March 2020 Newsletter
Happy March from C.U.R.E.
Thank you for subscribing to our newsletter. We hope you can attend a program or event or support C.U.R.E. this month. Please share our newsletter on your social media profile to spread the word about C.U.R.E..
Catching Up With Our Interns:
We have been keeping busy at the C.U.R.E. office over the past month! We have been working hard on our penny drive and are motivated to reach our goal of $7,000! So far, we have raised over $2,600 just from one school, Fyle Elementary! We are very excited about our progress. We
have also been to a few schools to advocate for C.U.R.E. and to get the
students excited to raise money for families in need. We are confident that we will reach our goal.
It is exciting to help in any way that we can with some of C.U.R.E.’s upcoming events. We have assisted with Trivia Night on March 6th by creating 20 baskets for the silent auction. It will be a great event! We have also attended a Gilda’s Club event on February 17th which consisted of a cooking class, fun games, and crafts with kids! We had a great time being volunteers at the event and look forward to helping and participating in more C.U.R.E. events in the future.
We have also been doing Instagram takeovers every Wednesday and assisting in other social media posts as needed. It has been a fun learning experience being able to create content for C.U.R.E. We look forward to the next few months at C.U.R.E. and are ready to learn as much as we can!
-Allie & Katie
Spotlight on: Jack
Jack was 6 years old when diagnosed with a brain tumor (pilocytic astrocytoma) at the base of his brain stem in May, 2018. At the time he and his family were living in Wiesbaden Germany, where his family was stationed in the Army. Later that summer, Jack and his family moved to their hometown of Rochester where they would have a strong support system of family and friends to tackle Jack’s 60 week treatment. That’s when C.U.R.E. came into his life and his treatment began at Golisano Children’s Hospital. By September 2018, Jack had lost the majority of his fine motor skills, walking or managing a flight of stairs became extremely difficult and his speech was challenged among many other things. In November 2018, he was fitted for a wheelchair. But his humor and determination gave everyone hope. His tumor was slow to react to the chemo, after 8 months it started to shrink! Slowly, Jack’s motor skills and speech started to come back, his family watched him do the things that 8 year old boys do, swim, play on the swings and even audition for a play! On November 21, 2019 Jack rung the bell of hope! He is back in school full time and living life to the fullest! In 2020 Jack was selected to be one of Golisano Children’s Hospital “Miracle Kids.” He is honored to forever have that title associated with his name.
“Jedi Jack” as he’s known, is an encyclopedia of all things Marvel and The Avengers. He and his brother love talking Star Wars and are looking forward to going to Disney’s Galexy’s Edge. Jack is a foodie who loves to try new things! He’ll tell you Thai and Indian food are his favorites. Water parks bring his so much joy, there is nothing he won’t try once! Through all his treatment, music played a big part of his healing process. He has memorized and can sing most Imagine Dragons songs. With hope to see them in concert one day. On March 7 & 8 he has a speaking part as “The Bookseller” in Beauty and the Beast Jr. and will soon begin guitar lessons as he aspires to be a singer / songwriter when he grows up.
His force is strong.
It’s time to start thinking about camps!
Camps are FUN!
Camps are FREE!
Camps are FUN!
Camps are FREE!
It is time to sign up.
Many of these camps are taking applications NOW!
We are all about fun at camp, but we are also extremely proud of the indisputable fact that camp goes far beyond giggling, joke-telling and crazy games.
Camp matters.
To read more from Nancy’s List about what camps are available, please continue reading here: Click me!
Upcoming C.U.R.E. Programming and Events
March Book Club:
Incidents in the Life of a Slave Girl, written by herself is an autobiography by Harriet Jacobs, a mother and fugitive slave, published in 1861. The book documents Jacobs's life as a slave and how she gained freedom for herself and for her children. This novel shows it relativeness "to address race and gender issues."
March Book Club:
Open to all C.U.R.E. parents & caregivers past and present.
Meeting:
Wednesday, March 25th at the C.U.R.E. office (200 Westfall Road)
from 6:30 p.m. - 8:00 p.m.
* The auto version of this book is available at www.chirpbooks.com/
Please let Adella know if you'd like to come!
585-473-0180 or adella.ivison@curekidscancer.com
We would love for you to participate! Can't get the book? LET US KNOW! We will work with you to get you access to a copy!
Parents’ Night Out: Sign Painting with Lucky Heart Designs
The class will be held at Climbing Vines Westside Play
3240 Chili Ave
Rochester, NY 14624
on March 12th from 6PM - 8:30PM
RSVP's are required!
Please contact Adella at Adella.ivison@curekidscancer.com or give the office a call at 585-473-0180
Space is very limited. First come first serve.
Calling all C.U.R.E. Parent and Caregiver Detectives:
The Great Escape Room is calling and C.U.R.E. is its only hope!
Back by popular demand, C.U.R.E. is hosting a Parents Night Out with the featured "Presidents Bunker" at The Great Escape Room on April 22nd.
If you are interested in attending this, please contact Adella at Adella.ivison@curekidscancer.com to RSVP. First come first serve! Space is limited!
C.U.R.E.
Annual Easter Egg Hunt :
A.P. Enterprises and Property Services is hosting a C.U.R.E. Easter Egg Hunt Family Event on April 11th from 12:00am - 3:00pm at the Webster White House Lodge.
The event is open to the public, but free of charge for C.U.R.E. Families. For non-C.U.R.E. families, a donation of $5 is asked at registration which will be given to C.U.R.E. There will also be a raffle at the event with proceeds being donated to C.U.R.E.!
If you are interested in this family event, please email Adella at Adella.ivison@curekidscancer.com
Thank you:
A little attitude of gratitude…
A special thank you to the people of our community that shine bright like diamonds!
Night at the Museum!
Thank you to the Rochester Museum and Science Center for hosting our Night at the Museum Family Event! It was such an AMAZING event for our C.U.R.E. families!
We look forward to offering this event again in the future.
Thank you Gilda’s Club of Rochester!
We are so appreciative of our continued partnership with Gilda’s Club of Rochester to offer a fun Kids’ Cooking Class during February Break. A special thank you to Chef Kevin Toole for coordinating with us and offering his culinary expertise to our kiddos!
My Pocket People
Thanks to a wonderful friend of C.U.R.E., we are able to take orders for these AMAZING support tools for our C.U.R.E. kids!
If you are interested in getting My Pocket People for your C.U.R.E. kid or sib,
please contact Adella at Adella.ivison@curekidscancer.com
Upcoming Fundraisers
Annual Trivia Night
Gather your smartest group of friends and join us for our annual Trivia Night! Registration now open for teams of 8! Don’t have 7 friends? That’s ok! We’ll pair you up!
$40/person includes buffet dinner from Carrabba’s, 8 rounds of Trivia, Raffles and Prizes!
Silent Auction, Live Auction and Cash bar.
Only a few tables left!
Section V Senior Select Hockey Game
Come check out the best Senior Hockey Players in Section V at Bill Gray’s Regional Ice Plex at 7:30PM on March 11th! Tickets are $6 each and 100% of the proceeds are donated to C.U.R.E.!
At the game, we will have our exclusive C.U.R.E. + Love Your Melon beanies for sale, a 50/50 raffle and more!
POSTPONED -
Cradle for a C.U.R.E.
Come watch the Rochester Knighthawks battle the Halifax Thunderbirds in a childhood cancer awareness game.
Saturday, March 28th @ 7 PM at the Blue Cross Arena.
Players will be wearing the names of C.U.R.E. kids on their jerseys and the jerseys will be auctioned off with proceeds benefiting C.U.R.E.! We will have C.U.R.E. kids involved throughout the game, so stay tuned for more info!
Exclusive
C.U.R.E. + Love Your Melon Beanies!
BIG NEWS!
We have partnered with Love Your Melon to offer these EXCLUSIVE, LIMITED QUANTITY beanies! They’re one size fits most and super high quality! Support children battling cancer with your purchase: for every one hat purchased, Love Your Melon sends one to a child battling!
Speckled beanie AVAILABLE NOW!
Navy beanie and cuffed beanie PRE-ORDER TODAY!
Worth Every Mile…
Calling all friends! That’s right - ALL friends. You don;t have to be a runner or a walker to make a difference to our families. You can be a fundraiser, too!
We hope you’ll come Along for the Ride on Saturday, April 25th as we host our 11th Annual 5k and Fun Walk presented by Cornerstone Wealth Management.
Race day Timeline:
7:45am- Registration begins inside I-Square
8:00am- Family fun, face painting, games and DJ
8:45a,- Registration ends
9:00am- 5K begins
9:15a,- Fun walk begins
Post race- Refreshments, T-shirt parade and winner announced
Coming Soon!
Rock C.U.R.E. elite sport socks at the 5K and all year long!
These super comfy and supportive sport socks will soon be available online and for sale at C.U.R.E. events. Rock your socks for only $16
Chip in FORE Kids
At the 5th Annual Patrick Carr Memorial Golf Tournament presented by Brighton Securities and ASP Industries!
Monday, July 20, 2020 at Deerfield Country Club
$150/person ($600/foursome) Space is limited!
To learn more, click below!
Awareness Coffee
Our friends at Awareness Coffee are helping to spread awareness about Pediatric Cancer with their coffee made from a specialty bean out of Peru, and roasted to perfection with subtle floral and chocolate notes.
A portion of proceeds will be donated to C.U.R.E., Golisano Children’s Hospital and Camp Good Days – your choice at checkout!
Buy the coffee here!
Mermaid Tail Headbands
Who doesn’t want to be a mermaid?
By purchasing your C.U.R.E. Mermaid Headband, you will provide one for a child going through cancer treatment and you get to keep one for yourself!
Headbands can be mailed to the purchaser!
KidCents Rite Aid Round Up Program
By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!
See the steps to enroll here! for information on this fundraiser
Baby Boomer Baseball
Our friend, author Robert Kravetz, will be donating $10 for every book purchased to C.U.R.E.!
Want to check out this wonderful book full of stories and stats? Contact him today: rkravetz@brightonsecurities.com or sfasciano@brightonsecurities.com
We Want to Hear From You!
We are looking for volunteers for upcoming events in 2020!
If you are interested, please contact Adella at Adella.ivison@curekidscancer.com
We know it can hard to make ends meet with the expenses of the holidays. We at C.U.R.E. want to help! Please contact the office if you would like to stop by and pick up a food bag. We have staples like peanut butter and jelly and mac and cheese that we hope you’ll find helpful!
Please call the office (585-473-0180) or e-mail adella.ivison@curekidscancer.com to set up a pick up time!
We are currently looking for interns for Summer 2020!!
If you are interested, please email adella.ivison@curekidscancer.com
Tell us your story.
Has C.U.R.E. helped you? We would love to hear stories about how C.U.R.E. has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com.
What programming would you like to see at C.U.R.E.? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to staff@curekidscancer.com
Young Professional Committee
Email Brittany Charles Gold in you are interested in learning more about C.U.R.E.’s new Young Professional Group!
charlebc11@gmail.com
Bereavement Corner:
Wish List Items Needed
We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support. If you or a community group you belong to is looking for something to do for a charity, please consider donating items from C.U.R.E.’s wish list so that we can continue to provide for our families.
Items Needed:
A cure for childhood cancer, blood diseases and brain tumors!
- Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
- Gift cards for McDonalds, Wendy’s, Taco Bell, Burger King, Arby’s, Dunkin Donuts and Starbucks
- Weighted blankets
- Essential oils
- Mini diffusers
- Heating pads
- Crafts for young adults and children
- Paper towels and toilet paper
- Facial Cleansing Wipes and body wash
- Items for teens or young adults
- Word searches, adult coloring books and crosswords
- Legos
We ask that all items be new and recently purchased. Thank you!
Support
Are you looking for someone to help tutor your child?
Are you looking for someone to help tutor your child? C.U.R.E. Childhood Cancer Association works with Boost to provide supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. The group of teachers at Boost Tutors, will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. The tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors, also. For more information please contact Adella Ivison, Program Coordinator for C.U.R.E. at 585-473-0180 or Adella.ivison@curekidscancer.com and she will make a referral.
Educational Consultant Services from C.U.R.E.
Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? C.U.R.E. can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong. If you would like to speak with Kathy Wissler either in person or via phone, please contact Adella Ivison, C.U.R.E. Program Coordinator, at 585-473-0180, or Adella.ivison@curekidscancer.com and she will make a referral. This service is provided free for C.U.R.E. families.
Facebook Live
Kiersten Kunick and Michelle Magin, Parent Advocates, go live on Facebook.
They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.
Have a topic you’d like to hear about? Feel free to reach out to Kiersten at kiersten.kunick@curekidscancer.com or Michelle at Michelle.Magin@curekidscancer.com
They will do their best to answer your questions and address topics you’d like to hear about!
Brian Bisgrove Home of Courage
The Brian Bisgrove Home of Courage, located an hour away from Rochester, is a retreat and respite home for families with children who have life-altering conditions. Children and their families are invited into the beautiful, handsomely-appointed log cabin for a 3 or 4 day stay and rest and repose, all completely free of charge. At the Home, medically fragile children can experience a different kind of healing, one of the mind and the spirit. It’s a place to let go of anxiety and stress and focus on the family.
The website, with more detailed information on the Home and the application is: www.homeofcourage.com.