CURE Childhood Cancer Association

March 2019

A peek at our Programming…

Book Club!

We started a Book Club back in January in an effort to bring our families together to promote community connection and self care.  Guess what?  We had a GREAT TIME!  Our hope is that individuals with similar journeys will not only enjoy that month’s book, but also create everlasting connections for the future.  You don’t have to read all the books that we have discussed in the past and if you don’t get a chance to read that month’s book, it is just fine.  Because, let’s face it, life happens!  Come and join anyhow and have a great time!  Jump in and join us for our Book Club the 4th Wednesday of every month from 6:30 – 8:00 p.m.  Can’t wait to see you there!

Spotlight On….

Nora was born with stage 4s neuroblastoma, she was monitored and watched closely as they believed it would go away on its own. At 18 months old she had Petrous skull base metastasis and relapsed. She started treatment and has undergone 6 rounds of chemo, 2 stem cell transplants, radiation and immunotherapy. She’s currently getting ready to start the Vaccine trial at Memorial Sloan Kettering in NYC. For the first time in over 3 years Nora’s scans came back that she was NED she’ll be three next month and loves being with her brother, dancing and dressing up as a princess. She’s a strong Little warrior

Our Most Sincere Condolences

Our sincere sympathies go to the family of:

Emma Kuzmich – 2/13/19

and

Joannie Rios – 2/12/19

Winter Interns!

We have a lot of schools and businesses taking part in our Penny Drive, and we already got to collect jugs from our first school! We have started tracking our progress and are so excited to get closer to our goal! It is now our fifth week here at CURE, and we are beginning to see the direct impact that CURE has on the community. We took part in Kid Chefs at Gilda’s Club, and made dinner at The Ronald McDonald House. We also attended a networking meeting with Bridget, and got to feel the impact that childhood cancer can have on anyone in the community. It has been so meaningful becoming more involved, and we really look forward to the rest of our time here! CURE is having some more events coming up that we are so excited to be a part of. We will be at Trivia Night and the Senior Select Hockey Game this month, and we hope to see you there!

Free CURE Programming and Events

Join us for a Parents’ Night Out Cooking Class featuring 

Chef Michael Speranza

on March 28th, 2019

at Gilda’s Club 

255 Alexander St.

Rochester, NY  14607

from 6:00 – 8:00 pm

*Space is limited. First come, first serve.

 Reserve your spot today by contacting Adella at:

Adella.ivison@curekidscancer.com

CURE’S
New
Book Club
Who:      Parents, patients, and caregivers
Where:    The CURE Office
                 200 Westfall Rd.
                 Rochester, NY  14620
When:    The fourth Wednesday of every month
               (March 27th, 2019)
               6:30-8:00 pm
March’s Book:  Okay, Fine, Whatever by Courteaney Hamiester (Please read before group so that we can discuss)
Please RSVP to Adella Ivison at
Adella.ivison@curekidscancer.com
by March 21st, 2019 if you are new to this group in March

Thank You for Your Support!

Thank you to Mercy Basketball Seniors Olivia and Maggie for choosing to support CURE for their Senior Project!  They ran a shooting contest at their tournament and raised over $400 for CURE!

Thank you to Iroquois Middle School in West Irondequoit for being the first school of 2019 to host our Penny Drive!  Their homerooms competed against one another to raise over $1,100 to help our families, with the winning homeroom collecting over $285!!!  Thank you so much for supporting our families, and helping us kick off the 2019 Penny Drive.

Thank you so much to our amazing volunteers for being willing to always support our organization and assist with all our event!  Here are a couple of our volunteers at our table during the Rock vs. Cancer event February 2nd.

Thank you to Ronald McDonald House for allowing our staff and interns to come this past month and prepare dinner for the families staying there!  We had a blast, and are so thankful to have the opportunity to support families in so many different ways!

Upcoming Fundraisers

On March 12th, 2019, CURE Childhood Cancer Association will be hosting the 32nd Annual Monroe County High School Hockey League William J. Quinlan Memorial Senior Select Hockey Game at Bill Gray’s Regional Iceplex. This game features Section V’s top seniors as they suit up one final time to represent their high school programs.  Each year, the high school Booster Clubs purchase ads in our Souvenir Program in support of their players and CURE, and the selected seniors purchase tickets to the game.  All proceeds from the game go to CURE, so we cannot thank Section V Hockey, the coaches, players, families, and Booster Clubs enough.  New this year, we will be preselling shirts for the game with the selected seniors’ names listed on the back.

Want more information about the game, to purchase a ticket, or know a business that might like to purchase an ad in the program?  Visit https://curecca.ejoinme.org/seniorselect19 or email our Community Coordinator Bridget Sadler at bridget.sadler@curekidscancer.com

Join us Saturday, April 27th at I-Square for our 10th Annual 5K & Fun Walk presented by The Cornerstone Group of Wells Fargo Advisors!  Start forming your teams and make sure to check out all our contests and challenges – including the new High School Challenge and High School Athletic Team and Club contest!  Click here for more information.

Register now to make sure you receive your race t-shirt!  T-shirts will be given to all participants registered by April 10th.  Click here to register!

Want more information about setting up a team, or ways to get involved?  Email our Community Coordinator Bridget Sadler at bridget.sadler@curekidscancer.com for more details.

Did you know that registration is now open for our 4th Annual Patrick Carr Memorial Golf Tournament on Monday, July 29th?  Don’t miss out on a day full of golf, food, games, and prizes.  The tournament has sold out the past two years, so be sure to secure your spot now!

Click here to register!

Sponsorship opportunities are still available.  Email our Community Coordinator Bridget Sadler at bridget.sadler@curekidscancer.com for more details.

Did you see the big news?  We are making September big this year!  Join us Sunday, September 29th at our Recipe for a CURE Sunday Brunch and help us close out Childhood Cancer Awareness Month in a big way!  Keep following us on social media and we continue to reveal more information!


It’s that time of year again!  Our Million Penny Drive is a fun way for students to get involved with CURE!  It’s really simple…once a school decides to participate, we drop off the jugs, and then staff and students bring in their pennies and other loose change.  Some schools even make it a competition between classrooms!  If you are interested in learning more about the program, how to have your child’s school participate, or would like to sign up for your school or organization (that’s right…the program is open to more than just schools!) to participate in the drive, please contact our Community Coordinator Bridget at bridget.sadler@curekidscancer.com.

Join us Saturday, April 6th as the Rochester Knighthawks host their Cradle for a CURE game.  More details coming soon…

Our friends at Awareness Coffee are helping to spread awareness about Pediatric Cancer with their coffee made from a specialty bean out of Peru, and roasted to perfection with subtle floral and chocolate notes.

A portion of proceeds will be donated to CURE, Golisano Children’s Hospital and Camp Good Days – your choice at checkout!

Buy the coffee here!

We are excited to announce that we have partnered with Rite Aid and are now an official KidCents charity! KidCents is a program created by The Rite Aid Foundation that allows Rite Aid customers to round up their purchases to the nearest dollar and donate their change to help support kid-focused charities.

Here’s how you can enroll in the KidCents program and round-up to our charity:

Step 1: Enroll in wellness+ with Plenti (Skip to Step 2 if you are already a wellness+ with Plenti member)

  • Visit KidCents.com and click ‘Sign In’ on the left
  • Click the box on the right to ‘Enroll in wellness+ with Plenti
  • Complete registration process for wellness+ with Plenti
  • Click through to finish signing up in Plenti
  • When finished with both processes, you will be directed to RiteAid.com

Step 2: Enroll in the KidCents Round-Up Program

  • Visit KidCents.com
  • You should see your account logged in on the left. If not, sign in with the account information.
  • Click ‘Start rounding up today!’ dial on the left

Step 3: Designate Your Charity

  • Click ‘Select a Charity’ on the left
  • Type [INSERT CHARITY NAME HERE] and click ‘Select This Charity’

By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!

Check This Out!

We are looking for those interested in participating in the

Volunteer Committee

or the

Program Committee

If that’s you, please contact Adella for more information at:  adella.ivison@curekidscancer.com

Help support St. Baldrick’s Foundation by eating at Buffalo Wild Wings on West Ridge Road in Greece!  Mention “Team C” to your server March 17th – May 4th for 10% of your total to be donated.

We Want To Hear From You!

Calling all friends of CURE!
We are in need of volunteers to assist with traffic control, and directing runners at our 10th Annual 5K & Fun Walk presented by The Cornerstone Group of Wells Fargo Advisors.  If you are interested in helping out, you can sign up for a corner along the route by clicking here.

To learn more about other ways you can help, contact Bridget at:
bridget.sadler@curekidscancer.com

Has CURE helped you? We would love to hear stories about how CURE has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com.

What programming would you like to see at CURE? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to Adella.Ivison@curekidscancer.com

We are currently looking for interns for Summer and Fall ’19!!

If you are interested, please email staff@curekidscancer.com



Wish List Items Needed:

We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support.  If you or a community group you belong to is looking for something to do for a charity, please consider donating items from CURE’s wish list so that we can continue to provide for our families.

Items Needed:

  • A cure for childhood cancer, blood diseases and brain tumors!
  • Gift cards for Wegmans, Tops, Wal-Mart, Target, McDonald’s, Wendy’s,  Coffee shops and gas cards
  • Weighted blankets
  • Essential oils
  • Mini diffusers
  • Playing cards and card games
  • Paper towels and toilet paper
  • Items for teens or young adults
  • Toys for kids under 3 years old

We ask that all items be new and recently purchased.  Thank you!

Bereavement Corner


Support

Bereavement Group:


The first Wednesday of each month

Hosted by Kiersten Kunick, Liz Conrow and Debra Zalar

200 Westfall Road, Rochester 14620

From 7:00pm-8:30pm

No reservations required


ROC City Sicklers:

ROC City Sicklers Logo

The third Tuesday of each month

UR Medicine

Conference room ACF A/B

6:00pm-7:30pm

Free Parking

Food provided by Wegmans


Are you looking for someone to help tutor your child? Boost provides supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. This group of teachers will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. Our tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors. For more information please go to www.boost4kids.com or contact Linda Bolan at 585-317-7269.

Educational Consultant Services from CURE

Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? CURE can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong.  If you would like to speak with Kathy Wissler either in person or via phone, please contact Kiersten Kunick , CURE Parent Advocate, at 585-697-4470, or call the CURE office at 585-473-0180 and she will make a referral. This service is provided free for CURE families.

Facebook Live:

Kiersten Kunick and Adella Ivison, Parent Advocates, go live on Facebook.

They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.

Have a topic you’d like to hear about? Feel free to reach out to Kiersten kiersten.kunick@curekidscancder.com or Adella adella.ivison@curekidscancer.com and share!

Brian Bisgrove Home of Courage:

The Brian Bisgrove Home of Courage , located an hour away from Rochester) is a retreat and respite home for families with children who have life-altering conditions.   Children and their families are invited into the beautiful , handsomely-appointed log cabin for a 3 or 4 day stay of rest and repose, all comepletely free of charge.  At the Home medically fragile childere can experience a different kind of healing, one of the mind and spirit.  Its a place to let go of anxiety and stress and focus on the family.

The website (with more detailed information on the Home and the application) is www.homeofcourage.com.

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