CURE main logo pic

Hi, I’m Marleese, CURE’s summer intern! I’m getting ready to start my senior year at The College at Brockport, majoring in public relations and minoring in chemistry (yes, I know that’s a weird combination). CURE is special to me because of my experiences with my brother Silas, who lost his battle with cancer in 2001, and my sister Zuriel, who became a cancer survivor in 2017. I started my internship just in time to help with the Survivors’ Day Picnic, and it was great to see all the families there enjoying themselves. Fun fact: the truck we rented to transport picnic supplies to the park had a picture of me (and my brother) on it!

Now I’m helping make sure there are lots of great prizes ready for the Patrick Carr Memorial Golf Tournament this month! I’m also organizing the Motorcycle Poker Run, which will happen on August 25. I look forward to meeting more CURE families and volunteers, so come out to these events and say hello!

Our most sincere condolences to the friends & family of:

Tillman “Myles” (6/23)

Evan is a 14 year old teenager who enjoys being adventurous outdoors with his family and friends. Going to the lake during the summer on his boat to fish while staying in his camper, going hunting, or visiting amusement parks to go on roller coasters are just some of the things he likes to do. Evan is also a basketball player and often attends sporting events with his friends. In the winter, he enjoys snowboarding as well.

In July of 2017, many things changed for Evan and his family when he was diagnosed with T-cell Acute Lymphoblastic Leukemia (ALL). After going through two years of treatment, Evan unfortunately found out in April of 2019 that he had relapsed. A donor was found and was able to receive his bone marrow transplant on June 25th, 2019 with his entire family supporting him. His sister Zayta, and brother Carter, along with his parents, Nikki and Jimmy, have been by his side – even with Zayta’s graduation from high school, Nikki’s graduation with her LPN and Carter playing travel baseball – all happening the same week as the transplant.

Evan is looking forward to going home next month to be able to visit with his friends and play on his PS4 and see his two dogs again. He is especially excited to be able to travel to the Bahamas and enjoy jet skiing, snorkeling, and doing some deep sea fishing once he is able to.

Congratulations to Landen who rang the bell on June 4th!  We were so happy to have Landen and his family stop by to celebrate his end of treatment bell ringing! We had his favorite food, some presents, and Landen added his handprint to our Handprints of Hope Wall.

Congratulations to Evan who rang the bell June 27th!  Many of you followed Evan’s journey on Instagram when he did an Instagram takeover.  Check out the video to the right of Evan receiving a very special surprise at the CURE Office!

End of chemo handprint celebration at the CURE office with Evan. A special thanks to Roc Knighthawks for special ordering Evan's jersey!! #evantakesoncancerwithcure

Posted by CURE Childhood Cancer Association on Thursday, June 27, 2019

Food Bags for CURE Families:

We know it can hard to make ends meet over the summer with the kids home from school. We at CURE want to help! Please contact the office if you would like to stop by and pick up a food bag. We have staples like peanut butter and jelly and mac and cheese that we hope you’ll find helpful!
Please call the office (585-473-0180) or e-mail staff@curekidscancer.com to set up a pick up time!

Please RSVP to staff@curekidscancer.com if you want to join us! We hope to SEA you there. It’s going to be BOAT LOADS of fun!

The Necklace by Cheryl Jarvis

“One day in Ventura, California, Jonell McLain saw a beautiful diamond necklace in a jewelry store window and wondered: Why are personal luxuries so plentiful yet accessible to so few? What if we shared what we desired? Several weeks, dozens of phone calls, and one great leap of faith later, Jonell and twelve other women bought the necklace together–to be passed along among them all.

The dazzling treasure weaves in and out of each woman’s life, reflecting her past, defining her present, making promises for her future. Lending sparkle in surprising and unexpected ways, the necklace comes to mean something dramatically different to each of the thirteen women. With vastly dissimilar histories and lives, they transcend their individual personalities and politics to join together in an uncommon journey–and what started as a quirky social experiment becomes something far richer and deeper.”

We’d love for you to join us.
Can’t get your hands on the book? Contact the office and we will help! We don’t want not being able to access the book to keep you from participating!

Kindly RSVP to staff@curekidscancer.com if you will be joining us!


It’s SHORE to be a good time. Come SEAS the Day with us!
Please RSVP to staff@curekidscancer.com
Parents and Caregivers welcome!

GRYT Health (“GRYT”), an award-winning, mobile app-based social community for people affected by cancer, today announced it will host the first-ever Global Virtual Cancer Conference (GVCC19) on October 5, 2019. GVCC19 will give patients, caregivers, advocates and healthcare decision makers from around the globe a “hands-on” opportunity to collaborate towards creating a new patient-centric framework, through a full-day of interactive virtual sessions hosted on the GRYT digital platform. The conference aims to elevate the voices of those who have been profoundly impacted by cancer, to ensure their critically important and valuable ideas and experiences are central to future healthcare innovations, legislation and decisions.
To register and learn more, please visit:
https://www.globalvirtualcancerconference.com/en/

Thank you to our wonderful friends at The Paychex Risk Department for stopping by yesterday to donate some toys, gift cards, and money they raised! Thank you for taking such great care of our families!

We have the best volunteers here at CURE!!  Thank you to all our wonderful friends for making our Survivors’ Day Picnic 2019 a great time!  We cannot thank you enough for your dedication and kindness to our CURE families.

Thank you to all our wonderful friends who for created Birthday Fundraisers on Facebook this spring!  Your support and kindness is greatly appreciated!


Did you know that registration is now open for our 4th Annual Patrick Carr Memorial Golf Tournament on Monday, July 29th?  Don’t miss out on a day full of golf, food, games and prizes.  The tournament has sold out the past two years, so be sure to secure your spot now.

Click here to register!
As of July 3, 2019, we only have THREE foursomes left!

Sponsorship opportunities are still available – but time is running out!  Email our Community Coordinator Bridget Sadler at bridget.sadler@curekidscancer.com for more details.

Save the Date for another great day:
Our Charity Events’ Motorcycle Poker Run
$15 per motorcycle or car (plus $5 per passenger)
Take a scenic route while supporting CURE! Collect a playing card at each stop. The top three card hands WIN CASH!
Music, food and fun at the end of the ride at the Rush Creekside Inn!

Join us this month as we celebrate Christmas in July! Our wishlist includes gas gift cards, essential oils & mini oil diffusers, electric heating pads, and items for teenagers.

Seeking partners to show us how CHEESEY you can be!
Restaurants are invited to participate in the 2nd Annual
#LiquidGoldforCURE Challenge THIS September.
Contact Holly for details: holly.dutcher@curekidscancer.com

Want to make a difference for our families?  We have some great partnership opportunities available for our 11th Annual Recipe for a CURE Sunday Brunch on Sunday, September 29th at Arbor at the Port.  

Find out more by clicking here or by emailing our Community Coordinator bridget.sadler@curekidscancer.com.

Mark your calendars! Our Peachskin Sheets Fundraiser is scheduled for November. These sheets are amazing! They are incredibly soft, and wrinkle free, making them the perfect holiday gift. And as a bonus, a portion of your total is donated back to CURE. That means for every sheet set you purchase, you are really giving two gifts!! More details will be available as we get closer to November.

In Baby Boomer Baseball, Kravetz relives his youth, sharing fascinating tales from the golden era of baseball and observing the game’s changes through its steroid era and beyond.

Whether Kravetz is drawing on his awe for the game as a boy or on personal discussions with Gary Carter, Hank Bauer, Tommy John, Bob Mathias, Clete Boyer, Tim McCarver, and the former director of research of the National Baseball Hall of Fame, Tim Wiles, he shares stories that will rekindle your love for America’s pastime.

Our friend, author Robert Kravetz, will be donating $10 for every book purchased to CURE! Want to check out this wonderful book full of stories and stats? Contact him today: rkravetz@brightonsecurities.com or sfasciano@brightonsecurities.com

Our friends at Awareness Coffee are helping to spread awareness about Pediatric Cancer with their coffee made from a specialty bean out of Peru, and roasted to perfection with subtle floral and chocolate notes.

A portion of proceeds will be donated to CURE, Golisano Children’s Hospital and Camp Good Days – your choice at checkout!

Buy the coffee here!

We are excited to announce that we have partnered with Rite Aid and are now an official KidCents charity! KidCents is a program created by The Rite Aid Foundation that allows Rite Aid customers to round up their purchases to the nearest dollar and donate their change to help support kid-focused charities.

Here’s how you can enroll in the KidCents program and round-up to our charity:

Step 1: Enroll in wellness+ with Plenti (Skip to Step 2 if you are already a wellness+ with Plenti member)

  • Click the box on the right to ‘Enroll in wellness+ with Plenti
  • Complete registration process for wellness+ with Plenti
  • Click through to finish signing up in Plenti
  • When finished with both processes, you will be directed to RiteAid.com

Step 2: Enroll in the KidCents Round-Up Program

  • You should see your account logged in on the left. If not, sign in with the account information.
  • Click ‘Start rounding up today!’ dial on the left

Step 3: Designate Your Charity

  • Click ‘Select a Charity’ on the left
  • Type [INSERT CHARITY NAME HERE] and click ‘Select This Charity’

By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!

Looking for ways to give back? Consider donating blood. The Spencerport Fire District will be hosting a blood drive on July 10th in memory of Will Beeman. Drop by or make an appointment and make a difference.

We need help with our Julie Roberts Children’s Memorial Garden! Sign up for a week to adopt the garden this summer and lovingly care for it in memory of the sweet children we’ve lost.
Sign up here: https://www.signupgenius.com/go/70a0e44acaa2da6fd0-garden

We need help at this year’s Park Avenue Festival August 3rd and 4th!
Sign up to represent CURE, sell our super cool mermaid headbands and sunglasses and increase awareness of our organization here.

Join Our Team!

We are currently looking for interns for Fall ’19!!

If you are interested, please email staff@curekidscancer.com

Has CURE helped you? We would love to hear stories about how CURE has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com.

What programming would you like to see at CURE? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to staff@curekidscancer.com

Email Brittany Charles in you are interested in learning more about CURE’s new Young Professional Group!
charlebc11@gmail.com



Wish List Items Needed:

We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support.  If you or a community group you belong to is looking for something to do for a charity, please consider donating items from CURE’s wish list so that we can continue to provide for our families.

Items Needed:

  • A cure for childhood cancer, blood diseases and brain tumors!
  • Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
  • Weighted blankets
  • Essential oils
  • Mini diffusers
  • Dry shampoo
  • Paper towels and toilet paper
  • Facial Cleansing Wipes
  • Cases of water
  • Items for teens or young adults
  • Toys for kids under 3 years old
  • Playing cards and card games
  • Word searches, adult coloring books and crosswords

We ask that all items be new and recently purchased.  Thank you!

Losing sleep after you lose a child is fairly common.

Have you ever had one of those nights when you tossed and turned and couldn’t turn the lights off in your brain?

Did you know that sleepless nights tend to increase when you are in the midst of a major life transition or having to adjust to the loss of a loved one, a job change, or disappointing news about your health?

In this video, Dr. Michael Breus, America’s Sleep Doctor, and I talk about how you can improve the quality of your sleep when stress is high and you’re in the throes of grief.

Michael J. Breus, Ph.D., is a Clinical Psychologist and both a Diplomate of the American Board of Sleep Medicine and a Fellow of The American Academy of Sleep Medicine. With a specialty in Sleep Disorders, he is one of only 168 psychologists in the world with his credentials and distinction. Dr. Breus is on the clinical advisory board of The Dr. Oz Show and appears regularly on the show.

Check out the video here to learn more.

Bereavement Group:

 

The first Wednesday of each month

Hosted by Kiersten Kunick, Parent Advocate, Liz & Paul Conrow and Deb Zalar, bereaved parents

200 Westfall Road, Rochester 14620

From 7:00pm-8:30pm

No reservations required


ROC City Sicklers:

ROC City Sicklers Logo

The third Tuesday of each month

UR Medicine

Conference room ACF A/B

6:00pm-7:30pm

Free Parking

Food provided by Wegmans


Are you looking for someone to help tutor your child? Boost provides supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. This group of teachers will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. Our tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors. For more information please contact Linda Bolan at 585-317-7269 or paperl@ottcmail.com

Educational Consultant Services from CURE

Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? CURE can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong.  If you would like to speak with Kathy Wissler either in person or via phone, please contact Kiersten Kunick , CURE Parent Advocate, at 585-697-4470, or call the CURE office at 585-473-0180 and she will make a referral. This service is provided free for CURE families.

Facebook Live:

Kiersten Kunick and Michelle Magin, Parent Advocates, go live on Facebook.

They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.

Have a topic you’d like to hear about? Feel free to reach out to Kiersten at kiersten.kunick@curekidscancer.com or Michelle at Michelle.Magin@curekidscancer.com

They will do their best to answer your questions and address topics you’d like to hear about!

Brian Bisgrove Home of Courage:

The Brian Bisgrove Home of Courage, located an hour away from Rochester, is a retreat and respite home for families with children who have life-altering conditions.  Children and their families are invited into the beautiful, handsomely-appointed log cabin for a 3 or 4 day stay and rest and repose, all completely free of charge.  At the Home, medically fragile children can experience a different kind of healing, one of the mind and the spirit.  It’s a place to let go of anxiety and stress and focus on the family.

The website, with more detailed information on the Home and the application is:  www.homeofcourage.com.

Click here to add your own text