CURE Childhood Cancer Association

July Newsletter

CURE main logo pic

Survivors Day Picnic 2018

 

We held our annual Survivors Day Picnic on Sunday June 3rd at Genesee Valley Park’s Roundhouse Shelter and what a special day it was!! The kids all had so much fun and were able to partake in a bunch of different activities thanks to all of our volunteers and vendors! We are so thankful for everyone who volunteered their time and services to make this such a fun day for our CURE kids! We couldn’t do what we do without all of the help we receive from the community.

Spotlight On Noah

“Noah is a 3 year old sports loving boy that is a little brother to 3 sisters and makes our family complete.  In August 2017, he was diagnosed with Embryonal Rhabdomyosarcoma after a mass was removed from his chin.  He kept an upbeat attitude throughout his 6 months of treatment which included chemotherapy and radiation therapy.  He ended treatment this past January.  He’s a huge Buffalo Bills fan and liked to breakdown the latest game to his doctors and nurses at treatment visits.  He is looking forward to playing soccer this summer and starting preschool in the fall.  We are so thankful for the amazing doctors, nurses and staff at Golisano Children’s Hospital and the Wilmot Cancer Institute as well as all the amazing staff at CURE for supporting our family both during treatment and now.  We couldn’t have made it through this past year without them and without the support of our extended family.”

The Summer Interns

“Shortly after we started here at CURE we jumped right in to getting ready for the Survivor’s Day Picnic. On June 3rd, we finally saw everyone’s hard work come together and it was amazing to see how happy all the kids and families were despite the weather. After Survivor’s Day, we immediately set to work on raising community awareness about Our Charity Events Motorcycle Poker Run which is taking place at the end of August and we are continuing to make sure things are in line for the 3rd Annual Patrick Carr Memorial Golf Tournament. Although October seems far away, we have also started projects for the 10th Annual Recipe for a Cure Sunday Brunch. We now recognize how much work and time goes into planning these events and are so happy to be able to help out this amazing organization.” – Giannette & Ella

Free CURE Programming and Events

We will be doing a Parents Night Out for an upcoming Red Wings Game! Check our Facebook page for more information in the next couple weeks for the exact date and time!

Thank you for your support!

A big thank you to the third grade class from Sodus Central School. Together they raised over $500 for CURE families!!

We would like to thank Michael Burneal, our Chairman of the board for all of his years of service with CURE. We are sad to see him go but know that he will always be a friend of CURE! Thank you so much for your dedication and commitment to this organization, we will certainly miss you!

Thank you so much to our friends at Worldstrong Athletics who made a very generous donation of $500 to CURE! Learn more about this awesome organization and check out their active wear below!

Upcoming Fundraisers

3rd Annual Patrick Carr Memorial Golf Tournament
presented by Brighton Securities

Monday, July 23, 2018
8:00 am – 6:00 pm
Chili Country Club
Join us for a great day of golf and showing support for local families coping with childhood cancer or chronic blood disorders. 

Purchase your foursome or sponsorship here!


Save the date! We are in need of grocery, gas and visa gift cards for our families. We will be holding Christmas in July from July 24 – 27. Stop in to the CURE office at 200 Westfall Road, make a donation and help us celebrate Christmas in July with some yummy Christmas treats!!

To donate online visit: curekidscancer.com/donate

With summertime starting we often have kids do lemonade stands for CURE. If you are planning on having one, let us know so we can stop by! We want to show our appreciation – plus we love lemonade and snacks!

Save the date! We will be holding another Peach Skin Sheets fundraiser in October! You get great quality sheets at a discounted price while helping out local families! What’s not to love?

Our friends at Embrace the Difference have a wide selection of beautiful pieces with one sure to be perfect for the Mother in your life! Be sure to check them out. CURE will receive a donation for your purchase, just be sure to let them know you support us!

Our friends at Awareness Coffee are helping to spread awareness about Pediatric Cancer with their coffee made from a specialty bean out of Peru, and roasted to perfection with subtle floral and chocolate notes.

A portion of proceeds will be donated to CURE, Golisano Children’s Hospital and Camp Good Days – your choice at checkout!

Buy the coffee here!

It’s that time of year, wash away the salt and traces of winter all while supporting CURE!

Click here to purchase!


We are excited to announce that we have partnered with Rite Aid and are now an official KidCents charity! KidCents is a program created by The Rite Aid Foundation that allows Rite Aid customers to round up their purchases to the nearest dollar and donate their change to help support kid-focused charities.

Here’s how you can enroll in the KidCents program and round-up to our charity:

Step 1: Enroll in wellness+ with Plenti (Skip to Step 2 if you are already a wellness+ with Plenti member)

  • Visit KidCents.com and click ‘Sign In’ on the left
  • Click the box on the right to ‘Enroll in wellness+ with Plenti
  • Complete registration process for wellness+ with Plenti
  • Click through to finish signing up in Plenti
  • When finished with both processes, you will be directed to RiteAid.com

Step 2: Enroll in the KidCents Round-Up Program

  • Visit KidCents.com
  • You should see your account logged in on the left. If not, sign in with the account information.
  • Click ‘Start rounding up today!’ dial on the left

Step 3: Designate Your Charity

  • Click ‘Select a Charity’ on the left
  • Type [INSERT CHARITY NAME HERE] and click ‘Select This Charity’

By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!


We Want To Hear From You!

Join Our Team!

We are currently looking for interns for Fall ’18!!

If you are interested, please email andrea.shaffer@curekidscancer.com or sam.corrigan@curekidscancer.com

Corn Hill Arts Festival, July 14 & 15 – Looking for volunteers to help us share with the community what CURE does at our booth!
Patrick Carr Memorial Golf Tournament, July 23
Park Ave Festival, August 4 & 5 – Looking for volunteers to help us sell fun CURE swag at our booth!

What new programming would you like to see at CURE? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to Andrea.Shaffer@curekidscancer.com

We are always looking to add more volunteers to our volunteer base at CURE! If you want to help local families by becoming a CURE volunteer, you can sign up here or you can email andrea.shaffer@curekidscancer.com to find out about upcoming volunteer opportunities!


Wish List Items Needed:

We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support.  If you or a community group you belong to is looking for something to do for a charity, please consider donating items from CURE’s wish list so that we can continue to provide for our families.

Items Needed:

  • A cure for childhood cancer, blood diseases and brain tumors!
  • Travel sized toiletries: Deodorant, toothpaste, toothbrushes (singular), shampoo and conditioner
  • Wicker or plastic baskets
  • Small pocket/purse-sized calendars
  • Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
  • Paper towels and toilet paper
  • Items for teens or young adults
  • Toys for kids under 5 years old

We ask that all items be new and recently purchased.  Thank you!


Bereaved Families Corner

They say there is a reason,

They say that time will heal.

But neither time nor reason,

Will change the way I feel.

For no-one knows the heartache

That lies behind our smiles

No-one knows how many times

We have broken down and cried

We want to tell you something,

So there won’t be any doubt.

You are so wonderful to think of,

But so hard to live without. 

Support:

Bereavement Group:

illustration of the forget-me-not flowers over white background

The first Wednesday of each month

Hosted by Kiersten Kunick and Adella Ivison

200 Westfall Road, Rochester 14620

Due to the holiday the next meeting is July 11, 2018

From 7-830pm

No reservations required


ROC City Sicklers:

ROC City Sicklers Logo

The third Tuesday of each month

UR Medicine

Conference room ACF A/B

6-730pm

Free Parking

Food provided by Wegmans


Are you looking for someone to help tutor your child? Boost provides supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. This group of teachers will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. Our tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors. For more information please go to www.boost4kids.com or contact Linda Bolan at 585-317-7269.

Educational Consultant Services from CURE

Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? CURE can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong.  If you would like to speak with Kathy Wissler either in person or via phone, please contact Kiersten Kunick , CURE Parent Advocate, at 585-697-4470, or call the CURE office at 585-473-0180 and she will make a referral. This service is provided free for CURE families.

Outpatient/On treatment Support Group:

Kiersten Kunick will host an Outpatient/On treatment Support Group for parents at the CURE office once per month.

This meeting will be held from 12pm – 1pm on the 2nd Wednesday of every month.

Join us and connect with other outpatient caregivers!

Feel free to reach out to Kiersten kiersten.kunick@curekidscancer.com

Long-term Survivor Support Group:

Adella Ivison will host a Long-term Survivorship Support Group for caregivers at the CURE office once per month.

This meeting will be held from 6:30pm – 8pm on the 4th Wednesday of every month.

Join us and connect with others about late effects and more.

Feel free to contact Adella at adella.ivison@curekidscancer.com

Facebook Live:

Kiersten Kunick and Adella Ivison, Parent Advocates, go live on Facebook.

They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.

Have a topic you’d like to hear about? Feel free to reach out to Kiersten kiersten.kunick@curekidscancder.com or Adella adella.ivison@curekidscancer.com and share!

Brian Bisgrove Home of Courage:

The Brian Bisgrove Home of Courage , located an hour away from Rochester) is a retreat and respite home for families with children who have life-altering conditions.   Children and their families are invited into the beautiful , handsomely-appointed log cabin for a 3 or 4 day stay of rest and repose, all comepletely free of charge.  At the Home medically fragile childere can experience a different kind of healing, one of the mind and spirit.  Its a place to let go of anxiety and stress and focus on the family.

The website (with more detailed information on the Home and the application) is www.homeofcourage.com.