CURE Childhood Cancer Association

November Newsletter

CURE main logo pic

A special note from CURE

It’s hard to believe that the holidays are right around the corner!  And that means it will be a busy time for us here at the CURE office as we prepare to make the holiday season a bright one for all our families!  Did you know that in the month of December we host a “Tacky Sweater” Holiday Party Fundraiser, a Holiday Party for our CURE families, and give out over 150 gifts to our CURE kids and their families?  And of course, none of this would be possible without the incredible generosity and support of our volunteers, and the wonderful businesses and residents of our city.  We sincerely thank you for all you do to help make a difference in the lives of so many families!

This holiday season, there are many ways to keep CURE and our families at the top of your list.  From shopping at retailers donating a percentage of sales back to CURE (Peachskin Sheets, Alex & Ani, Amazon Smile, Awareness Coffee, Causewash…find more details below), to sponsoring a family or donating new toys and gifts, to volunteering for one of our many projects, help us bring the joy of the holiday season to our CURE Kids and families.

And, while it is easy to get caught up in the hustle and bustle of the season, we hope that you find plenty of time to relax and celebrate with family and friends, because the holidays are all about giving thanks, and spending time with those you love.

Happy Thanksgiving from all your friends at CURE!   

Spotlight On….

Sawyer is 5 years old. He loves being in kindergarten, playing with lego, and dinosaurs. He is a wonderful big brother to his new baby sister. Sawyer loves to go our for coffee and croissants, and being chased by T-Rex.  

Also, he just completed his treatment as of October 29th!  We are so excited for him here at CURE!!

Our Most Sincere Condolences

Hunter Dunlap

Lilly Connelly

Meilla Conte

It’s the Holiday Season…

Help a CURE Family in need this December

Are you interested in sponsoring a CURE family this December holiday season?

Your help could brighten the holidays for a family of a sick child this season.

All donations need to be to the CURE office by November 30th.

For more information, please contact Adella Ivison at 585-473-0180 or Adella.ivison@curekidscancer.com

Holiday Gift Wrappers Needed!! 

We are in need of volunteers to help us with our Christmas Gift Wrapping this year.  The dates will be December 10th, 11th, and 12th.  Please let us know if you are interested and which of the dates work best for you.  Feel free to bring a friend!

Please contact Adella Ivison at 437-0180 or Adella.ivison@curekidscancer.com for more information or to sign up.

Holiday Gifts Needed

We are accepting donations of new toys for all ages for the Holidays! Please drop off donations to the CURE office by November 30th.

Shop for Holiday Gifts while Supporting CURE

Be sure to check out some of the amazing businesses that have partnered with us this season and will be donating a portion of sales to help support CURE!  Full details on the businesses, dates, and items to purchase can be found under our Upcoming Fundraisers section.  Don’t miss out!

Please contact Bridget Sadler at 585-473-0180 or bridget.sadler@curekidscancer.com with questions.

Free CURE Programming and Events

CURE’s Holiday Party

Save the Date:  Tuesday, December 11th 

CURE’s annual Holiday Party hosted by BENTE will be held on

Tuesday, December 11th, 2018 from 5:00 pm to 8:00 pm at the School of the Arts.

RESERVATIONS ARE REQUIRED!

Be sure to give name with correct spelling, age and gender of each child under the age of 16 who will attend.

Immediate family members are welcome!

But please… no extended family, friends or neighbors.

Please RSVP no later than Friday, November 30th, 2018.

Call 585-473-0180 or email Adella.ivison@curekidscancer.com

Or you can register online at:  http://cureholidayparty2018.eventbrite.com

Thanks to BENTE local 2419 (Board of Education Non-Teaching Employees), a Rochester City School District Union, for hosting this event for CURE.

Thank You for Your Support!

Thank you to the nurses and staff at 7N who organized a basket raffle and donated the proceeds to CURE for Childhood Cancer Awareness Month!

Thank you to our friends at Paychex who hosted a happy hour at Bar Louie, and donated the money raised to CURE!

Thank you to all our Board members for their help in making our 10th Annual Recipe for a Brunch such a success!

Thank you to VerHulst Haunted Hayrides for hosting our October Parents Night Out!

Thank you to our friends at School of the Arts!  They made and sold gold ribbons during the month of September, and donated the money raised to CURE!

We cannot thank all our amazing sponsors and vendors enough for helping to make this year’s 10th Annual Recipe for a CURE Brunch such a success!  We are so humbled and appreciative of your support and generosity.

  Thank you to:

Ahrens Benefits Company

Alesco Advisors

Alpco Recycling

American Culinary Federation of Rochester

A.P. Enterprises Property Services

Brighton Securities

Canandaigua National Bank & Trust

Constellation Brands

The Cornerstone Group of Wells Fargo Advisors

Courier Capital, LLC

Crossfield Heating & Air Conditioning

DeJoy, Knauf & Blood LLP

Digital HD Advertising

Excel Securities & Associates Inc.

Golisano Children’s Hospital

Mengel Metzger Barr

Messenger Post Media

Profetta Overhead Garage Doors

Rochester Driveways

Rochester Riverside Hotel

Rohrbach Brewing Company

R.P. Damico & Associates, Inc.

Shelly’s Sweet Shoppe

Sirness Services

Spezio Property Services

SpinRite Inc.

Taouk Development

Tones Entertainment

Tops Friendly Markets

Wilmorite

Yokohama

Upcoming Fundraisers

Mark Your Calendars!

Join us for some holiday shopping Monday, December 3rd from 5pm-7pm at the Culver Armory Alex and Ani!  Snacks and beverages will be available, and 15% of all sales will be donated back to CURE (some exclusions apply)!

Please RSVP to bridget.sadler@curekidscancer.com.

CURE’s Tacky Sweater Party!

Thursday, December 6th 7pm-10pm at Nosh

Come dressed in your tackiest puffy paint, pom pom, sequined glory, and we’ll show you specialty cocktails and delicious food. A portion of your drink and food proceeds will be donated to CURE Childhood Cancer Association. You’ll also be entered to win the TACKIEST SWEATER contest!

No Entry Fee
Just Eat, Drink and Donate!

Extended for 1 Week Only!


Please support the Cure Childhood Cancer Association SHEETS FUNDRAISER and get 1500 Thread Count Soft PeachSkinSheets for $54.95 (instead of $79.95) in Any Color and Any Regular Size. You’ll save $25 per set PLUS another $20 per sheet set sold will go to support our CURE Childhood Cancer Association. Visit www.PeachSkinSheets.com and use our discount promo code CURE on all $79.95 sets purchased between  October 14th, 2018 – October 28th, 2018 to redeem your special price.

Online orders are shipped out within a few days, so there is no need to wait for your sheets until the drive ends. Please note that fundraiser pricing cannot be combined with other promo codes, discounts, or specials including Colors of the Month pricing. Thanks for your support, and please share!


Thursday, November 22nd (Thanksgiving morning!) 9 AM

The Race with Grace 10K is a USA Track & Field certified road race (NY12131KL) that was established in 1991. Held on Thanksgiving morning at 9:00 AM, the race begins in front of First Bible Baptist Church on Manitou Road. Following a flat, fast course that encompasses Latta, Manitou, North Greece and Frisbee Hill Roads, the route finishes in the north parking lot of the church, adjacent to the main auditorium.

There is an $22 pre-entry fee by November 19th, 2018, $26 November 20th & 21st, and $30 on Race Day. Fees include a 1/4 zip long sleeve pullover tech shirt for the first 200 registrants and a long sleeve cotton tee for registrants 201-1000. Sizes guaranteed if registered prior to November 1st. All entry fees are non-refundable. Register online at www.RWG10k.com until November 19th at 9 PM

Proceeds from the race are generously donated to CURE Childhood Cancer Association.

Visit www.ROCtheDay.org and designate CURE Childhood Cancer as your charity of choice on Tuesday, November 27th

Don’t forget to designate – CURE’s number is 1028!

ROC the Day updates will be posted on Facebook and Twitter via #ROCtheDay. To learn more about ROC the Day, view a live event countdown and see a list of sponsors and community partners, visit www.ROCtheDay.org.

Let’s ROC!

The Penny Drive Fundraiser starts in September and runs until June. CURE brings gallon milk jugs into Rochester schools and students fill them with spare change. The drive usually lasts 1 week and CURE picks up the jugs and calculates the total amount raised. We cannot thank Upstate enough for their generosity. Annually, the penny drive raises around $4,000!

Are you interested in hosting a Penny Drive at your school?

E-mail staff@curekidscancer.com

Our friends at Awareness Coffee are helping to spread awareness about Pediatric Cancer with their coffee made from a specialty bean out of Peru, and roasted to perfection with subtle floral and chocolate notes.

A portion of proceeds will be donated to CURE, Golisano Children’s Hospital and Camp Good Days – your choice at checkout!

Buy the coffee here!

We are excited to announce that we have partnered with Rite Aid and are now an official KidCents charity! KidCents is a program created by The Rite Aid Foundation that allows Rite Aid customers to round up their purchases to the nearest dollar and donate their change to help support kid-focused charities.

Here’s how you can enroll in the KidCents program and round-up to our charity:

Step 1: Enroll in wellness+ with Plenti (Skip to Step 2 if you are already a wellness+ with Plenti member)

  • Click the box on the right to ‘Enroll in wellness+ with Plenti
  • Complete registration process for wellness+ with Plenti
  • Click through to finish signing up in Plenti
  • When finished with both processes, you will be directed to RiteAid.com

Step 2: Enroll in the KidCents Round-Up Program

  • You should see your account logged in on the left. If not, sign in with the account information.
  • Click ‘Start rounding up today!’ dial on the left

Step 3: Designate Your Charity

  • Click ‘Select a Charity’ on the left
  • Type [INSERT CHARITY NAME HERE] and click ‘Select This Charity’

By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!

We Want To Hear From You!

We are in need of volunteers to help us with our Christmas Gift Wrapping this year.  The dates will be December 10th, 11th, and 12th.  Please let us know if you are interested and which of the dates work best for you.  Feel free to bring a friend!

 

The Holiday Party is in need of volunteers also.  The party will be held on December 11th from 5pm to 8pm at the School of the Arts in Rochester, NY. 

 

Please contact Adella Ivison at 437-0180 or Adella.ivison@curekidscancer.com for more information or to sign up.

Join Our Team!

We are currently looking for interns for Spring ’19!!

If you are interested, please email Adella.Ivison@curekidscancer.com

Has CURE helped you? We would love to hear stories about how CURE has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com.

What programming would you like to see at CURE? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to Adella.Ivison@curekidscancer.com



Wish List Items Needed:

We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support.  If you or a community group you belong to is looking for something to do for a charity, please consider donating items from CURE’s wish list so that we can continue to provide for our families.

Items Needed:

  • A cure for childhood cancer, blood diseases and brain tumors!
  • Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
  • Weighted blankets
  • Essential oils
  • Mini diffusers
  • Small pocket/purse-sized calendars
  • Paper towels and toilet paper
  • Items for teens or young adults
  • Toys for kids under 3 years old

We ask that all items be new and recently purchased.  Thank you!


Bereaved Families Corner

Support

Bereavement Group:

illustration of the forget-me-not flowers over white background

The first Wednesday of each month

Hosted by Kiersten Kunick and Adella Ivison

200 Westfall Road, Rochester 14620

From 7:00pm-8:30pm

No reservations required


ROC City Sicklers:

ROC City Sicklers Logo

The third Tuesday of each month

UR Medicine

Conference room ACF A/B

6:00pm-7:30pm

Free Parking

Food provided by Wegmans


Are you looking for someone to help tutor your child? Boost provides supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. This group of teachers will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. Our tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors. For more information please go to www.boost4kids.com or contact Linda Bolan at 585-317-7269.

Educational Consultant Services from CURE

Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? CURE can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong.  If you would like to speak with Kathy Wissler either in person or via phone, please contact Kiersten Kunick , CURE Parent Advocate, at 585-697-4470, or call the CURE office at 585-473-0180 and she will make a referral. This service is provided free for CURE families.

Outpatient/On treatment Support Group:

Kiersten Kunick will host an Outpatient/On treatment Support Group for parents at the CURE office once per month.

This meeting will be held from 12pm – 1pm on the 2nd Wednesday of every month.

Join us and connect with other outpatient caregivers!

Feel free to reach out to Kiersten kiersten.kunick@curekidscancer.com

Long-term Survivor Support Group:

Adella Ivison will host a Long-term Survivorship Support Group for caregivers at the CURE office once per month.

This meeting will be held from 6:30pm – 8:00pm on the 4th Wednesday of every month.

Join us and connect with others about late effects and more.

Feel free to contact Adella at adella.ivison@curekidscancer.com

Facebook Live:

Kiersten Kunick and Adella Ivison, Parent Advocates, go live on Facebook.

They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.

Have a topic you’d like to hear about? Feel free to reach out to Kiersten kiersten.kunick@curekidscancder.com or Adella adella.ivison@curekidscancer.com and share!

Brian Bisgrove Home of Courage:

The Brian Bisgrove Home of Courage , located an hour away from Rochester) is a retreat and respite home for families with children who have life-altering conditions.   Children and their families are invited into the beautiful , handsomely-appointed log cabin for a 3 or 4 day stay of rest and repose, all comepletely free of charge.  At the Home medically fragile childere can experience a different kind of healing, one of the mind and spirit.  Its a place to let go of anxiety and stress and focus on the family.

The website (with more detailed information on the Home and the application) is www.homeofcourage.com.