January 2022 Newsletter
Welcome to the NEW Year!
C.U.R.E. is here.
From the day of diagnosis, throughout treatment and beyond:
The support doesn’t stop when the treatment stops.
And we are so thankful for our friends who make our support possible.
Here we are, nearly two years into the COVID-19 Pandemic, yet two things remain constant: children are still being diagnosed with cancer or blood disorders and C.U.R.E.’s unwavering support. That support isn’t possible, however, without our beloved community. YOUR support enabled us to entertain 63 families at our Survivors Day Drive Thru Celebration, provide magic to 54 families at our Holiday Celebration, support families with over $10,000 in financial support to families and much much more.
We are looking forward to a new year, with hopeful hearts that we will be able to gather together once again. We vow, however, that we will continue to provide meaningful, practical support to local families - even if it means another year full of pivots, reimagining and social distancing.
Wishing our friends a happy, healthy 2022!
Spotlight on: Jack
Jack was recently diagnosed with bilateral Wilms' Tumor 1 month before his 4th birthday. He received weekly chemotherapy treatments at Golisano Children's Hospital to shrink his 8+ tumors as much as possible before heading to Memorial Sloan Kettering Cancer Center in New York City for surgery in January. Jack has handled cancer like a boss! He has not let it slow him down and shows us what true perseverance is like!
Jack enjoys playing Legos with his older brother Carter (7), PJ Masks, Spiderman and his favorite animals are owls and giraffes!
We have two Positions Available:
- Parent Advocate (Monday thru Wednesday, 7 hour shifts): Meets with families daily at Golisano Children’s Hospital in both outpatient clinic and inpatient. The person in this position must be a parent of a long-term childhood cancer survivor. There is a possibility of this position being offered as a full-time position, if the incumbent needed full-time. The additional two days would be in the office helping with administrative tasks.
- Development Coordinator (Full-Time): Planning & executing events, soliciting donations, working with committees & more!
Interested? Email Holly (holly.dutcher@curekidscancer.com)
Donate Blood or Platelets!
Many of our children depend on blood transfusions and blood products in the course of their treatment. Our children are in need of blood products and you can help! Please consider donating blood if you are well enough to.
YOU can help C.U.R.E. for FREE
1) Follow us on social media:
Facebook: facebook.com/curekidscancerrochester
Instagram: @curekidscancer
Twitter: @curekidscancer_
(2) Write a review about C.U.R.E. on our Facebook Page or on Google.
(3) Write a blog that can be shared on our website.
(4) Contact our Parent Advocate Michelle about doing a Facebook Live or Instagram Takeover.
(5) “Like”, Share or Comment on our social media posts.
Conquer Cancer in Kids:
make childhood cancer research a priority:
We invite our families and supporters to join CNN’s Rene Marsh as she advocates to make childhood cancer research a priority! Sadly, Rene lost her two year old son, Blake, to brain cancer in April 2021. She is now working with CNN and childhood cancer awareness advocates to make a difference!
To review and sign the petition, click the button below.
GRYT Health connects patients and caregivers to others with shared experience and to information relevant to their journey.
Through the GRYT app, we’ve created a platform for people affected by cancer to connect to others with similar experiences, and to tailored information that helps our users become more aware of options specific to their needs or diagnosis – empowering them to make choices that are right for them.
Our community of patients, survivors, medical professionals, researchers and advocates across all 50 states in the U.S. and in more than 100 countries worldwide have participated in almost 1,000,000 interactions to date, inspiring people to live according to their own standards.
Trust from our community is paramount to our success and something we take very seriously. We never share any of our users’ information without their explicit permission. Unlike other apps, GRYT is the first social community that is funded, built, and run by patients and caregivers where users communicate anonymously in real-time and each person is 100% in charge of what happens with their data.
Thank you to all our friends who participated in the Holiday Heroes Program this year!
Thank you, Julianne’s Journey to Christmas Joy
Donating gifts for our current C.U.R.E. Kids and Sibs is a beautiful way to remember sweet Julianne. We received a tremendous donation of toys, gift cards and funds from her mother, Shari, and appreciate the kindness!
Thank you, Awareness Coffee
We are grateful for our friends at Awareness Coffee for making a $1,000 donation to C.U.R.E. over the Holidays. They have different coffee blends for various causes and donate a portion of proceeds to the cause. We’re partial to the Pediatric Cancer Blend, but check out all their products!
Thank you, Lynne & Randy and CURE Bears for Hope and Love!
The 2nd Annual Toy Drive for C.U.R.E. Kids and Sibs was an overwhelming success! We received SEVERAL trips’ worth of donations from Lynne & Randy, which help fulfill the holiday wishes of MANY of our C.U.R.E. Kids and Sibs. We are beyond appreciative of their kindness and how they continuously keep our Kiddos in their hearts.
Thank you, Holiday Light Show at Victor Hills and Mark’s Pizzeria!
We are honored to have been included as a beneficiary of proceeds from the Holiday Light Show at Victor Hills Golf Club. Thank you so much to everyone who planned, volunteered, attended and donated!
Thank you, Mason
Mason dropped by our office with a $50 donation in memory of his cousin Landon. Mason had Landon for Secret Santa for his family’s Christmas celebration this year, but Landon passed away in November. To honor him, Mason donated the money that would’ve been spent on a gift to C.U.R.E. (and brought us Timbits - Landon’s favorite!).
We couldn’t do it without you, truthfully.
Between the help preparing for and during the Holiday Celebration and gift wrapping for our C.U.R.E. Kids and Sibs, we absolutely could NOT have gotten it all done without our amazing volunteers. Thank you for your time, your effort and your love. YOU helped to make the holidays brighter for our families. Our hearts are full. Thank you!
Join C.U.R.E.’s YPC!
We are re-energizing our YPC (Young Professional Committee)! If you are a Young Professional looking for an opportunity to get involved with C.U.R.E., meet some awesome volunteers and help our families, we would LOVE to have you!
Please reach out to Board Member, Brian Wainwright, to start connecting!
Click me to email!
We want to connect!
If you served on the Board of Directors for C.U.R.E. Childhood Cancer Association, we would love to stay connected! Please email Holly Dutcher to connect!
holly.dutcher@curekidscancer.com
Shopping for a Cause presents:
Valentine’s Day Sip-n-Shop with Guest Bartenders
Saturday, February 12th
MicGinny’s on the River (2246 East River Road)
11 AM - 3 PM (shopping from 10 - 12 local vendors)
12 PM - 3 PM (Guest Bartenders: C.U.R.E. Mom Jess & Executive Director Holly)
Do some Valentine’s Day shopping & support C.U.R.E.!
Stay tuned for more information!
New Merch Alert!
We are continuing our partnership with our friends at Embrace the Difference in a new and different way: custom C.U.R.E. bracelets! We have three styles available:
(1) Black cord with gold ends ($25)
(2) Silver and gold beaded ($35)
(3) Braided black cord with black ends ($25)
Each bracelet has a gold charm with our logo imprinted on it.
C.U.R.E. Partners:
You can now return your cans and bottles to Alpco Recycling and Bottle & Can Retrieval Centers! Let them know you’d like to support “C.U.R.E. Childhood Cancer Association” and a donation will be made to us!
Alpco Recycling is located at:
846 Macedon Center Road, Macedon, NY 14502
Bottle & Can Retrieval Centers located at:
509 Spencerport Rd, Rochester
2199 East Henrietta Rd, Rochester
2374 Chili Ave, Rochester
More ways to help
Become a C.U.R.E. Ambassador!
The Support Doesn’t Stop When Treatment Stops…
Because of YOU and your kindness.
Support our mission year-round by becoming a C.U.R.E. Ambassador! A C.U.R.E. Ambassador is a donor who commits to our mission through a monthly donation of his/her choosing. Whatever level you are comfortable with makes a difference!
Click here to learn more.
C.U.R.E. has joined the PayPal Giving Fund. Please consider adding us to your account to Shop, Donate and Raise Awareness for our families.
PayPal Giving Fund expands our fundraising reach through direct integration with PayPal, eBay and GoFundMe.
Want to help make a difference while you shop in the Amazon app, at no extra cost to you?
Simply follow the instructions below to select "C.U.R.E. Childhood Cancer Association" as your charity and activate AmazonSmile in the app. They'll donate a portion of your eligible mobile app purchases to us.
How it works:
1. Open the Amazon app on your phone
2. Select the main menu (=) & tap on "AmazonSmile" within Programs & Features
3. Select "C.U.R.E. Childhood Cancer Association" as your charity
4. Follow the on-screen instructions to activate AmazonSmile in the mobile app
C.U.R.E. + Astral Power
We have partnered with Astral Power to give our C.U.R.E. supporters access to renewable energy! The solar energy comes from the solar farm on Washington Street in Ogden. Once you sign up, your utility will automatically credit your utility bill for being a member, saving you a guaranteed 10% of your utility costs per year.
Signing up is easy:
(1) Call Rylea (585) 402-9313 or
(2) go to: https://www.astralpower.com/#signup
”How Did You Hear About Us” Select “Customer Referral” and enter “CURE” in “Referred By”
We are hoping for feedback from our Bereaved Parents Community.
Is there a safe, social activity you would like to participate in?
We would love some feedback and ideas.
Please let us know if there is anything we can do to help.
Please send any messages and feedback to Laurie Streb. Click me to email.
Bereavement Group
The group will meet at 7:00 p.m. on Wednesday January 5, 2022 at iSmash Rochester. Most other meetings in 2022 will be the first Wednesday of the month at 7:00 p.m. in our office - 200 Westfall Road, Rochester. Please Email michelle.magin@curekidscancer.com for more information.
We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support. If you or a community group you belong to is looking for something to do for a charity, please consider donating items from C.U.R.E.’s wish list so that we can continue to provide for our families:
A cure for childhood cancer, blood diseases and brain tumors!
- Buffalo Bills items (hats, gloves, socks, etc.) for teen gifts
- Colored pencils/art pencils
- Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
- Gift cards for GrubHub, McDonalds, Wendy’s, Burger King, Moe’s, Chipotle, Dunkin Donuts and Starbucks
- Crafts for young adults and children
- Items for teens or young adults
-Toys (Please look at our Amazon Wish Lists:
Under $20: https://a.co/hlW4hCO
$20 - 50: https://a.co/eHiQcV2
$50+: https://a.co/bVDujCy)
We ask that all items be new and recently purchased. Thank you!
Get your C.U.R.E. Gear
Rock C.U.R.E. Elite Sport Socks!
These super comfortable and supportive sport socks are HERE! What a great way to show support for C.U.R.E. and small businesses, they are made in the USA! Rock them while you are working from home or out exercising. Sandal season is over, rock these cozy socks today!
