CURE Childhood Cancer Association

November Newsletter

CURE main logo pic

A Message from the Executive Director

“The month of November makes me feel that life is passing more quickly. In an effort to slow it down, I try to fill the hours more meaningfully.”
– Henry Rollins

Sam and I were just discussing that we can’t believe it is already November. In reflecting on the past year, thankfulness obviously comes to mind. We have had the opportunity to offer expanded programming and services to our CURE families because of the generous support from all of you. We’ve offered three Parents’ Night Out events this year, have increased the number of families we can offer financial support to, have increased the numbers of food vouchers we have distributed…all because of your generosity. It truly is humbling.

Were you able to attend our Recipe for a CURE Sunday Brunch on October 15th? I was literally moved to tears by the kindness in that room. We had two generous donors sponsor CURE couples for an evening out (one even offered to take the remaining CURE Kid Chef parents out for dinner), a kind friend of CURE sponsored the “Treat a CURE Family” package (and this particular family already donated equipment to CURE and bikes for our kids earlier this year) and another live auction package was purchased and donated back to our organization. All in the span of 15 minutes. Next came the paddle call. We were blown away by the benevolence of our guests. The guests this year truly overwhelmed us – from those who attended, to those who purchased auction items, to those who donated. Our event raised more money than we have ever raised at an event. That means more programming, expanded services and enhanced programming for our families. We cannot thank you enough. We look forward to offering new and different support to our families. Have an idea? Let us know!

It’s a personal goal of mine to slow down a little bit, especially this holiday season. Sometimes, this job is a bit daunting. In 2017, nearly 70 families have been halted by the words “Your child has cancer” or “Your child has a blood disorder.” It’s staggering. So I ask of all of you – take some time this season. Enjoy those around you. Do something meaningful. Rochester is rich in non-profits. Find someplace to give back to (whether with your time or financially). Take the time for your family. The work, the laundry, the cleaning…it will all be there tomorrow. Join me. Make an effort to fill your hours more meaningfully.

Thank you for letting me be a part of such an incredible organization.
Thank you for the honor of getting to know all of you and help however CURE can.
Wishing you and yours a happy, healthy month of November and Thanksgiving holiday.

Spotlight On Jenesis

On August 17 of 2010, Jenesis was welcomed into the world by her mom and dad Scotesha and Mike . Jenesis is the youngest of 4 children and pulse of her family. Jen or Jenny as she is affectionately called by her family is a strong-willed, expressive girl that is not afraid to share her opinions.

Jenesis is a second grader at Nazareth Elementary school. She has been at Nazareth since kindergarten and loves her school dearly. Jenny is a very active part of the Nazareth Elementary community. She participates in Girl Scouts, 100-mile club, and dance.

At home, Jenesis is an average seven-year-old. She loves to cook, sing, take photos, run, watch television and cuddle with her dog “Tank.” Jenny’s favorite television show is Chopped, and she loves to play Chopped at home with her family. Making food concoctions is one of her hobbies.

On August 9, 2017, Jen’s mom discovered two small masses near her rib cage at bath time. Upon completing testing at Golisano Children’s Hospital, she was diagnosed with Wilms Tumor also called: nephroblastoma. Wilms Tumor is a childhood kidney cancer that usually effects kids 2-5 years old. Jenesis was a-symptomatic upon her diagnosis and had no signs of illness. She participated in this year’s Rochester Marathon and completed 1.2 miles in about 14 minutes after starting her chemotherapy treatment the day before.

Even with her diagnosis, she has kept her bright smile and optimistic attitude. Every Friday night after chemo, Jenesis and her family have a Friday celebration. Friday Celebration is a reminder to celebrate every little victory, big and small.

Free CURE Programming and Events


CURE’s Annual Holiday Party

Wednesday, December 13, 2017
School of the Arts. 

Reservations are Required!! 
You must call or email Sam Corrigan by Thursday, November 30th
585-473-0180
sam.corrigan@curekidscancer.com

or you can register at:
https://cureholidayparty2017.eventbrite.com

We cannot guarantee a gift for each child under 16 if you do not register by November 30th. Be sure to give name with correct spelling, age and gender of each child under the age of 16 who will attend.

Immediate family are welcome! But please no extended family, friends or neighbors. 

If you are interested in volunteering please email sam.corrigan@curekidscancer.com  

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The next Parents Night Out will be a Chocolate Making class with Laughing Gull Chocolates in January! 
Stay tuned for the date and time! 

Art Work Needed

We have a “Wall of Fame” at the Twelve Corners Starbucks that features artwork of our CURE kids. We would love to feature your work and the wall could use a little love. Please do not include last names on your pieces. They can be sent to the CURE office or given to Kiersten or Adella at the hospital.



Upcoming Fundraisers

27th Annual Race With Grace 10k

Thursday, November 23rd (Thanksgiving morning!) 9 AM

The Race with Grace 10K is a USA Track & Field certified road race (NY12131KL) that was established in 1991. Held on Thanksgiving morning at 9:00 AM, the race begins in front of First Bible Baptist Church on Manitou Road. Following a flat, fast course that encompasses Latta, Manitou, North Greece and Frisbee Hill Roads, the route finishes in the north parking lot of the church, adjacent to the main auditorium.

There is an $22 pre-entry fee by November 19th, 2017, $26 November 20th-22nd, and $30 on Race Day. Fees include a hooded sweatshirt for the first 200 registrants and a HOODED L/S cotton tee for registrants 201-1000. Sizes guaranteed if registered prior to November 1st. All entry fees are non-refundable. Register online at www.RWG10k.com until Monday, November 19th at 9 PM

Proceeds from the race are generously donated to CURE Childhood Cancer Association.

We are seeking a special CURE Kid to be the official race starter! Interested? Contact Holly Dutcher at holly.dutcher@curekidscancer.com ASAP!

Get some holiday shopping done right here in the CURE office!
Thursday, November 30th
4 PM – 7 PM
Come say hi, see our friend Chelsie Anjo, check out her LuLaRoe and do some holiday shopping!
CURE will receive a donation for every piece sold!
Stop by on your way home from work. We’ll have yummy snacks!

We will also have an opportunity to participate online over that weekend.
Stay tuned for more details!

Holiday Sponsorship! 

Help a CURE Family in Need this December

Are you interested in sponsoring a CURE family this December holiday season?  Your help could brighten the holidays for a family of a sick child. For more information please contact the CURE office at 585-473-0180 or sam.corrigan@curekidscancer.com 

Holiday Gift Wrappers Wanted!! 

We are looking for volunteers to come in during the week of December 4th through the 8th to wrap holiday presents for CURE families! Email sam.corrigan@curekidscancer.com if you would like to help!

Holiday Gifts Needed

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We are accepting donations of new toys for all ages for the Holidays! Please drop off donations to the CURE office by December 1st.

Visit www.ROCtheDay.org and designate CURE Childhood Cancer as your charity of choice on Tuesday, November 28, 2017

Don’t forget to designate – CURE’s number is 1028!

ROC the Day updates will be posted on Facebook and Twitter via #ROCtheDay. To learn more about ROC the Day, view a live event countdown and see a list of sponsors and community partners, visit www.ROCtheDay.org.

Let’s ROC!

December 14, 2017 6:00 – 9:00 pm!

Come dressed in your tackiest puffy paint, pom pom, sequined glory, and we’ll show you specialty cocktails and delicious food. A portion of your drink and food proceeds will be donated to CURE Childhood Cancer Association. You’ll also be entered to win the TACKIEST SWEATER contest!

No Entry Fee
Just Eat, Drink and Donate! 

Is it never too early to start thinking of holiday shopping while giving back to your local community!  “Giving Thanks in November” allows you to start your shopping and giving back 15% to us, CURE now thru November 30th!

Smallprint Northeast captures your child or loved one’s actual precious fingerprint, hand or foot prints, drawings or love letters in silver and 22k gold! All are handmade and beautifully packaged ranging from pendants, charms, cuff-links, key rings and more! We have everything for mom, dad, grandparents and more!

Have you had a loved one that has passed? If so and you have something in their handwriting, handprints and footprints…well we are delighted to let you know they can use those too to create a piece for you!

Contact Alicia by November 30th to place your order, book your home appt or for more information at 585-402-9028 or alicia.thompson@smallprint.com.  Lastly, don’t forget to mention CURE!

It’s that time of year, wash away the salt and traces of winter all while supporting CURE!

www.causewash.com/curekidscancer

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Mint Salon will be hosting braid bars all over Rochester to benefit CURE starting in February! Stay tuned for more details!


We are excited to announce that we have partnered with Rite Aid and are now an official KidCents charity! KidCents is a program created by The Rite Aid Foundation that allows Rite Aid customers to round up their purchases to the nearest dollar and donate their change to help support kid-focused charities.

Here’s how you can enroll in the KidCents program and round-up to our charity:

Step 1: Enroll in wellness+ with Plenti (Skip to Step 2 if you are already a wellness+ with Plenti member)

  • Visit KidCents.com and click ‘Sign In’ on the left
  • Click the box on the right to ‘Enroll in wellness+ with Plenti
  • Complete registration process for wellness+ with Plenti
  • Click through to finish signing up in Plenti
  • When finished with both processes, you will be directed to RiteAid.com

Step 2: Enroll in the KidCents Round-Up Program

  • Visit KidCents.com
  • You should see your account logged in on the left. If not, sign in with the account information.
  • Click ‘Start rounding up today!’ dial on the left

Step 3: Designate Your Charity

  • Click ‘Select a Charity’ on the left
  • Type [INSERT CHARITY NAME HERE] and click ‘Select This Charity’

By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!


Thank you for your support!

Alstom Charity Golf Tournament

Wow! Thank you so much ALSTOM who held their 2017 Charity Golf Tournament to benefit CURE! They raised $10,000 for our families! We are blown away by their support!

Fingerlakes Gaming and Race Track Charity Cup

CURE is the humble recipent of $2,000 from Fingerlakes Gaming and Racetrack Charity Cup event!! Thank you!

ROC City Steelers Club

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Thank you to our friends at the ROC City Steelers Club who donated the proceeds from their annual tailgate party to CURE! We are so thankful for your support!!

VerHulst Haunted Hayrides

Thank you to our friends at VerHulst Haunted Hayrides who hosted us for a great Parents Night Out event!!

We Want To Hear From You!

We are currently looking for interns for the upcoming Summer 2018.

If you are interested please reach out to Holly Dutcher at holly.dutcher@curekidscancer.com

Has CURE helped you? We would love to hear stories about how CURE has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com.

What programming would you like to see at CURE? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to staff@curekidscancer.com


Wish List Items Needed:

We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support.  If you or a community group you belong to is looking for something to do for a charity, please consider donating items from CURE’s wish list so that we can continue to provide for our families.

Items Needed:

  • A cure for childhood cancer, blood diseases and brain tumors!
  • Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
  • Small pocket/purse-sized calendars
  • Paper towels and toilet paper
  • Items for teens or young adults
  • Toys for kids under 3 years old

We ask that all items be new and recently purchased.  Thank you!


Bereaved Families Corner

When Grief during the Holidays is New
Pat Schwiebert, RN

As we officially enter the holiday season those who grieve enter in a quagmire of emotions.

  • Is in okay to experience joy when a loved one is dead?
  • Can you be grateful for the time you ad with your loved one while being overwhelmed with missing that person?
  • Will you give yourself permission to join in the festivities of the season or not gather with family and friends depending on how you feel in the moment?

For those in their first season, you may be surprised at how challenging this time of year may be. Friends and family may or may not be aware of what this may be like for you. Because holidays are more intense, and hold more expectations than other times in the year, they are a set up for those who grieve. Holidays tend to be family time. You would think is should mean that family will be around supporting each other and remembering holidays past and those no longer present. Some will do it well. Others will deny there’s someone missing, while that atmosphere will be like there is an elephant in the room, but everybody’s pretending that nothing special is going on.

People will mean well. But their tendency may be want to fix you. They want the old you back. They want you to be happy in order to reduce their discomfort. But there is no fixing a broken heart. Your heart will never again be without blemish. The scar from your sorrow will remain, and the healing that you will go through will make you a different person. That’s not a bad thing. But it’s helpful to know that part of you will be changing.

To simplify the holidays it may be helpful to assess just what is important to you. Here are a few questions to ask yourself about the holidays:

  • What kind of celebration do I want to have this year?
  • Do I really want to put up all those decorations?
  • Can meals be more simply prepared and be just as filling with a few less calories?
  • Who is it important for me to see and visit with during the holidays?
  • Who makes the rules about who I must give presents to and how much I must spend?
  • Must I attend every event that I am invited to during the holiday season?
  • Can I give myself permission to create some new traditions?
  • Can I be kind to myself and plan some quiet times during the holidays to provide myself with enough rest?
  • What does this time of year mean to me personally and how do I wish to celebrate it.
  • What traditions do I want to hold onto and which are important to others in my family.
  • Am I willing to let others know what will help me feel safe at gatherings and to ask what their needs may be?
  • What rituals could I create around the holidays to help me remember my loved one?

There is no right or wrong way to celebrate the holidays. Set out with the intention to do the best you can, given the circumstances. Whether you stick to old family traditions or change the pattern, it’s all okay. You will not be able to please everyone. Next year you may have more engery and more interest in partcipating in holiday routines than you do now. This year you may have to figure out how to get through the season and not set yourself up for what you’re not ready for. Try to recognize that the holoday is just another day of the year filled

This full article can be found here.

Our most sincere condolences…

Hannah Mahnke – October 26th


Support:

Thanksgiving & Christmas Dinners:

Blessed Sacrament Church (259 Rutgers Street, Rochester, NY 14607)
Thanksgiving Dinner (November 21 @ 6:30)
Holiday Dinner (December 18 @ 6:30)
Call Mary Jo Lightholder for more info (585-442-5279) mjlightholder@frontiernet.net

Cameron Community Ministries (48 Cameron Street; 585-254-2697)
Thanksgiving Meal (November 23, 12 – 2)
Holiday Meal (December 25, 12 – 2)
No cost. No carry-out.

Community Lutheran Ministries, Inc. (942 Joseph Avenue; 585-338-2420)
Thanksgiving Dinner (November 18th, 12 – 4)
No pre-registration.

Community Place of Greater Rochester (145 Parsells Avenue; 585-288-0021)
Thanksgiving Dinner (November 16; 5:30 – 7:30)
Open to residents in the following zip codes: 14609 and parts of 14605, 14607, 14610, 14621
No cost.

First Genesis Baptist Church (292 Hudson Avenue; 585-454-7418)
Thanksgiving Dinner (November 23; 11 – 1)
Sit-down dinner for anyone in need. No cost.

Open Door Mission (210 West Main Street; 585-454-6696)
Thanksgiving Dinner (November 23; 4 – 7)
Religious service during dinner service. Anyone in need is welcome. No cost.
St. Martin’s Place (585) 325-6500
Thanksgiving dinner

St. Martin’s Place (55 Ontario Street)
Thanksgiving Dinner (November 23; 11:30 – 12:30)
Anyone in need is welcome. No cost. No reservations required.

St. Peter’s Kitchen (Behind church at 681 Brown Street; 585-235-6511)
Thanksgiving Dinner (November 23; 12:00 -1:00 PM)
Christmas Dinner (December 25; 12:00 – 1:00 PM)
Anyone in need is welcome. No reservations required. No carry-out. No cost.

THANKSGIVING FOOD BASKETS:
The following agencies are accepting applications for Thanksgiving food baskets for needy families. An interview may be required and clients may be asked to present the following documentation for proof of eligibility: proof of income; identification for each family member, including social security number; and photo identification for the head of household. Please note that services are limited to areas listed. Call the agency for additional information.

Cameron Community Ministries
 (48 Cameron Street; (585) 254-2697)
Starting November 1, 2017 at 9:00 am in person with ID to sign-up.

Community Place of Greater Rochester (145 Parsells Avenue or 57 Central Park; (585) 288-0021)
Register through November 10, 2017 from 9-12 Mon. – Fri.
Bring proof of income and residency.

Dimitri House (102 North Union Street; (585) 325-1796)
Serves 14604, 14605, 14607, and 14609
Call the above number beginning October 3, 2017
9:00 AM – 5:00 PM, Monday – Thursday
Must have at least 1 child under 17 living in the household; proof of address and number of members of household required.
Baskets given on a first come, first served basis to qualified applicants. Cost: none

Irondequoit Community Cupboard (4275 Culver Road; (585) 336-9107)
Area served: Irondequoit. Sign up in person only.

Mission Share (10 Cedarfield Commons; (585) 368-0746)
By appointment only please call
Area served: 14612, 14615, 14616, 14626

CHRISTMAS FOOD BASKETS AND TOYS:
The following agencies are accepting applications for Christmas food baskets and/or toys for needy families.
All agencies require an interview and clients must present the following documentation for proof of eligibility: proof of income; identification for each family member, including social security number; and photo identification, proof of current address for the head of household.
Not all agencies cover every area of the city; be sure to check each listing for Zip Codes covered. For additional information, contact the appropriate agency at the number given.

Baden Street Settlement (152 Baden Street; (585) 325-4910)
Serves E. Ridge Road (north), Inner Loop (south), St Paul Street (west), Portland Avenue/Carter Street (east); portions of 14605, 14604 and 14621
Apply at the above address between November 1, 2016 and November 22, 2017, 8:30 AM – 4:30 PM, Monday – Friday
Cost: none

Cameron Community Ministries (48 Cameron Street; (585) 254-2697)
Christmas Food Basket: starting December 1, 2017 9:00am in person with ID to sign-up.
Holiday Party December 20th 4-6 pm. Kids under 18 and meet Santa and receive a gift.
Cost: none

Community Place of Greater Rochester (585) 288-0021 and 327-7200
Christmas food baskets: sign-up begins 2nd week of October.
Serves 14609, parts of 14605, 14607, 14610, and 14621
Cost: none.

Irondequoit Community Cupboard (4275 Culver Road; (585) 336-9107)
Area served: Irondequoit. Sign up in person only.

Maplewood Edgerton (MEEK) (121 Driving Park Avenue; (585) 458-4682)
Serves 14613, portions of 14615 and portions of 14608
Registration for Christmas food baskets is Monday, November 27, 2017 at 9:00am.
Cost: none

Salvation Army (100 West Avenue; (585) 987-9500)
Serves all of Monroe County
Apply at the above address between November 7 and 11, 2016. Monday 9:00 AM – 3:00 PM, Tuesday 9:00 AM – 3:00 PM, Wednesday 9:00 AM – 6:00 PM, Thursday 9:00 AM – 3:00 PM, Friday 9:00 AM – 3:00 PM. Head of household must bring photo ID, proof of address, proof of income and proof of ID for each additional household member.
Christmas distribution: Toy Shop: December 20-21, 2016 @ 9:00
Food Bag distribution December 22, 2016
Cost: none

St. Peter’s Kitchen (585) 235-6511
Children’s Toy Store
Areas served: 14604, 14608, 14611, 14619, 14606 (Mt. Read area)
November 13-27, 2017 during lunch hour 12:00-1:00.
Please bring budget sheet, social security info or benefits card plus recent piece of mail.

SWEM Community Services (350 Chili Avenue; (585) 235-4494)
Serves 14428, 14514, 14546, 14559, 14606, 14608, 14611, 14614, 14619, parts of 14623 (west of Genesee River), 14624
Call the above number (no messages, please) between November 1 – 23, 2017
10:30 AM – 1:00 PM, Monday – Friday (No holidays or weekends)
Cost: none

Bereavement Group:

illustration of the forget-me-not flowers over white background

The first Wednesday of each month

Hosted by Kiersten Kunick and Adella Ivison

200 Westfall Road, Rochester 14620

Next meeting is December 6, 2017

From 7-830pm

No reservations required


ROC City Sicklers:

ROC City Sicklers Logo

The third Tuesday of each month

UR Medicine

Conference room ACF A/B

Next meeting is November 21, 2017

6-730pm

Free Parking

Food provided by Wegmans


Are you looking for someone to help tutor your child? Boost provides supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. This group of teachers will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. Our tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors. For more information please go to www.boost4kids.com or contact Linda Bolan at 585-317-7269.

Educational Consultant Services from CURE

Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? CURE can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong.  If you would like to speak with Kathy Wissler either in person or via phone, please contact Kiersten Kunick , CURE Parent Advocate, at 585-697-4470, or call the CURE office at 585-473-0180 and she will make a referral. This service is provided free for CURE families.

Outpatient/On treatment Support Group:

Kiersten Kunick will host an Outpatient/On treatment Support Group for parents at the CURE office once per month.

This meeting will be held from 12pm – 1pm on the 2nd Wednesday of every month.

Join us and connect with other outpatient caregivers!

Feel free to reach out to Kiersten kiersten.kunick@curekidscancer.com

Long-term Survivor Support Group:

Adella Ivison will host a Long-term Survivorship Support Group for caregivers at the CURE office once per month.

This meeting will be held from 6:30pm – 8pm on the 4th Wednesday of every month.

Join us and connect with others about late effects and more.

Feel free to contact Adella at adella.ivison@curekidscancer.com

Facebook Live:

Kiersten Kunick and Adella Ivison, Parent Advocates, go live on Facebook every other Wednesday at 12pm.

They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.

Have a topic you’d like to hear about? Feel free to reach out to Kiersten kiersten.kunick@curekidscancder.com or Adella adella.ivison@curekidscancer.com and share!

Brian Bisgrove Home of Courage:

The Brian Bisgrove Home of Courage , located an hour away from Rochester) is a retreat and respite home for families with children who have life-altering conditions.   Children and their families are invited into the beautiful , handsomely-appointed log cabin for a 3 or 4 day stay of rest and repose, all comepletely free of charge.  At the Home medically fragile childere can experience a different kind of healing, one of the mind and spirit.  Its a place to let go of anxiety and stress and focus on the family.

The website (with more detailed information on the Home and the application) is www.homeofcourage.com.