Parent Advocate Program
Through the work of our Parent Advocates, staff and devoted volunteers, CURE offers families a wide range of emotional support and care by:
• Helping families understand their child’s diagnosis and acting as their liaison to medical and psychosocial staff.
• Providing comfort and support through visits with patients and families who are hospitalized or at the Outpatient Clinic / Treatment Center.
• Supplying a CURE Tote Bag filled with comfort items for newly diagnosed patients and their families.
- Delivering CURE’s Patient/Parent Organizer, a tool to help newly diagnosed patients and caregivers keep track of vital information about the patient’s illness and treatment
How We Help
CURE’s Voyage Beads
CURE Voyage Beads are a visual way for children to record their voyage through cancer treatment. Beads of various colors and shapes, each representing a particular treatment or procedure, are strung on a necklace. For example, the red bead represents a blood transfusion while a white bead represents a chemo treatment. Children will add beads as they go through treatment and will build a tangible documentation of their journey.
How do CURE Voyage Beads work?
The Voyage Bead program is a voluntary program and children who wish to participate in the program will be given a length of string or cord strung with beads that spell their first name. Colored beads representing treatments and procedures will be available to add to the necklace.
Parent Support Groups
Every other Wednesday, CURE’s Parent Advocates host a Facebook Live session at 12 PM that can be accessed by anyone on Facebook – including families who are inpatient, outpatient or even long-term survivors. They cover topics ranging from meeting hospital staff to handling a pediatric cancer diagnosis to how to handle losing a child. An Outpatient/On Treatment Support Group occurs at the CURE office (200 Westfall Road) the 2nd Wednesday every month from 12 – 1. RSVPs are not required. A Long-Term Survivor Support Group occurs at the CURE office (200 Westfall Road) the 4th Wednesday every month from 6:30 – 8PM. RSVPs are not required.
CURE provides parking passes to help each and every family who is fighting childhood cancer or chronic blood disorder so they never have to worry about parking when visiting their child in the hospital or attending essential appointments. When a child is hospitalized, parents are provided with parking vouchers for as long and as often as their child is an inpatient.
In addition, a parking voucher is provided to parents during each outpatient/clinic visit.
The parking voucher program has been an enormous source of financial relief as hospitalizations can often last a month or longer, creating a huge financial burden for many families. CURE’s parking program saves families up to $60,000.00 annually.
CURE Resource Library furnished by the John F. Wegman Fund
The CURE Office is home to many books and resources that are free for our families to use. We have books available for families to take home and read, some to keep and some to borrow. We have a wide selection of books in which we have one or two copies of. We have multiple copies of the following books:
Learning to Dance in the Rain by Rachel A. Ormsby
I Want to Grow Hair, I Want to Grow Up, I Want to go to Boise by Erma Bombeck
Young People With Cancer; A Handbook for Parents
Chemo, Craziness and Comfort by Nancy Keene & Trevor Romain
Helping to Heal by Patti Wood
Perfect Vision: A Mother’s Experience With Childhood Cancer by Sharon Higgins Brunner
Purpee the Purple Dragon and the Stone-Eyed Snake by Anthony Fasano & Brianna Fasano
Oliver’s Story: For ‘Sibs’ of Kids with Cancer by Michael Dodd