March 2022 Newsletter
C.U.R.E. is here.
From the day of diagnosis, throughout treatment and beyond:
The support doesn’t stop when the treatment stops.
And we are so thankful for our friends who make our support possible.
Spotlight on: Charlotte
Sweet Charlotte loves music and the sound of Robin Williams’ voice.
She loves to look at everything, especially anything lit up!
Charlotte loves to play and smile at everyone she meets!
While at the hospital, Charlotte likes watching movies: Aladdin is her favorite, but she loves the bright colors in Trolls.
She was diagnosed at 2 and a half weeks when she developed blueberry muffin rash on September 13th 2021. She has since beat the odds and is doing so much better. Although she has such a long road ahead, if she can smile so can we.
It’s a date!
In-Person events are back!
Congratulations to our Friends
Both Bailey and Danielle rang the End of Chemo Bell at our office in February, signifying their end of treatment! We are so excited for our friends and wish them all the best!
We were featured on a website recently! Check out “Kindness Champions” and be sure to follow them! They post Fri-Yay stories weekly and highlight the work being done around our community (and beyond!). The page also includes a blog with helpful information.
Catching Dreams
Catching Dreams Charters, Inc. hosts private fishing charters near Buffalo on Lake Erie or the Niagara River for pediatric oncology or hematology children.
We have connected with Ned, the Founder of this organization, and would love to connect our C.U.R.E. Kids to Ned and schedule some fishing charters! Charters are scheduled for during the week from mid-May through Labor Day and leave from the Buffalo Harbor or near the Niagara River.
Please reach out to Laurie Streb if you are interested in a private fishing charter.
Donate Blood or Platelets!
Many of our children depend on blood transfusions and blood products in the course of their treatment. Our children are in need of blood products and you can help! Please consider donating blood if you are well enough to.
YOU can help C.U.R.E. for FREE
1) Follow us on social media:
Facebook: facebook.com/curekidscancerrochester
Instagram: @curekidscancer
Twitter: @curekidscancer_
(2) Write a review about C.U.R.E. on our Facebook Page or on Google.
(3) Write a blog that can be shared on our website.
(4) Contact our Parent Advocate Michelle about doing a Facebook Live or Instagram Takeover.
(5) “Like”, Share or Comment on our social media posts.
Conquer Cancer in Kids:
make childhood cancer research a priority:
UPDATE: THE PETITION IS JUST SHY OF BEING ONE OF THE MOST SIGNED PETITIONS ON CHANGE.ORG. THE GOAL IS 15,000 SIGNATURES AND AS OF 2/24/2022, THERE ARE 14,658 SIGNATURES!
We invite our families and supporters to join CNN’s Rene Marsh as she advocates to make childhood cancer research a priority! Sadly, Rene lost her two year old son, Blake, to brain cancer in April 2021. She is now working with CNN and childhood cancer awareness advocates to make a difference!
To review and sign the petition, click the button below.
GRYT Health connects patients and caregivers to others with shared experience and to information relevant to their journey.
Through the GRYT app, we’ve created a platform for people affected by cancer to connect to others with similar experiences, and to tailored information that helps our users become more aware of options specific to their needs or diagnosis – empowering them to make choices that are right for them.
Our community of patients, survivors, medical professionals, researchers and advocates across all 50 states in the U.S. and in more than 100 countries worldwide have participated in almost 1,000,000 interactions to date, inspiring people to live according to their own standards.
Trust from our community is paramount to our success and something we take very seriously. We never share any of our users’ information without their explicit permission. Unlike other apps, GRYT is the first social community that is funded, built, and run by patients and caregivers where users communicate anonymously in real-time and each person is 100% in charge of what happens with their data.
Thank you, Deb!
Deb Zalar was so kind to donate the materials needed for our Bereaved Families to make these beautiful ornaments at the December Bereavement meeting. Those who attended brought a photo of their angel and added it to the bulb along with special adornments. Thank you for always thinking of our families, Deb!
Thank you, Nightmare Manor.
Our friends at Nightmare Manor collected donations for C.U.R.E. during their attraction in October. They also donated passes for our families to enjoy some spooky fun! Nearly $900 was donated in memory of Landon Coia. Thank you for honoring Landon’s memory and thinking of our families.
Thank you, Rush Henrietta Girls Basketball & the Natural Helpers Club
A huge thank you to our friends at Rush Henrietta! Their Girls Basketball Team and Natural Helpers Club partnered together for the Have a Heart Half Time Raffle! They raised over $500 for our Families!
You filled our buckets, Fyle Elementary!
In an effort to fill our buckets (and our hearts), the Community at Fyle Elementary went above and beyond! Our Friends collected change and paper money to the tune of over $2,000! We are so touched by these little, kind hearts! Thank you for filling our bucket so we can fill our Families’ buckets!
INCREDIBLE!
The Model UN Club at Hilton High School is just that: incredible! They raised over $6,500 in their “Jar Wars” and designated those funds to help our C.U.R.E. Families. We are overwhelmed by your kindness and beyond impressed with your fundraising abilities! What a tremendous impact these students have made. Thank you. Thank you. Thank you.
THE Race With Grace 10K…
To the dedicated, selfless individuals who lovingly planned and executed this wonderful event for 30 years:
We appreciate you.
We appreciate the time you took to coordinate every detail of this event, always keeping in mind the experience of the participants and ensuring their happiness.
We appreciate your leadership in our community, establishing a Thanksgiving race to benefit charity.
We appreciate your kindness in wanting the funds raised to make a difference to local charities.
We appreciate your sacrifice, eating Thanksgiving dinner with your family late - as your entire morning (and evening before) were consumed with RWG activities.
Thank you for this gift of 11 years of support to C.U.R.E. Families. It has been an honor and a privilege to get to know you, work alongside you and learn from you.
Events are back!
And we need YOUR help!
Stay tuned for specific sign ups, but these are on the horizon.
March 25th: Trivia Night at The Italian American Community Center
Need 6 - 8 volunteers to serve food from the buffet, distribute and collect answer sheets, sell 50/50 raffle tickets, set up and clean up (4:30 PM - 9:30ish PM)
March 26th: Knighthawks Game
Need volunteers to sit at information table & sell C.U.R.E. merchandise
April 16th: A.P. Enterprises Property Services Easter Egg Hunt
April 30th: 13th Annual 5k and Fun Walk presented by Cornerstone Wealth Management
Need volunteers in many capacities!
If you enjoy working in the garden, please consider spending an couple of hours this spring or summer in our Julie Roberts Children’s Memorial Garden. When you “adopt” our garden for a week, you will weed, prune and make sure the garden looks great to honor our little angels.
Questions? Please call Laurie at 473-0180
The St. Patrick's Day Parade Committee has been busy planning for a live in-person parade down East & Main Street on Saturday March 12, 2022.
They would love to have C.U.R.E. volunteers join in. The parade needs happy-spirited people to walk the parade route, one time, while carrying one of our sponsor banners. It is a lot of fun to wave to the crowd while walking the parade!
If you would like more information about volunteering or wish to sign up please either email rochesterst.patrickparade@gmail.com or call (Katy) at 585-301-0480.
Please wear your C.U.R.E. volunteer t-shirt or call Laurie at 473-0180 if you need one.
Join our Board of Directors!
We have some Board positions opening in the very near future! Interested in applying?
The Board meets monthly for 1.5 - 2 hours (Currently the third Wednesday evening of the month)
Board members must attend two of the three main fundraisers (5k & Fun Walk, Golf Tournament, Brunch)
Board members are on at least one sub-committee
Board members make a monetary donation for the Board sponsored Live Auction package for the Brunch
Applications can be emailed to:
cureboardapplications@gmail.com
Join C.U.R.E.’s YPC!
We are re-energizing our YPC (Young Professional Committee)! If you are a Young Professional looking for an opportunity to get involved with C.U.R.E., meet some awesome volunteers and help our families, we would LOVE to have you!
Please reach out to Board Member, Brian Wainwright, to start connecting!
Click me to email!
We want to connect!
If you served on the Board of Directors for C.U.R.E. Childhood Cancer Association, we would love to stay connected! Please email Holly Dutcher to connect!
holly.dutcher@curekidscancer.com
Registration is OPEN!
Calling all Friends of C.U.R.E.: Registration is officially OPEN for our 13th Annual 5k and Fun Walk Presented by Cornerstone Wealth Management!
We can’t WAIT to see you!
Form your team!
Register today!
Every Penny Matters.
Do you want to join forces with C.U.R.E. and participate in our Annual Penny Drive? We make it easy! We can decorate and deliver jugs for your to facilitate your collections. We will also pick up your donations. No change rolling or counting required! Contact our office if your school or business would like to participate!
It makes cents.
New Merch Alert!
We are continuing our partnership with our friends at Embrace the Difference in a new and different way: custom C.U.R.E. bracelets! We have three styles available:
(1) Black cord with gold ends ($25)
(2) Silver and gold beaded ($35)
(3) Braided black cord with black ends ($25)
Each bracelet has a gold charm with our logo imprinted on it.
C.U.R.E. Partners:
You can now return your cans and bottles to Alpco Recycling and Bottle & Can Retrieval Centers! Let them know you’d like to support “C.U.R.E. Childhood Cancer Association” and a donation will be made to us!
Alpco Recycling is located at:
846 Macedon Center Road, Macedon, NY 14502
Bottle & Can Retrieval Centers located at:
509 Spencerport Rd, Rochester
2199 East Henrietta Rd, Rochester
2374 Chili Ave, Rochester
More ways to help
Become a C.U.R.E. Ambassador!
The Support Doesn’t Stop When Treatment Stops…
Because of YOU and your kindness.
Support our mission year-round by becoming a C.U.R.E. Ambassador! A C.U.R.E. Ambassador is a donor who commits to our mission through a monthly donation of his/her choosing. Whatever level you are comfortable with makes a difference!
Click here to learn more.
C.U.R.E. has joined the PayPal Giving Fund. Please consider adding us to your account to Shop, Donate and Raise Awareness for our families.
PayPal Giving Fund expands our fundraising reach through direct integration with PayPal, eBay and GoFundMe.
Want to help make a difference while you shop in the Amazon app, at no extra cost to you?
Simply follow the instructions below to select "C.U.R.E. Childhood Cancer Association" as your charity and activate AmazonSmile in the app. They'll donate a portion of your eligible mobile app purchases to us.
How it works:
1. Open the Amazon app on your phone
2. Select the main menu (=) & tap on "AmazonSmile" within Programs & Features
3. Select "C.U.R.E. Childhood Cancer Association" as your charity
4. Follow the on-screen instructions to activate AmazonSmile in the mobile app
C.U.R.E. + Astral Power
We have partnered with Astral Power to give our C.U.R.E. supporters access to renewable energy! The solar energy comes from the solar farm on Washington Street in Ogden. Once you sign up, your utility will automatically credit your utility bill for being a member, saving you a guaranteed 10% of your utility costs per year.
Signing up is easy:
(1) Call Rylea (585) 402-9313 or
(2) go to: https://www.astralpower.com/#signup
”How Did You Hear About Us” Select “Customer Referral” and enter “CURE” in “Referred By”
We are hoping for feedback from our Bereaved Parents Community.
Is there a safe, social activity you would like to participate in?
We would love some feedback and ideas.
Please let us know if there is anything we can do to help.
Please send any messages and feedback to Laurie Streb. Click me to email.
Bereavement Group
Bereavement Group occurs on the first Wednesday of every month. The Group will meet at 7:00 p.m. on Wednesday, March 2, 2022 at Radio Social for an evening of bowling and conversation. Please email michelle.magin@curekidscancer.com for more information.
We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support. If you or a community group you belong to is looking for something to do for a charity, please consider donating items from C.U.R.E.’s wish list so that we can continue to provide for our families:
A cure for childhood cancer, blood diseases and brain tumors!
- Buffalo Bills items (hats, gloves, socks, etc.) for teen gifts
- Colored pencils/art pencils
- Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
- Gift cards for GrubHub, McDonalds, Wendy’s, Burger King, Moe’s, Chipotle, Dunkin Donuts and Starbucks
- Crafts for young adults and children
- Items for teens or young adults
-Toys (Please look at our Amazon Wish Lists:
Under $20: https://a.co/hlW4hCO
$20 - 50: https://a.co/eHiQcV2
$50+: https://a.co/bVDujCy)
We ask that all items be new and recently purchased. Thank you!
Get your C.U.R.E. Gear
Rock C.U.R.E. Elite Sport Socks!
These super comfortable and supportive sport socks are HERE! What a great way to show support for C.U.R.E. and small businesses, they are made in the USA! Rock them while you are working from home or out exercising. Sandal season is over, rock these cozy socks today!
