May 2022 Newsletter
C.U.R.E. is here.
From the day of diagnosis, throughout treatment and beyond:
The support doesn’t stop when the treatment stops.
And we are so thankful for our friends who make our support possible.
Spotlight on: Evah
Meet our friend, Evah.
Evah Elizabeth Daniels was only 22 months old at the time of diagnosis with B cell A.L.L. on December 2, 2021. She stopped walking early November 2021 and was sent to Orthopedics. She wore a cast on her left leg as it was believed she had a toddler fracture that wasn't showing on the x-ray. She is currently doing well on treatment and is finishing the IM1 phase and will be entering the DI phase soon, which is one of the most challenging with multiple chemos and steroids that will be given. She is the baby of our family of 3 girls ages 7, 5 and Evah who is now 2.
Thank you, Laurie!
We have enjoyed having Laurie on Staff here at C.U.R.E. for the past year. She’s been wonderful about being flexible with planning due to COVID and being a team player throughout her tenure. Please join us in saying Thanks and wishing her luck in her next endeavor!
Congratulations, Michelle!
Wishing our Parent Advocate, Michelle, a very Happy 3 Year Anniversary this month with C.U.R.E.!
You make a profound impact in the lives of our Families and we are so glad you’re here!
Thank you, Carrighan!
Congratulations to our Spring Intern, Carrighan, on finishing her internship with us here at C.U.R.E.! You may have seen her around at events or in the office, but she provided a LOT of behind-the-scenes help! The Penny Drive she spear-headed raised over $4,000, many of our Families enjoyed February Break and Spring Break activity bundles that she assembled and you likely saw her at the Easter Egg Hunt or Knighthawks Game!
Thank you, Carrighan, for your help this semester. Wishing you luck in all that you do!
It’s a date!
In-Person events are back!
Congratulations,
Brandon
Our Friend Brandon, joined by his twin sister, brother, sister and mom celebrated his end of chemo in our office. He rang the End of Chemo Bell with pleasure! His handprint had been added to our “Handprints of Hope” wall!
Congratulations, to Brandon and his family!
Catching Dreams
Catching Dreams Charters, Inc. hosts private fishing charters near Buffalo on Lake Erie or the Niagara River for pediatric oncology or hematology children.
We have connected with Ned, the Founder of this organization, and would love to connect our C.U.R.E. Kids to Ned and schedule some fishing charters! Charters are scheduled for during the week from mid-May through Labor Day and leave from the Buffalo Harbor or near the Niagara River.
Please reach out to Laurie Streb if you are interested in a private fishing charter.
We are once again offering FREE family portraits by That's Darling Photos to our C.U.R.E. families. Check your email for sign up information or call our office at 473-0180.
Don’t miss the second episode of Bringing Sickle Cell Disease to Life podcast and learn how hydroxyurea has transformed the lives of children living with sickle cell disease.
Host Dr. Wally R. Smith, MD, Florence Neal Cooper Smith Professor of Sickle Cell Disease at Virginia Commonwealth University, interviews Drs. James Eckman and Russell Ware on the importance of newborn screening and managing the transition from pediatric to adulthood care
Donate Blood or Platelets!
Many of our children depend on blood transfusions and blood products in the course of their treatment. Our children are in need of blood products and you can help! Please consider donating blood if you are well enough to.
YOU can help C.U.R.E. for FREE
1) Follow us on social media:
Facebook: facebook.com/curekidscancerrochester
Instagram: @curekidscancer
Twitter: @curekidscancer_
(2) Write a review about C.U.R.E. on our Facebook Page or on Google.
(3) Write a blog that can be shared on our website.
(4) Contact our Parent Advocate Michelle about doing a Facebook Live or Instagram Takeover.
(5) “Like”, Share or Comment on our social media posts.
Conquer Cancer in Kids:
make childhood cancer research a priority:
UPDATE: THE PETITION IS JUST SHY OF BEING ONE OF THE MOST SIGNED PETITIONS ON CHANGE.ORG. THE GOAL IS 15,000 SIGNATURES AND AS OF 2/24/2022, THERE ARE 14,658 SIGNATURES!
We invite our families and supporters to join CNN’s Rene Marsh as she advocates to make childhood cancer research a priority! Sadly, Rene lost her two year old son, Blake, to brain cancer in April 2021. She is now working with CNN and childhood cancer awareness advocates to make a difference!
To review and sign the petition, click the button below.
More petitions to sign to show your support for increasing research efforts towards childhood cancer:
GRYT Health connects patients and caregivers to others with shared experience and to information relevant to their journey.
Through the GRYT app, we’ve created a platform for people affected by cancer to connect to others with similar experiences, and to tailored information that helps our users become more aware of options specific to their needs or diagnosis – empowering them to make choices that are right for them.
Our community of patients, survivors, medical professionals, researchers and advocates across all 50 states in the U.S. and in more than 100 countries worldwide have participated in almost 1,000,000 interactions to date, inspiring people to live according to their own standards.
Trust from our community is paramount to our success and something we take very seriously. We never share any of our users’ information without their explicit permission. Unlike other apps, GRYT is the first social community that is funded, built, and run by patients and caregivers where users communicate anonymously in real-time and each person is 100% in charge of what happens with their data.
Thank you, 5k and Fun Walk Supporters!
Our 13th Annual 5k and Fun Walk presented by Cornerstone Wealth Management was fantastic! We had over 350 participants registered for the event and 22 Teams. A special thank you to our team of volunteers who came out to keep our participants safe and distributed refreshments, to the Irondequoit Police Department for helping keep the route clear and our friends at I-Square for hosting. We are so thrilled to have hosted this event live and in-person again. You all sure did show us some love and we are very grateful!
”Every Adventure Begins with a First Step.”
Thank you, Riley Joy & Bare Element
Our friends at Riley Joy Candle Co. and Bare Element shined a light on Childhood Cancer this past September. Through the sale of the Pediatric Cancer Awareness Candles, nearly $1,000 was raised for our organization! Thank you for raising awareness and funds for our Families!
Events are back!
And we need YOUR help!
Many hands are needed to make this event a success and lots of fun for our families! Use the button below to choose where you can use your talents!
If you enjoy working in the garden, please consider spending a couple of hours this spring or summer in our Julie Roberts Children’s Memorial Garden. When you “adopt” our garden for a week, you will weed, prune and make sure the garden looks great to honor our little angels.
Questions? Please call Laurie at 473-0180
September is Awareness Month
We are hoping to make Awareness Month even BIGGER this year and could use some help! With fun things like
- Flocking Yards with Golden Flamingos
- Liquid Gold Mac & Cheese Challenge
- Proclamations from local towns and the City
- Partners donating a portion of proceeds to C.U.R.E.
- (Insert YOUR creative idea here!)
We have a LOT going on.
Want to help?
Email Holly!
Recipe for a C.U.R.E. Sunday Brunch
We are looking for volunteer committee members to transport us to WONDERLAND! Want to be a part of making our Brunch special? We are in need of:
- Live Auction Volunteers
- Silent Auction Volunteers
- Decorating Volunteers
- Promotion Volunteers
Any of that sound good to you? Great! Email Holly!
Join our Board of Directors!
We have some Board positions opening in the very near future! Interested in applying?
The Board meets monthly for 1.5 - 2 hours (Currently the third Wednesday evening of the month)
Board members must attend two of the three main fundraisers (5k & Fun Walk, Golf Tournament, Brunch)
Board members are on at least one sub-committee
Board members make a monetary donation for the Board sponsored Live Auction package for the Brunch
Applications can be emailed to:
cureboardapplications@gmail.com
Join C.U.R.E.’s YPC!
We are re-energizing our YPC (Young Professional Committee)! If you are a Young Professional looking for an opportunity to get involved with C.U.R.E., meet some awesome volunteers and help our families, we would LOVE to have you!
Please reach out to Board Member, Brian Wainwright, to start connecting!
Click me to email!
We want to connect!
If you served on the Board of Directors for C.U.R.E. Childhood Cancer Association, we would love to stay connected! Please email Holly Dutcher to connect!
holly.dutcher@curekidscancer.com
Registration is Open!
Registration opens May 1st for our 7th Annual Patrick Carr Memorial Golf Tournament presented by ASP Industries and Brighton Securities.
Deerfield Country Club
$150 per Golfer | $600 per Foursome
Includes:
- 18 holes of golf with cart
- Games on the course
- Drinks on the course
- Lunch on the course
- Banquet dinner after golf
Every Penny Matters.
Do you want to join forces with C.U.R.E. and participate in our Annual Penny Drive? We make it easy! We can decorate and deliver jugs for your to facilitate your collections. We will also pick up your donations. No change rolling or counting required! Contact our office if your school or business would like to participate!
It makes cents.
Mother’s Day is coming!
Treat your mother or mother in your life to a beautiful bracelet AND support local families. We have three styles available:
(1) Black cord with gold ends ($25)
(2) Silver and gold beaded ($35)
(3) Braided black cord with black ends ($25)
Each bracelet has a gold charm with our logo imprinted on it.
C.U.R.E. Partners:
New Partner Alert:
CR Bottle Return is our newest partner! Bring your bottles to CR Bottle Return at 2750 Dewey Ave and tell them it’s for account 4052100 (C.U.R.E.) and your deposit will be donated to us! We will be given six cents for every bottle donated!
We are so thankful for this partnership! Check them out!
Glimpse of Gold's purpose is to encourage people to take the next step, even if childhood cancer is not directly affecting you or your family. Glimpse of Gold hopes to educate others on different ways to help, while encouraging people to think about the topic a little longer than they normally would.
Glimpse of Gold is so excited to be collaborating with C.U.R.E for the next few months! This collaboration involves providing monetary donations directly to C.U.R.E. At the minimum of a $20 donation to C.U.R.E., an embroidered beanie with the slogan “Only Sunshine Ahead” will be given to a child currently going through treatment at Golisano Children's Hospital (For example, if you donate $40 two beanies will be sent to two different children in bright and beautiful packaging to bring some light to their dark times). In return, the first 100 people that donate will receive a silicone wristband with the same slogan as the children’s beanies, stickers, and a thank you note! Please note that all shipping will be coming directly from Sydney Lewandowski and not C.U.R.E.
If you have any questions please contact Sydney Lewandowski. You can reach her on both Instagram and Facebook @glimpseofgold.roc or email her at glimpseofgold.roc@gmail.com
You can now return your cans and bottles to Alpco Recycling and Bottle & Can Retrieval Centers! Let them know you’d like to support “C.U.R.E. Childhood Cancer Association” and a donation will be made to us!
Alpco Recycling is located at:
846 Macedon Center Road, Macedon, NY 14502
Bottle & Can Retrieval Centers located at:
509 Spencerport Rd, Rochester
2199 East Henrietta Rd, Rochester
2374 Chili Ave, Rochester
More ways to help:
Become a C.U.R.E. Ambassador!
The Support Doesn’t Stop When Treatment Stops…
Because of YOU and your kindness.
Support our mission year-round by becoming a C.U.R.E. Ambassador! A C.U.R.E. Ambassador is a donor who commits to our mission through a monthly donation of his/her choosing. Whatever level you are comfortable with makes a difference!
Click here to learn more.
C.U.R.E. has joined the PayPal Giving Fund. Please consider adding us to your account to Shop, Donate and Raise Awareness for our families.
PayPal Giving Fund expands our fundraising reach through direct integration with PayPal, eBay and GoFundMe.
Want to help make a difference while you shop in the Amazon app, at no extra cost to you?
Simply follow the instructions below to select "C.U.R.E. Childhood Cancer Association" as your charity and activate AmazonSmile in the app. They'll donate a portion of your eligible mobile app purchases to us.
How it works:
1. Open the Amazon app on your phone
2. Select the main menu (=) & tap on "AmazonSmile" within Programs & Features
3. Select "C.U.R.E. Childhood Cancer Association" as your charity
4. Follow the on-screen instructions to activate AmazonSmile in the mobile app
Bereavement Group
Bereavement Group occurs on the first Wednesday of every month.
This month at 6:00 p.m., we will have a memorial brick laying event with the group meeting afterwards at
7:00 p.m. at our office, 200 Westfall Road, Rochester NY 14620. Please email michelle.magin@curekidscancer.com for more information.
We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support. If you or a community group you belong to is looking for something to do for a charity, please consider donating items from C.U.R.E.’s wish list so that we can continue to provide for our families:
A cure for childhood cancer, blood diseases and brain tumors!
- Buffalo Bills items (hats, gloves, socks, etc.) for teen gifts
- Colored pencils/art pencils
- Universal phone chargers with long cords
- Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
- Gift cards for GrubHub, McDonalds, Wendy’s, Burger King, Moe’s, Chipotle, Dunkin Donuts and Starbucks
- Crafts for young adults and children
- Items for teens or young adults
-Toys (Please look at our Amazon Wish Lists:
Under $20: https://a.co/hlW4hCO
$20 - 50: https://a.co/eHiQcV2
$50+: https://a.co/bVDujCy)
We ask that all items be new and recently purchased. Thank you!
Get your C.U.R.E. Gear
Rock C.U.R.E. Elite Sport Socks!
These super comfortable and supportive sport socks are HERE! What a great way to show support for C.U.R.E. and small businesses, they are made in the USA! Rock them while you are working from home or out exercising. Sandal season is over, rock these cozy socks today!