CURE Childhood Cancer Association

May Newsletter

CURE main logo pic

Our send-off to our Wonderful Winterns

Since January, Emily and Gina have been interning with CURE, and wonderful doesn’t even begin to describe them. These two have handled every task with precision and ease, and there is no task that they can’t handle. They have been so passionate about CURE since their feet first stepped in our doors, and it reflects in their hard work every day. They both have such wonderful hearts and can light up even the darkest of rooms with their smiles and upbeat attitudes. Their dedication to CURE has been so genuine and helpful and they make a wonderful team. They work together so smoothly and are so quick to help in any way that they can. Together through their Penny Drive (which they worked so wholeheartedly on) they’ve raised over $4,500 for CURE families!

We want to first give you both an unmeasurable THANK YOU for all of your time, dedication and passion. Second, we want to give you a huge CONGRATULATIONS as you walk across the stage on your upcoming graduation day!  We are so proud of you both and wish you the best in all of your future endeavors! We have no doubts that you will both continue to make a difference in the world. Emily and Gina, thank you for being such phenomenal winters! We will miss you!

Spotlight On Joey

“Meet Joey: a sweet, four-year-old, train-loving super star! Joey was born with Neurofibromatosis 1 (NF1), a genetic disorder that causes tumors to grow throughout the body and can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, and learning disabilities. 

Joey has recently undergone 16 months of chemotherapy to treat a brain tumor. He also has other NF related tumors throughout his body that require lifelong monitoring.  None of these medical hurdles have kept our brave JoJo from being the loving, kind, happy little guy that he is. Joey enjoys building with blocks, his homeboy Thomas the Train, swimming, laughing at his own jokes, riding his bike, and going to the playground.  Joey’s favorite activity, however, is being with his loving big sister, Lily, who he adores. Together they have been known to have epic dance parties (Maroon Five and J Timberlake are some faves), dress up in ridiculous costumes, sing like maniacs, and make award-winning blanket forts. 

May is NF awareness month, and we would like to thank our families, friends, doctors, nurses, researchers, volunteers, and all the people at CURE for supporting families who are facing a challenging medical diagnosis.  No one fights cancer alone!”

Bell Ringing!

We had three of our CURE kids complete their end of treatment bell ringing in the month of April. Each child was able to ring the bell at the Golisano Children’s Hospital at Strong then came to the CURE office to celebrate with their families! We want to wish a BIG congratulations to the following CURE kids…..

CONGRATULATIONS KIRA!! 

CONGRATULATIONS JENISIS!!

CONGRATULATIONS WILLIAM!!

The Winter Interns

#WINterns: It’s Not a “Goodbye” it’s a “See You Later”

Our time at CURE is coming to an end. We have loved getting to meet all of the wonderful families and supporters of this organization and would not trade our experience for the world. Holly, Sam, Andrea and Colette have been such a joy to work with and helped us grow as professionals. We cannot thank them enough for all that they have done for us within and outside of the workplace!

We are thrilled to say that CURE’s 9th Annual 5K and Fun Walk was very successful and we were able to help raise an amazing amount of money for the organization! After months of planning, reaching out to sponsors, friends and family and gathering supplies/donations, we know that our (as well as the entire CURE staff) hard work has paid off.

The Million Penny Drive was successful in that we raised about $4,600; although we did not hit our goal of $7,000 we were able to visit schools and advocate for CURE. We are hoping that the incoming intern will continue to reach out to more schools and businesses to see if they are willing to participate so that our goal will eventually be met. All in all, we had 11 schools and 6 businesses that took part in this fundraiser and we would like to thank them all for their amazing contribution to the organization. We would also like to thank the outstanding staff at Canandaigua National Bank for being so kind and considerate even when we brought in over 77,000 pennies in one day!

Schools: School 52 – Frank Fowler Dow, Monroe BOCES II, Terry Taylor Elementary School BOCES, Iroquois Middle School, Roger’s Middle School, Honeoye Middle and High School, Chestnut Ridge Elementary School, Churchville-Chili Senior High School, Community Nursery School and St. Rita’s School (will run the fundraiser this month).

Businesses: The Monroe County Sherriff’s Department, Scott’s Hallmark, Coopervision, Marina Auto Outlet in Webster, Perinton Hills Chiropractic and Rochester General Medical Transcription

 

What Will We Be Doing After Our Internship at CURE?

Emily is planning on furthering her education and becoming a Child Life Specialist. She will be participating in a practicum over the summer that will advance her into this field. Gina is also planning on furthering her education and will soon begin the nursing program at SUNY Brockport.

We plan to continue to volunteer and support CURE in any way we can! We will cherish the little time we have left as interns and can’t wait to begin help with/attend more CURE events!

Free CURE Programming and Events

*New Program Alert!*

Thursday 5/17 at 6:00pm will be our first chapter of our CURE Educational Speakers Series. This first chapter will focus on Nutrition and will also offer tips for fun innovative healthy snacks for families. This is a FREE program to any CURE family. Please RSVP to andrea.shaffer@curekidscancer.com by Friday May 18th.

May is Brain Tumor awareness month! Wear Gray in May!

Art Work Needed

We have a “Wall of Fame” at the Twelve Corners Starbucks that features artwork of our CURE kids. We would love to feature your work and the wall could use a little love.  Some SPRING themed pictures would really brighten up the wall!! Please do not include last names on your pieces. They can be sent to the CURE office (CURE Childhood Cancer Association, ATTN: Andrea Shaffer, 200 Westfall Road, Rochester, NY 14620) or given to Kiersten or Adella at the hospital.

Thank you for your support!

We had such an amazing time at our 9th Annual 5k and Fun Walk this past Saturday. We had a RECORD number of participants register and cannot thank you all enough for your generous support. We’d like to especially thank The Cornerstone Group of Wells Fargo Advisors for again partnering with us and being the presenting sponsor of our event. We’d also like to thank our friends at Garber HondaRaymour & Flanigan Rochester-Henrietta Furniture and Mattress Store, Dr. Maria Aslani-Berit, Wilmorite Management Group, Elmwood Pediatric GroupQtoursNYBrockport Lions Club and Michelle Lebel Agency for sponsoring our event! We received generous donations of product from cheribundi, @rochesterriversidehotel, BJ’s Wholesale ClubDr Pepper Snapple GroupBrothers International Food Corporation and Bakewise Brands Inc. We had some great support from the community at our vendor tables: Sean CarterLuLaRoe Amy TermottoRadiant Sun AcupunctureGeneral Wholistic Center of Health & MassageNew Look SealcoatingPigtails & Crewcuts: Haircuts for Kids – Rochester, NYBest Care Lawn Maintenance.

We couldn’t do the good work we do in the community without all of your support. Thank you, from the bottoms of our hearts, for being incredible. We appreciate you!

Our friends at Canandaigua National Bank & Trust are the best! They held a Casual Blue for Charity event for CURE on April 13th. Check out one of our newest Board Members, Rayon, on the far right! We are so glad to have such great friends! Stay tuned for when we reveal how much money they raised!!

We would like to give a big THANK YOU to the Friends of Jason who hosted their Annual Chicken BBQ at the Hornell VFW last month. They sold Easter Chocolates and were able to raise $3,000 for CURE!

Upcoming Fundraisers


3rd Annual Patrick Carr Memorial Golf Tournament
presented by Brighton Securities

Monday, July 23, 2018
8:00 am – 6:00 pm
Chili Country Club
Join us for a great day of golf and showing support for local families coping with childhood cancer or chronic blood disorders. 

Purchase your foursome or sponsorship here!

Our friends at Nosh and Bitter Honey have an AWESOME event coming up that you CANNOT miss! See who the Taco King of Rochester is on May 21st!

A portion of ticket sales will be donated to CURE!
Get your tickets here: https://www.eventbrite.com/e/taco-kings-vol-1-nosh-vs-bitter-honey-tickets-45386228431?aff=efbeventtix

Our friends at Mint Salon have kindly offered to host this incredible series of events this year to support our families. For a $10 donation you can get your hair braided! Here’s a list of upcoming dates:

May 10th, 2018 at the Scotland Yard Pub 187 Saint Paul Street Rochester, NY 14604
May 24th, 2018 at The Blossom Road Pub 198 Winton Road North Rochester, NY 14610

Starting Monday, April 23rd our friends at WNY Auto Sales LLC, are donating $50 per car sold up to $500 to our organization! They are also accepting donations to increase their fundraising power. If you’re in the market for a vehicle, be sure to check them out!

Our friends at Embrace the Difference have a wide selection of beautiful pieces with one sure to be perfect for the Mother in your life! Be sure to check them out. CURE will receive a donation for your purchase, just be sure to let them know you support us!

Our friends at Awareness Coffee are helping to spread awareness about Pediatric Cancer with their coffee made from a specialty bean out of Peru, and roasted to perfection with subtle floral and chocolate notes.

A portion of proceeds will be donated to CURE, Golisano Children’s Hospital and Camp Good Days – your choice at checkout!

Buy the coffee here!

It’s that time of year, wash away the salt and traces of winter all while supporting CURE!

Click here to purchase!


We are excited to announce that we have partnered with Rite Aid and are now an official KidCents charity! KidCents is a program created by The Rite Aid Foundation that allows Rite Aid customers to round up their purchases to the nearest dollar and donate their change to help support kid-focused charities.

Here’s how you can enroll in the KidCents program and round-up to our charity:

Step 1: Enroll in wellness+ with Plenti (Skip to Step 2 if you are already a wellness+ with Plenti member)

  • Visit KidCents.com and click ‘Sign In’ on the left
  • Click the box on the right to ‘Enroll in wellness+ with Plenti
  • Complete registration process for wellness+ with Plenti
  • Click through to finish signing up in Plenti
  • When finished with both processes, you will be directed to RiteAid.com

Step 2: Enroll in the KidCents Round-Up Program

  • Visit KidCents.com
  • You should see your account logged in on the left. If not, sign in with the account information.
  • Click ‘Start rounding up today!’ dial on the left

Step 3: Designate Your Charity

  • Click ‘Select a Charity’ on the left
  • Type [INSERT CHARITY NAME HERE] and click ‘Select This Charity’

By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!


Community Fundraisers and Events

We Want To Hear From You!

Join Our Team!

We are currently looking for interns for Fall ’18!!

If you are interested, please email andrea.shaffer@curekidscancer.com or sam.corrigan@curekidscancer.com

Has CURE helped you? We would love to hear stories about how CURE has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com.

What programming would you like to see at CURE? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to Andrea.Shaffer@curekidscancer.com


Wish List Items Needed:

We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support.  If you or a community group you belong to is looking for something to do for a charity, please consider donating items from CURE’s wish list so that we can continue to provide for our families.

Items Needed:

  • A cure for childhood cancer, blood diseases and brain tumors!
  • Travel sized toiletries: Deodorant, toothpaste, toothbrushes (singular), shampoo and conditioner
  • Wicker or plastic baskets
  • Small pocket/purse-sized calendars
  • Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
  • Paper towels and toilet paper
  • Items for teens or young adults
  • Toys for kids under 5 years old

We ask that all items be new and recently purchased.  Thank you!


Bereaved Families Corner

Forever In Your Heart

“Feel no guilt in laughter, they know how much you care

Feel no sorrow in a smile, that they aren’t there to share. 

You should not grieve forever, as they don’t want you to

They want you to carry on, just as you always do.

So talk about the good times, and the way you showed you cared

The days you spent together, the happiness you shared.

Let the memories surround you, a word someone may say

Will suddenly recapture a time, an hour, a day.

Something that brings them back as clearly, as though they were still here

And fills you with the reminder, that they are always near.

For if you keep the moments, you will never be apart

Your child lives forever, locked safely in your heart.” 

Our most sincere condolences…

Keith Jurjens – 4/18/2018

Amari Thompson – 4/21/2018

Support:

Bereavement Group:

illustration of the forget-me-not flowers over white background

The first Wednesday of each month

Hosted by Kiersten Kunick and Adella Ivison

200 Westfall Road, Rochester 14620

Next meeting is May 2, 2018

From 7-830pm

No reservations required


ROC City Sicklers:

ROC City Sicklers Logo

The third Tuesday of each month

UR Medicine

Conference room ACF A/B

6-730pm

Free Parking

Food provided by Wegmans


Are you looking for someone to help tutor your child? Boost provides supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. This group of teachers will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. Our tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors. For more information please go to www.boost4kids.com or contact Linda Bolan at 585-317-7269.

Educational Consultant Services from CURE

Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? CURE can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong.  If you would like to speak with Kathy Wissler either in person or via phone, please contact Kiersten Kunick , CURE Parent Advocate, at 585-697-4470, or call the CURE office at 585-473-0180 and she will make a referral. This service is provided free for CURE families.

Outpatient/On treatment Support Group:

Kiersten Kunick will host an Outpatient/On treatment Support Group for parents at the CURE office once per month.

This meeting will be held from 12pm – 1pm on the 2nd Wednesday of every month.

Join us and connect with other outpatient caregivers!

Feel free to reach out to Kiersten kiersten.kunick@curekidscancer.com

Long-term Survivor Support Group:

Adella Ivison will host a Long-term Survivorship Support Group for caregivers at the CURE office once per month.

This meeting will be held from 6:30pm – 8pm on the 4th Wednesday of every month.

Join us and connect with others about late effects and more.

Feel free to contact Adella at adella.ivison@curekidscancer.com

Facebook Live:

Kiersten Kunick and Adella Ivison, Parent Advocates, go live on Facebook.

They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.

Have a topic you’d like to hear about? Feel free to reach out to Kiersten kiersten.kunick@curekidscancder.com or Adella adella.ivison@curekidscancer.com and share!

Brian Bisgrove Home of Courage:

The Brian Bisgrove Home of Courage , located an hour away from Rochester) is a retreat and respite home for families with children who have life-altering conditions.   Children and their families are invited into the beautiful , handsomely-appointed log cabin for a 3 or 4 day stay of rest and repose, all comepletely free of charge.  At the Home medically fragile childere can experience a different kind of healing, one of the mind and spirit.  Its a place to let go of anxiety and stress and focus on the family.

The website (with more detailed information on the Home and the application) is www.homeofcourage.com.