.
December Book Club:
Open to all CURE parents & caregivers past and present
Meeting:
Wednesday, December 18th
(MAKE NOTE ON THE DIFFERENT DATE)
@ the CURE office (200 Westfall Road)
from 6:30 p.m. - 8:00 p.m.
Please let Adella know if you'd like to come!
585-473-0180 or adella.ivison@curekidscancer.com
We want you to participate! Can't get the book? LET US KNOW! We will work with you to get you access to a copy!
Thank You For Your Support:
Thank You Lucky Heart Designs & Rohrbach Brewing Company
We had such a wonderful time at our latest Parents’ Night Out at Rohrbach Brewing Company on Railroad Street and Tonja with Lucky Heart Designs painting beautiful wooden signs for home and holiday time!
Thank You, Riot Room
We had a very special Parents’ Night Out dedicated to our Bereaved C.U.R.E. families at the Riot Room. Sometimes we all need a little “Smash Therapy”!
Thank you to Peachskin Sheets for partnering with C.U.R.E. on another “cozy” fundraiser this year! Did you get your sheets? Watch for this fundraiser next year!
Thank you RocLights at Vicotr Hills and Mark’s Pizzeria
Many of our C.U.R.E. families had the opportunity to start off the holidays in a wonderful way! RocLights at Victor Hills has organized an amazing drive-thru lights presentation and so much more! The festivities are going on now thru December 31st! Our friends at Mark’s Pizzeria donated the passes for our families to enjoy the show!
Thank you, Nina!
Not only did Nina get to ring the end of treatment bell, but she brought over these great pillows! They are really going to brighten up someone’s day! And look, Llamas!!
Upcoming Fundraisers
5th Annual Tacky Sweater Party
Don't forget about the 5th Annual Tacky Sweater Party on December 5th! Come with your tackiest sweater and have fun with us!
Don't forget about our Giving Tree with 100 ornaments: some made by C.U.R.E. kids, some special bought and SOME that have gift cards or prizes associated with them! Each ornament is $20, so come prepared <3
Mermaid Tail Headbands
Who doesn’t want to be a mermaid?
By purchasing your C.U.R.E. Mermaid Headband, you will provide one for a child going through cancer treatment and you get to keep one for yourself!
Check it out at: https://curecca.ejoinme.org/headbands
Headbands can be mailed to the purchaser!
KidCents Rite Aid Round Up Program
By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!
See the steps to enroll here! for information on this fundraiser
Baby Boomer Baseball
Our friend, author Robert Kravetz, will be donating $10 for every book purchased to C.U.R.E.!
Want to check out this wonderful book full of stories and stats? Contact him today: rkravetz@brightonsecurities.com or sfasciano@brightonsecurities.com
Awareness Coffee Co.
Our friends at Awareness Coffee are helping to spread awareness about Pediatric Cancer with their coffee made from a specialty bean out of Peru, and roasted to perfection with subtle floral and chocolate notes.
A portion of proceeds will be donated to C.U.R.E., Golisano Children’s Hospital and Camp Good Days – your choice at checkout!
Buy the coffee here!
We Want to Hear From You!
We are looking for volunteers for upcoming events in 2020!
If you are interested, please contact Adella at Adella.ivison@curekidscancer.com
We know it can hard to make ends meet with the holidays approaching. We at C.U.R.E. want to help! Please contact the office if you would like to stop by and pick up a food bag. We have staples like peanut butter and jelly and mac and cheese that we hope you’ll find helpful!
Please call the office (585-473-0180) or e-mail adella.ivison@curekidscancer.com to set up a pick up time!
We are currently looking for interns for Summer 2020!!
If you are interested, please email adella.ivison@curekidscancer.com
Has C.U.R.E. helped you? We would love to hear stories about how C.U.R.E. has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com.
What programming would you like to see at C.U.R.E.? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to staff@curekidscancer.com
Email Brittany Charles Gold in you are interested in learning more about C.U.R.E.’s new Young Professional Group!
charlebc11@gmail.com
Bereavement Corner
Wish List Items Needed:
We are so grateful to the community for all of the wonderful donations we receive throughout the year! We could not service all the families we do without this generous support. If you or a community group you belong to is looking for something to do for a charity, please consider donating items from C.U.R.E.’s wish list so that we can continue to provide for our families.
Items Needed:
A cure for childhood cancer, blood diseases and brain tumors!
- Gift cards for Wegmans, Tops, Wal-Mart, Target and gas stations
- Gift cards for GrubHub, McDonalds, Wendy’s, Chipotle, Moe’s, Dibella’
- Weighted blankets
- Essential oils
- Mini diffusers
- Heating pads
- Dry shampoo
- Facial Cleansing Wipes
- Cases of water
- Items for teens or young adults
- Toys for kids under 13 years old
We ask that all items be new and recently purchased. Thank you!
Support
Are you looking for someone to help tutor your child?
Are you looking for someone to help tutor your child? C.U.R.E. Childhood Cancer Association works with Boost to provide supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. The group of teachers at Boost Tutors, will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. The tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors, also. For more information please contact Adella Ivison, Program Coordinator for C.U.R.E. at 585-473-0180 or Adella.ivison@curekidscancer.com and she will make a referral.
Educational Consultant Services from C.U.R.E.
Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? C.U.R.E. can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong. If you would like to speak with Kathy Wissler either in person or via phone, please contact Adella Ivison, C.U.R.E. Program Coordinator, at 585-473-0180, or Adella.ivison@curekidscancer.com and she will make a referral. This service is provided free for C.U.R.E. families.
Facebook Live
Kiersten Kunick and Michelle Magin, Parent Advocates, go live on Facebook.
They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.
Have a topic you’d like to hear about? Feel free to reach out to Kiersten at kiersten.kunick@curekidscancer.com or Michelle at Michelle.Magin@curekidscancer.com
They will do their best to answer your questions and address topics you’d like to hear about!
Brian Bisgrove Home of Courage
The Brian Bisgrove Home of Courage, located an hour away from Rochester, is a retreat and respite home for families with children who have life-altering conditions. Children and their families are invited into the beautiful, handsomely-appointed log cabin for a 3 or 4 day stay and rest and repose, all completely free of charge. At the Home, medically fragile children can experience a different kind of healing, one of the mind and the spirit. It’s a place to let go of anxiety and stress and focus on the family.
The website, with more detailed information on the Home and the application is: www.homeofcourage.com.