CURE main logo pic

Say Hello to…

Michelle joined CURE in May 2019 as a parent advocate after being involved with the organization volunteering for many years. She is the mom of two, and her son is the reason she is familiar with the different kinds of support CURE offers. He is a ten year cancer survivor, and being able to be a part of something that has been so helpful and caring for her family is what she hopes to help provide for others. She has spent the past five years teaching cosmetology students as a stylist herself, but is excited to step into this new role with others who share a similar journey.

Our most sincere condolences to the families & friends of:
Ronald (3/25/19)
Charlie (5/1/19)

A lot has happened in Aaron’s 12 years. On June 29th, 2017 Aaron was diagnosed with AML. The doctors decided a bone marrow transplant would be his best option and in September of 2017 he received his donor cells. Unfortunately in April of the following year, Aaron relapsed. After much discussion, in July, Aaron headed off to St. Jude with his mom, Yolanda, his little sister, Abby, now 4, and his big sister Alexis, now 17.  He returned in August and had his second bone marrow transplant in September, receiving cells from his mother.

Aaron has been cancer free since then but just recently experienced a bout of Graft vs. Host (GVH) that had him hospitalized for 2 months. During his initial bone marrow transplant time in the hospital, Aaron worked with the child life staff to organize a Halloween party and games for staff and his siblings. Always thinking of others, during his most recent stay, he organized a carnival for other children in the Children’s Hospital and he created a Pokémon Bingo game for teens, providing fun prizes for them as well.

We are excited to say that Aaron is now home but before he left, he rang the bell signifying his end of treatment. He is beyond happy to be home with his cat Coco who hasn’t left his side since he came home. He also loves playing his PS4 and Pokémon. He hopes to also get back to fishing with his uncle and going out on the boat as well as riding his bike and his scooter.

Aaron rang the end of chemo bell with his mom alongside him!

Food Bags for CURE Families:

We know it can hard to make ends meet over the summer with the kids home from school. We at CURE want to help! Please contact the office if you would like to stop by and pick up a food bag. We have staples like peanut butter and jelly and mac and cheese that we hope you’ll find helpful!
Please call the office (585-473-0180) or e-mail staff@curekidscancer.com to set up a pick up time!


We are looking to enhance our Programming here at CURE and need your help!
We are looking for volunteers to join our Programming Committee. You will be working alongside Adella as she evaluates current programs, develops a survey for CURE parents and caregivers to complete which will offer feedback on programming and develop new programming to ensure the needs of our families are met.

Are you up for the task?
E-mail Adella and join us!
Adella.Ivison@curekidscancer.com

GRYT Health (“GRYT”), an award-winning, mobile app-based social community for people affected by cancer, today announced it will host the first-ever Global Virtual Cancer Conference (GVCC19) on October 5, 2019. GVCC19 will give patients, caregivers, advocates and healthcare decision makers from around the globe a “hands-on” opportunity to collaborate towards creating a new patient-centric framework, through a full-day of interactive virtual sessions hosted on the GRYT digital platform. The conference aims to elevate the voices of those who have been profoundly impacted by cancer, to ensure their critically important and valuable ideas and experiences are central to future healthcare innovations, legislation and decisions.
To register and learn more, please visit:
https://www.globalvirtualcancerconference.com/en/

Thank you to all our amazing volunteers who attended our Volunteer Appreciation Dinner in May, and allowed us to celebrate YOU!  We are incredibly lucky to have you as a member of our CURE family and cannot thank you enough for all that you do!  Your kindness and generosity is inspiring, and a constant reminder to our families that they always have a shoulder to lean on.  Thank you for everything that you do!

Thank you so much to our wonderful friends at Home Goods!  We were so honored to be invited to their Greece Store Opening in May to receive this very generous grant.  At each store opening, Home Goods chooses a local charity to donate to, and we are so very humbled to have been selected as the charity of the Greece store.  Thank you so much for your kindness and incredible generosity!

Thank you to our wonderful volunteers that participated in United Way of Greater Rochester’s #DayofCaring last month!  We had groups from CaterTrax, Catholic Charities Community Services, and Paychex.  They spent the day cleaning and planting in our garden, painting our back fence, and putting together letters for our 11th Annual Recipe for a CURE Brunch.  We even won a $250 donation from the United Way of Greater Rochester because of the social media posts for the day! Thank you all so much for your enthusiasm and kindness!

Thank you to everyone that made this year’s 5K & Fun Walk possible!  Because of you, we were able to raise over $40,000!  We sincerely appreciate your kindness and support.  Thank you so much for reminding our families that they never face this battle alone.

Be sure to check out our special Newsletter for the 10th Annual 5K & Fun Walk presented by The Cornerstone Group of Wells Fargo Advisors.  https://curekidscancer.com/10th-annual-5k-fun-walk/

Thank you so much to our friend Addy and her family for stopping by our office last month to make a donation!  Her mom Heather and Grandma Leen crocheted hats and blankets and sold them, raising $254 for CURE and our families!  Thank you so much for your kindness!

Thank you to Marissa and Johncia for donating their time at our Manicures for Mom PNO!  Our moms had a great time and left with some beautiful nails.  We are so appreciative of your kindness and support of our families!

Thank you to all our amazing volunteers that donated their time at the PGA Senior Tour!  They worked hard in the concession stand helping to raise money and awareness for CURE!

Thank you to Crane Elementary School for hosting their Annual Fun Run Fundraiser for CURE!  This year they raised $2,500, and we even had a chance to visit and watch some the kiddos run!


Did you know that registration is now open for our 4th Annual Patrick Carr Memorial Golf Tournament on Monday, July 29th?  Don’t miss out on a day full of golf, food, games and prizes.  The tournament has sold out the past two years, so be sure to secure your spot now.

Click here to register!

Sponsorship opportunities are still available.  Email our Community Coordinator, Bridget Sadler at bridget.sadler@curekidscancer.com for more details.

Save the Date for another great day:
Our Charity Events’ Motorcycle Poker Run
$15 per motorcycle or car (plus $5 per passenger)
Take a scenic route while supporting CURE! Collect a playing card at each stop. The top three card hands WIN CASH!
Music, food and fun at the end of the ride at the Rush Creekside Inn!

That’s right! We are making BIG PLANS for the 2nd Annual #LiquidGoldforCURE Challenge! Do you own a restaurant that wants to increase awareness during September AND make a difference to local families?

Contact us today to learn more!
holly.dutcher@curekidscancer.com

Tickets are on sale now for our 11th Annual Recipe for a CURE Sunday Brunch on September 29th at Arbor at the Port!  Join us for some delectable culinary creations from the best chefs in Rochester, assisted by our very own CURE kids, and shop our delightful silent auction items.  Finish the day with our fantastic live auction.

Interested in purchasing tickets?  Visit https://curecca.ejoinme.org/brunch2019

Partnership opportunities are still available.  Visit https://curecca.ejoinme.org/BrunchSponsors2019 or contact our Community Coordinator, Bridget, at bridget.sadler@curekidscancer.com for additional information.

In Baby Boomer Baseball, Kravetz relives his youth, sharing fascinating tales from the golden era of baseball and observing the game’s changes through its steroid era and beyond.

Whether Kravetz is drawing on his awe for the game as a boy or on personal discussions with Gary Carter, Hank Bauer, Tommy John, Bob Mathias, Clete Boyer, Tim McCarver, and the former director of research of the National Baseball Hall of Fame, Tim Wiles, he shares stories that will rekindle your love for America’s pastime.

Our friend, author Robert Kravetz, will be donating $10 for every book purchased to CURE! Want to check out this wonderful book full of stories and stats? Contact him today: rkravetz@brightonsecurities.com or sfasciano@brightonsecurities.com

Have you been to Nosh recently? Their food is phenomenal. Chef Joe recently showcased his skills with his son Joey at the Senior PGA Tournament.

Be sure to visit Nosh and try their delicious foods, especially their Taquitos. When that item is purchased, $1 is donated to CURE!!

Our friends at Spencerport Insurance Agency have a great referral program currently. When someone is referred to their office for an insurance review, CURE will receive a $25 donation!! Visit their website to learn more: http://www.spencerportins.com/

Our friends at Awareness Coffee are helping to spread awareness about Pediatric Cancer with their coffee made from a specialty bean out of Peru, and roasted to perfection with subtle floral and chocolate notes.

A portion of proceeds will be donated to CURE, Golisano Children’s Hospital and Camp Good Days – your choice at checkout!

Buy the coffee here!

We are excited to announce that we have partnered with Rite Aid and are now an official KidCents charity! KidCents is a program created by The Rite Aid Foundation that allows Rite Aid customers to round up their purchases to the nearest dollar and donate their change to help support kid-focused charities.

Here’s how you can enroll in the KidCents program and round-up to our charity:

Step 1: Enroll in wellness+ with Plenti (Skip to Step 2 if you are already a wellness+ with Plenti member)

  • Click the box on the right to ‘Enroll in wellness+ with Plenti
  • Complete registration process for wellness+ with Plenti
  • Click through to finish signing up in Plenti
  • When finished with both processes, you will be directed to RiteAid.com

Step 2: Enroll in the KidCents Round-Up Program

  • You should see your account logged in on the left. If not, sign in with the account information.
  • Click ‘Start rounding up today!’ dial on the left

Step 3: Designate Your Charity

  • Click ‘Select a Charity’ on the left
  • Type [INSERT CHARITY NAME HERE] and click ‘Select This Charity’

By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!

We need help with our Julie Roberts Children’s Memorial Garden! Sign up for a week to adopt the garden this summer and lovingly care for it in memory of the sweet children we’ve lost.
Sign up here: https://www.signupgenius.com/go/70a0e44acaa2da6fd0-garden

Join Our Team!

We are currently looking for interns for Summer and Fall ’19!!

If you are interested, please email staff@curekidscancer.com

Has CURE helped you? We would love to hear stories about how CURE has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com.

What programming would you like to see at CURE? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to staff@curekidscancer.com



Wish List Items Needed:

We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support.  If you or a community group you belong to is looking for something to do for a charity, please consider donating items from CURE’s wish list so that we can continue to provide for our families.

Items Needed:

  • A cure for childhood cancer, blood diseases and brain tumors!
  • Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
  • Weighted blankets
  • Essential oils
  • Mini diffusers
  • Dry shampoo
  • Facial Cleansing Wipes
  • Cases of water
  • Items for teens or young adults
  • Toys for kids under 3 years old

We ask that all items be new and recently purchased.  Thank you!

Dads Hurt Too

People don’t always see the tears a dad cries,
His heart is broken too when his child dies.

He tries to hold it together and be strong,
Even though his world’s gone wrong.

He holds his wife as her tears fall,
Comforts her through it all,

He goes through his day doing what he’s supposed to do,
But a piece of his heart has been ripped away too.

So when he’s alone he lets out his pain,
And his tears come like falling rain.

His world has crashed in around him,
And a world that was once bright, has gone dim.

He feels he has to be strong for others,
But Dads hurt too, not just the Mothers,

He searches for answers but none are to be found,
He hides behind a mask when he is feeling down.

He smiles through his tears,
He struggles and holds in his fears.

But what you see on the outside is not always real,
Men don’t always show how they really feel.

So I’d like to ask a favor of you,
The next time you see a mother hurting over the loss of her child,
Please remember…..Dads Hurt Too!

Bereavement Group:

 

The first Wednesday of each month

Hosted by Kiersten Kunick, Parent Advocate, Liz & Paul Conrow and Deb Zalar, bereaved parents

200 Westfall Road, Rochester 14620

From 7:00pm-8:30pm

No reservations required


ROC City Sicklers:

ROC City Sicklers Logo

The third Tuesday of each month

UR Medicine

Conference room ACF A/B

6:00pm-7:30pm

Free Parking

Food provided by Wegmans


Are you looking for someone to help tutor your child? Boost provides supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. This group of teachers will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. Our tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors. For more information please contact Linda Bolan at 585-317-7269 or paperl@ottcmail.com

Educational Consultant Services from CURE

Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? CURE can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong.  If you would like to speak with Kathy Wissler either in person or via phone, please contact Kiersten Kunick , CURE Parent Advocate, at 585-697-4470, or call the CURE office at 585-473-0180 and she will make a referral. This service is provided free for CURE families.

Facebook Live:

Kiersten Kunick & Michelle Magin, Parent Advocates, go live on Facebook.

They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.

Have a topic you’d like to hear about? Feel free to reach out to Kiersten at kiersten.kunick@curekidscancder.com or Michelle at michelle.magin@curekidscancer.com

Brian Bisgrove Home of Courage:

The Brian Bisgrove Home of Courage, located an hour away from Rochester, is a retreat and respite home for families with children who have life-altering conditions.  Children and their families are invited into the beautiful, handsomely-appointed log cabin for a 3 or 4 day stay and rest and repose, all completely free of charge.  At the Home, medically fragile children can experience a different kind of healing, one of the mind and the spirit.  It’s a place to let go of anxiety and stress and focus on the family.

The website, with more detailed information on the Home and the application is:  www.homeofcourage.com.