CURE Childhood Cancer Association

March Newsletter

CURE main logo pic

A Message from the Executive Director

What does CURE mean to you?

We ask that question a lot – to our families, volunteers, staff – but a common thread to all of the answers is hope. When the founders of CURE came together so many years ago, they wanted to bring hope to families. They wanted to bring peace to families. They wanted to HELP families. All these years later, we have the same mission and strive to fulfill the same offerings. I’d like to highlight our Parent Advocate program. Did you know that CURE hired its first Parent Advocate in 1987? This program has been bringing hope…and comfort (and, yes, parking passes) to our families for over 30 years. I was speaking with Parent Advocate, Adella, this afternoon and we were talking about the Parent Advocate position. There are certainly hard days. Our Parent Advocates are alongside our families through the ups and the downs, but they are also a sign of hope. They are parents of long-term cancer survivors. At one point, surviving childhood cancer was almost a myth – it was rare. Technology and medicine has come such a long way since those early days. Survival rates are increasing. There is hope. And I think back to our founders, who worked so tirelessly to help families in need. Although they had different paths they went down due to losing their children, they still had hope. They still wanted to instill hope in others and help them through their journeys. I see this same sense of hope from many of our bereaved families as well. Hope comes in different shapes and forms; it has different ways of manifesting and showing itself. But hope is a powerful thing. So volunteers, when you are offering your time to our organization, you are offering hope. Hope that the community is behind our families and that they are not in this battle alone. Hope that together, we can make a difference. CURE Families, you are bringing hope to others – past and present. It never ceases to amaze me how giving and compassionate you are and how much you want to help one another. CURE Staff, you are making a difference and offering programs and services and raising money so that the mission of hope can be put into action. Hope is a powerful thing.

I came across the following quote that I found fitting:
“There was never a night or a problem that could defeat sunrise or hope.” – Bernard Williams
Keep that in mind.
CURE is here for you. Together, we will see the sunrise.

Spotlight On

— Hunter Dunlap — 

“Hi, my name is Hunter Dunlap.  I’m 15 and I have AML (Leukemia).  This is most definitely not an easy thing to go through but one thing I can say is KEEP ON FIGHTING!!!

The nurses are there for you and so is your family and your friends.  But anyways, about me…I love listening to and writing my own music.  I have for the past 5 years.  I’m also an athlete, I do track and outside of school, I play football, soccer, basketball and sometimes baseball.  I’m 5’10” so basketball is “my sport” according to a couple friends of mine.  Someone on my track team called me “The Flash!”. 

Bell Ringing!

As of January, we now provide a small bell to each child when they finish their treatment! These bells can be kept as a keepsake for each child. You can view a video here that Golisano’s Children Hospital posted on their Facebook page when we gave out one of our first keepsake bells!

We encourage all of our CURE families who have a child that rings the bell at Golisano Children’s Hospital to come to the CURE office (200 Westfall Road) after the bell ringing for a small celebration! We provide refreshments, a small gift, and have the child put their hand-print on a canvas on our wall here at CURE. The child even gets a canvas they can take home and keep with them forever. 

If any businesses, families or individuals are interested in sponsoring a bell ringing, please contact andrea.shaffer@curekidscancer.com 

The Winter Interns

#WINtern Update…

We have officially started our 7th week here at CURE. We are learning more and more each day about the impact this organization has on the community as well as what goes into running a non-profit business. Holly, Sam, Andrea and Colette have been instrumental in our growth as students and professionals. We were welcomed with open arms and continue to feel supported and appreciated by all of the staff here at CURE. We have been fortunate enough to meet some of the amazing families and cherish every interaction. So far we have participated in “Kids in the Kitchen” where we partnered with the Gilda’s Club of Rochester to kick off February break. We’ve presented to a class at BOCES about CURE and about the “Million Penny Drive”; which they are currently participating in! We have gone along with Andrea and Sam on business meetings and have learned a great deal about advocating and fostering partnerships. We cannot wait to be a part of CURE’s upcoming events/programs and are thrilled to find out what is in store for us next!

Free CURE Programming and Events

EASTER FUN FOR THE FAMILY!

CURE families: Come hop on over and join us on Saturday March 31st at 12:00pm – 3:00pm at the White House Lodge, Webster Park for the
2nd Annual Easter Egg Hunt hosted by our friends at A.P. Enterprises Property Services!! 

There will be a special visit from The Easter Bunny, an Easter Egg Hunt, food and drinks, and lots of fun!!

This is a FREE event for CURE kids and families! Please RSVP by Sunday March 25th to: andrea.shaffer@curekidscancer.com

LET’S STRIKE UP SOME FUN!

Our next Parents’ Night Out will be Sunday April 15th at Sunset Lanes Bowling Alley (1317 Chili Ave, 14624)! 

 5:00 PM – 7:00 PM includes two rounds of bowling, shoes and pizza/soda provided by CURE!

We hope to see our CURE parents there – RSVP’s can be emailed directly to andrea.shaffer@curekidscancer.com 

Event for the whole family

Saturday March 17th is the Celtic Family Faire at the Rochester Riverside Hotel during the St. Patrick’s Day Parade!

The Celtic Family Faire has fun family activities all day long and is a great opportunity to support us, as each admission will be a direct donation to CURE.

You can view the timeline for that day here

Please e-mail andrea.shaffer@curekidscancer.com if you are interested in volunteering!

SAVE THE DATE

CURE families!

Mark your calendar for Sunday, June 3rd for our Annual Survivors Day Picnic

Big Toy Experience! 

CURE kids are you interested in a Big Toy Party?! A.P. Enterprises Property Services donated a big toy party to CURE and the purchaser donated it back to CURE for our kids! Attendees can climb, explore and get a tour of all the big equipment! There will also be a pizza and ice cream party!

Please e-mail andrea.shaffer@curekidscancer.com if you are interested!

What we’ve been up to: 

Monday February 19th we partnered up with Gilda’s Club for a “Kids in the Kitchen” cooking event. Chefs Alex Brand and Adam Pastecky of the Genesee Valley Club so kindly volunteered their time to interactively teach the kids how to make a chicken stir fry in celebration of the Chinese New Year! The kids also made fresh smoothies, veggie sushi and dessert sushi. The food turned out delicious and the kids all worked together wonderfully.  Another big thank you to Penfield Rotary for volunteering their time as well to help the kids at each food station! We had so much fun and look forward to doing more of these events in the future; we love nothing more than seeing smiles on all the kids’ faces.

Upcoming Fundraisers

It’s a jungle out there…
Help us support families as they navigate their journeys by participating in our 9th Annual 5k and Fun Walk
presented by The Cornerstone Group of Wells Fargo Advisors.

When: April 28, 2018

Where: Longhouse Shelter, Seneca Park

5k Run and Fun Walk kicks off at 9:30 AM

Price for registration through March 31st is $15.  This includes a CURE bracelet and CURE sunglasses.
PRICING INCREASES TO $20 ON APRIL 1ST AND $25 THE DAY OF THE EVENT.

Raise additional funds through donations and/or fundraising teams.  Your direct donation and those made to your fundraising page contribute to your level of reward.

Raise: 
$30- receive a cotton t-shirt and CURE sunglasses 
$60- receive a tech t-shirt and CURE sunglasses 
$100- receive a hooded sweatshirt and CURE sunglasses

Assemble your team and gather your crew! Sign up today here! 

Interested in volunteering? Sign up here!!


31st Annual Senior Select Hockey Game

William J Quinlan Memorial Hockey Tournament 

Thursday, March 15, 2018

31st Annual Senior Select Hockey Game

Dedicated to the loving memory of William & Margeurite Quinlan.
 
 Where:Bill Gray’s Regional Iceplex
What: CURE will be holding its 31st Annual Select Memorial hockey game, featuring Section V’s top senior players. These players will face off one game at 7:00 pm.

Purchase your tickets here!

Can’t make it to the game, but still want to help? YOU can make a difference through purchasing an ad for the program book for the game! Options include full, half, quarter and business card sized ads! If you are a past player and would like to give back, make sure to purchase an ad in our throwback/memory section of the program. Purchase your ad here!


Purchase your tickets here!

Cradle for the CURE! 

Come out and help raise awareness and donations for CURE Childhood Cancer Association as well as have a fun night out with the Rochester Knighthawks! Get your group together and cheer on your Rochester Knighthawks as they take on the Colorado Mammouth on March 31st at 7:30 pm.

Purchase your ticket here, $5 will be given back to CURE. When you purchase, you’ll receive your very own referral link to share with your friends, family and coworkers. Anyone who buys from your link will automatically be seated with you. All fans will receive their tickets via email, two days before the event.

Additionally, this is a special game for CURE! There will be an EXCLUSIVE jersey auction with proceeds benefiting our organization as well as t-shirt sales benefiting CURE. Some of the Knighthawks players are even wearing CURE Kids’ names on their jerseys! It’s going to be a GREAT night of raising awareness and funds for our families!

3rd Annual Patrick Carr Memorial Golf Tournament

Monday, July 23, 2018
8:00 am – 6:00 pm
Chili Country Club
Join us for a great day of golf and showing support for local families coping with childhood cancer or chronic blood disorders. 

Purchase your foursome or sponsorship here!

Our friends at Mint Salon have kindly offered to host this incredible series of events this year to support our families. For a $10 donation you can get your hair braided! Each event takes place from 5:30 – 7:30PM. Here’s a list of upcoming dates:

March 1st, 2018 at the Scotland Yard Pub 187 Saint Paul Street Rochester, NY 14604
March 15th, 2018 at the Dragonfly Tavern 725 Park Avenue Rochester, NY 14607
March 29th, 2018 at Parkleigh 215 Park Avenue Rochester, NY 14607
April 12th, 2018 at the Record Archive 33 1/3 Rockwood Street Rochester, NY 14610
May 10th, 2018 at the Scotland Yard Pub 187 Saint Paul Street Rochester, NY 14604
May 24th, 2018 at The Blossom Road Pub 198 Winton Road North Rochester, NY 14610

The 5th Annual “Friends of Jason” BBQ will be held on March 24th from 12:00 – 3:00 pm at the Hornell VFW (245 Canisteo St, Hornell, NY 14843)!

There will also be homemade Easter Chocolates for sale and all proceeds of the chocolates will be donated to CURE!

Please pre-order your $10 tickets by emailing: ajlath03@gmail.com or call 585-268-5185

Our friends at Awareness Coffee are helping to spread awareness about Pediatric Cancer with their coffee made from a specialty bean out of Peru, and roasted to perfection with subtle floral and chocolate notes.

A portion of proceeds will be donated to CURE, Golisano Children’s Hospital and Camp Good Days!

Buy the coffee here!

It’s that time of year, wash away the salt and traces of winter all while supporting CURE!

Click here to purchase!

St. Baldrick’s Event
ROC the Bald/Shave for the Brave
April 15, 2018
Finn’s Tap Room
Get involved here!


We are excited to announce that we have partnered with Rite Aid and are now an official KidCents charity! KidCents is a program created by The Rite Aid Foundation that allows Rite Aid customers to round up their purchases to the nearest dollar and donate their change to help support kid-focused charities.

Here’s how you can enroll in the KidCents program and round-up to our charity:

Step 1: Enroll in wellness+ with Plenti (Skip to Step 2 if you are already a wellness+ with Plenti member)

  • Visit KidCents.com and click ‘Sign In’ on the left
  • Click the box on the right to ‘Enroll in wellness+ with Plenti
  • Complete registration process for wellness+ with Plenti
  • Click through to finish signing up in Plenti
  • When finished with both processes, you will be directed to RiteAid.com

Step 2: Enroll in the KidCents Round-Up Program

  • Visit KidCents.com
  • You should see your account logged in on the left. If not, sign in with the account information.
  • Click ‘Start rounding up today!’ dial on the left

Step 3: Designate Your Charity

  • Click ‘Select a Charity’ on the left
  • Type [INSERT CHARITY NAME HERE] and click ‘Select This Charity’

By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!


Thank you for your support!

Thank you so much to Corey and Jack who held a dress down day with their fourth grade class at Holy Cross in loving memory of their classmate Ashley Nagel. They raised $533 for CURE families!!

Checkout our Annual Report here!! 

Thank you so much to Brandmint for doing such a wonderful job designing these and Minute Man Press in Fairport for printing them!

BIG thank you to School 52! They raised just shy of $900 last week participating in the Million Penny Drive in loving memory of Amanda Conrow. You’ve all made a huge difference in helping CURE families!

Huge THANK YOU to Molly, Michele and Lesley!! They recently celebrated their birthdays by having a joint birthday party and instead of receiving gifts, collected donations for CURE! You girls made a huge difference to CURE families and we are so appreciative of your kindness!

Thank you so much to the Clark family who collected all of these toys to CURE!! This is going to mean so much to so many other CURE families!!

We Want To Hear From You!

Join Our Team This Summer!

We are currently looking for interns for Summer ’18!

If you are interested, please email andrea.shaffer@curekidscancer.com or sam.corrigan@curekidscancer.com

We are looking for volunteers with trucks or vans to help us pack for CURE’s 5k and Fun Walk! We are looking for volunteers to come to the office on Friday, April 27th to help us pack up items for the 5k and Fun Walk and bring them to Seneca Park on Saturday, April 28th morning. If you are able to volunteer please contact Sam at sam.corrigan@curekidscancer.com 

We are so excited! This year marks the 10th Anniversary of the Recipe for a CURE Sunday Brunch!
We are currently in need of committee members.
The Brunch will be held at the Rochester Riverside Hotel on Sunday, October 14th. The theme is: Jungle!!

Committee members are needed in the following areas:

*Silent Auction

*Sponsorships

*Table Captains

*Decorations

Our first committee meeting will be held in the beginning of April at the CURE office.

If you are interested in joining the committee please email

sam.corrigan@curekidscancer.com 

Has CURE helped you? We would love to hear stories about how CURE has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com.

What programming would you like to see at CURE? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to staff@curekidscancer.com


Wish List Items Needed:

We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support.  If you or a community group you belong to is looking for something to do for a charity, please consider donating items from CURE’s wish list so that we can continue to provide for our families.

Items Needed:

  • A cure for childhood cancer, blood diseases and brain tumors!
  • Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
  • Small pocket/purse-sized calendars
  • Paper towels and toilet paper
  • Items for teens or young adults
  • Toys for kids under 3 years old

We ask that all items be new and recently purchased.  Thank you!


Bereaved Families Corner

Loss of a Child

The pain that never ends

“The worst thing that can happen to any parent is the loss of a child, regardless of the age of the child. People are uneasy and reluctant to talk about death and certainly not about the death of a child.  Many people will pull away from a family that has suffered the death of a child as though somehow having a child die is contagious. Families who have lost children will say that others “Just don’t get it.” They are expected to move on and get over it when that will never happen. The pain will wax and wane but it is always there. With time, the pain will lessen enough to allow the parent to return to the living but their child is never far from their mind.” 
This full article can be found here.

Support:

Bereavement Group:

illustration of the forget-me-not flowers over white background

The first Wednesday of each month

Hosted by Kiersten Kunick and Adella Ivison

200 Westfall Road, Rochester 14620

Next meeting is March 7, 2018

From 7-830pm

No reservations required


ROC City Sicklers:

ROC City Sicklers Logo

The third Tuesday of each month

UR Medicine

Conference room ACF A/B

6-730pm

Free Parking

Food provided by Wegmans


Are you looking for someone to help tutor your child? Boost provides supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. This group of teachers will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. Our tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors. For more information please go to www.boost4kids.com or contact Linda Bolan at 585-317-7269.

Educational Consultant Services from CURE

Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? CURE can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong.  If you would like to speak with Kathy Wissler either in person or via phone, please contact Kiersten Kunick , CURE Parent Advocate, at 585-697-4470, or call the CURE office at 585-473-0180 and she will make a referral. This service is provided free for CURE families.

Outpatient/On treatment Support Group:

Kiersten Kunick will host an Outpatient/On treatment Support Group for parents at the CURE office once per month.

This meeting will be held from 12pm – 1pm on the 2nd Wednesday of every month.

Join us and connect with other outpatient caregivers!

Feel free to reach out to Kiersten kiersten.kunick@curekidscancer.com

Long-term Survivor Support Group:

Adella Ivison will host a Long-term Survivorship Support Group for caregivers at the CURE office once per month.

This meeting will be held from 6:30pm – 8pm on the 4th Wednesday of every month.

Join us and connect with others about late effects and more.

Feel free to contact Adella at adella.ivison@curekidscancer.com

Facebook Live:

Kiersten Kunick and Adella Ivison, Parent Advocates, go live on Facebook every other Wednesday at 12pm.

They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.

Have a topic you’d like to hear about? Feel free to reach out to Kiersten kiersten.kunick@curekidscancder.com or Adella adella.ivison@curekidscancer.com and share!

Brian Bisgrove Home of Courage:

The Brian Bisgrove Home of Courage , located an hour away from Rochester) is a retreat and respite home for families with children who have life-altering conditions.   Children and their families are invited into the beautiful , handsomely-appointed log cabin for a 3 or 4 day stay of rest and repose, all comepletely free of charge.  At the Home medically fragile childere can experience a different kind of healing, one of the mind and spirit.  Its a place to let go of anxiety and stress and focus on the family.

The website (with more detailed information on the Home and the application) is www.homeofcourage.com.