I love Rochester. I don’t think I say it enough. I love our City. I love the sense of community, philanthropy and genuinely wanting to help your neighbors.
For the past several years, we at CURE have been working hard to increase awareness of childhood cancer and chronic blood disorders, specifically in the month of September. Hopefully this past month, you saw lawn signs, a billboard, heard PSAs on the radio or saw one of the news stories that discussed the importance of raising awareness. Every year, it blows me away to see the support from our neighbors and the efforts they go through to increase awareness. We will have a special edition of our newsletter coming out mid-October to highlight the businesses and individuals who did something to help raise awareness in September (that we know of).
The reality is that approximately 100,000 Americans are living with sickle cell disease. This year, we’ve been consented to help 8 families coping with sickle cell disease. We posted some great educational information on our Facebook page this past month and hope you’ll take a look. Educating the community about these diseases is how we can help make a difference. If you haven’t yet, please take a look. My favorite piece of information we shared was an illustration explaining how a pain crisis happens for our kids with sickle cell disease (see below).
In 2017, 45 children with cancer have been consented to our programs and services. Annually, over 15,000 children are diagnosed with cancer in America. What many people do not realize is there are residual and long-term affects of cancer and its treatments, especially on children. So yes, survival rates are increasing, but approximately 80% of survivors develop one or more chronic conditions as a result of their treatments. Support from our incredible community allows us to follow our kids for as long as we can – offering programming, resources and support.
We thank you for your continued support and advocacy. Our families thank you, too. Please continue to be this beautiful, caring City with the mission of helping those around you. It’s a privilege to be here and be a part of it…until no parents ever have to hear the words “your child has cancer” or “your child has a chronic blood disorder” or “your child has a brain tumor“.