CURE Childhood Cancer Association

February Newsletter

CURE main logo pic

A Message from the Executive Director

Hi there, CURE Supporters!

I wanted to take a minute to introduce our staff to all of you. We have some new faces, so I want to make sure all of you know who to contact with any questions or concerns.

Kiersten and Adella: Represent CURE at the hospital (Golisano Children’s Hospital, Outpatient Clinic and Wilmot Cancer Institute). They have cell phones that can put you in direct contact with them. (A special thank you to the Genesee Valley Medical Foundation’s James Zimmer M.D. Mini-Grant for funds that paid for the Parent Advocate cell phones this year!) If you have any questions, concerns or need something, feel free to reach out to them! Kiersten’s number is: 585-697-4480 and Adella’s number is: 585-697-4836. They are parents of long-term cancer survivors; they’ve been in your shoes. They can help! Stay in touch with them when you are admitted to the hospital or have appointments in case we don’t know about you being in the hospital! Kiersten and Adella are the friendly faces behind distributing parking passes, food vouchers and putting you in touch with the best resources around to provide support!

Sam: Sam was previously our Program Coordinator, but moved into the role of Community Coordinator in November. She is the person to contact with any fundraiser questions. If you want to plan your own fundraiser to benefit CURE, she would be the one to get a hold of! There is a lot of planning that goes into our fundraising events, so if you attend one of our events and have feedback, she’d love to hear it! It’s also Sam’s role to connect in the community and foster relationships with potential partners. If your business is interested in partnering with CURE, reach out to Sam. She also maintains our social media accounts. If you have any suggestions for content for our Newsletter or social media, reach out to Sam!

Andrea: Andrea joined our team as our Program Coordinator in November. She is in charge of all the FREE programming for our families. Programming includes annual events like the Brick Laying Ceremony, Remembrance Service, Morton Family Fun Day, Survivors’ Day Picnic and Holiday Party. She also coordinates all the ad hoc fun programming like Parents’ Night Out, free events for our kids and partnerships with local sports teams. If you have any questions or feedback in these areas, send Andrea a message! All volunteer opportunities are coordinated through Andrea as well. If you want to volunteer, need community service hours for school or have an idea for a volunteer event, Andrea can help! She also partners with Sam on the Newsletter and social media content.

Colette: Colette JUST joined us a few weeks ago as our Bookkeeper and Office Admin. She pays the bills, maintains budgets and keeps me in line! She will be assisting with donation acknowledgments and tracking as well.

Emily and Gina: Our fearless and VERY capable interns this semester. These two have been with us just a couple of weeks, but have proven their power house abilities! Their main project this semester is running the Penny Drive! If your school or business would like to participate, shoot them a message – we would love to have you working with us! (staff@curekidscancer.com) They are always ready to jump to new tasks and work through questions. We are so thankful to have them with us this semester!

I would love for all of you to meet our incredible team. If you have time and want to stop in to introduce yourself, say hello or check in, we gladly invite you! We are truly looking forward to another exciting year at CURE.

Spotlight On Buddy

Thomas “Buddy” Greggs

Thomas “Buddy” Greggs is a sweet 8 years old boy who is in 3rd grade this year! Anyone who knows Thomas calls him by his nickname Buddy. Buddy has Sickle Cell Disease and is just like your average 8-year-old. He loves playing with Legos, toy cars and watching Minecraft videos on YouTube. When the weather is nice you can find him outside playing football. His favorite food is pizza and his favorite colors are Christmas and Halloween colors.

“They helped me out a lot. Especially with parking passes and food vouchers in the hospital. They are always there to check on me when we’re in the hospital. They are so helpful at the holidays. I love CURE they’re like a family. If you ever need help they’ll be there.” – Buddy

Bell Ringing!

Congratulations Kelly!!!

On January 16th, Kelly was able to ring the bell of hope next to her family members signifying her last chemo treatment at Golisano Children’s Hospital at Strong!

Congrats Zuriel!!! 

 On January 23rd surrounded by her loving family, Zuriel rang the bell of hope signifying her last chemo treatment at Golisano Children’s Hospital at Strong!

Congratulations Noah!!!

On January 24th surrounded by his supporting team, Noah rang the bell of hope signifying his last chemo treatment at Golisano Children’s Hospital at Strong!

The Winter Interns

My name is Emily Costanzo, I am a senior at The College at Brockport and I am studying public health education. After graduation in May, I plan on continuing to work in non-profits in the Rochester area, while studying to become a Child Life Specialist.  I am so grateful to be interning at CURE. I have been here for a few weeks now and I can truly feel the impact that CURE has on the Rochester community. It is very encouraging when you hear parents speak so highly of CURE. One parent stated “[CURE] really makes this roller coaster ride a soft landing!”. I am so excited to continue my internship and participate in uplifting events and FUNdraisers that occur all over the Rochester area.

My name is Gina Zampatori and I am a senior at The College at Brockport. I am studying public health education and after I graduate in May of this year, I will begin Brockport’s nursing program. I first found out about this WONDERFUL organization through a professor who had referred students to CURE in previous years. After some research and an interview with Executive Director Holly Dutcher and Community Coordinator Samantha Corrigan, I knew that CURE was the perfect internship site for me! I have always been passionate about helping others through difficult times and I am thrilled to have found and work with such an amazing organization that provides so much for the local community! I am excited to take part in upcoming events and can’t wait to start making a difference!

We were given the opportunity to take charge of this years “Million Penny Drive”. This fundraiser entails recruiting local schools and businesses and encouraging them to donate their spare change to CURE so that we can continue to provide local families support through their difficult times. Our goal this year is to raise over $7,000; we plan on achieving this goal by reaching out to as many establishments as possible.

We are also working very closely with Holly, Sam, and Andrea and helping with tasks around the office and assisting with planning events as well as taking part in those events.

We are grateful for the opportunity to work with CURE Childhood Cancer Association and we eager to learn more about the workings of this fantastic organization!

Free CURE Programming and Events

CURE kids and parents, are you looking for something to do over February Break? Come join us at Gilda’s Club Rochester, NY on February 19th at 12:00pm for a fun cooking class with Chef Alex Brand. This is a free event for CURE kids and parents! Please RSVP by Wednesday February 14th to: andrea.shaffer@curekidscancer.com

SAVE the DATE!

Save the date for our 2nd Annual Easter Egg Hunt presented by our friends at A.P. Enterprises Property Services at the White House Lodge, Webster park!! Saturday March 31st at 12:00pm! This is a free event for our CURE families!

We request RSVP’s be submitted by March 23rd to: andrea.shaffer@curekidscancer.com

We will have details for the next Parents Night Out in the coming week! Stay tuned to our social media for the date and time for this event for our CURE parents!

We Need Your Help!

We are in need of volunteers for Saturday March 17th for the Celtic Family Faire at the Rochester Riverside Hotel during the St. Patrick’s Day Parade!
The Celtic Family Faire has fun family activities and is an opportunity to share CURE and our mission with the community.

Please e-mail andrea.shaffer@curekidscancer.com to volunteer!

Art Work Needed

We have a “Wall of Fame” at the Twelve Corners Starbucks that features artwork of our CURE kids. We would love to feature your work and the wall could use a little love. Please do not include last names on your pieces. They can be sent to the CURE office (CURE Childhood Cancer Association, ATTN: Andrea Shaffer, 200 Westfall Road, Rochester, NY 14620) or given to Kiersten or Adella at the hospital.

Upcoming Fundraisers

It’s a jungle out there…
Help us support families as they navigate their journeys by participating in our 9th Annual 5k and Fun Walk
presented by The Cornerstone Group of Wells Fargo Advisors.

When: April 28, 2018

Where: Longhouse Shelter, Seneca Park

5k Run and Fun Walk kicks off at 9:30 AM

Price for registration through March 31st is $15.  This includes a CURE bracelet and CURE sunglasses.
PRICING INCREASES TO $20 ON APRIL 1ST AND $25 THE DAY OF THE EVENT.

Raise additional funds through donations and/or fundraising teams.  Your direct donation and those made to your fundraising page contribute to your level of reward.

Raise: 
$30- receive a cotton t-shirt and CURE sunglasses 
$60- receive a tech t-shirt and CURE sunglasses 
$100- receive a hooded sweatshirt and CURE sunglasses

Assemble your team and gather your crew! Sign up today here! 


31st Annual Senior Select Hockey Game

William J Quinlan Memorial Hockey Tournament 

Thursday, March 15, 2018

31st Annual Senior Select Hockey Game

Dedicated to the loving memory of William & Margeurite Quinlan.
 
 Where:Bill Gray’s Regional Iceplex
What: CURE will be holding its 31st Annual Select Memorial hockey game, featuring Section V’s top senior players. These players will face off one game at 7:00 pm.

Purchase your tickets here!

Can’t make it to the game, but still want to help? YOU can make a difference through purchasing an ad for the program book for the game! Options include full, half, quarter and business card sized ads! If you are a past player and would like to give back, make sure to purchase an ad in our throwback/memory section of the program. Purchase your ad here!


Purchase your tickets here!

Cradle for the CURE! 

Come out and help raise awareness and donations for CURE Childhood Cancer Association as well as have a fun night out with the Rochester Knighthawks! Get your group together and cheer on your Rochester Knighthawks as they take on the Colorado Mammouth on March 31st at 7:30 pm.

Purchase your ticket here, $5 will be given back to CURE. When you purchase, you’ll receive your very own referral link to share with your friends, family and coworkers. Anyone who buys from your link will automatically be seated with you. All fans will receive their tickets via email, two days before the event.

Additionally, this is a special game for CURE! There will be an EXCLUSIVE jersey auction with proceeds benefiting our organization as well as t-shirt sales benefiting CURE. It’s going to be a GREAT night of raising awareness and funds for our families!

Our friends at Mint Salon have kindly offered to host this incredible series of events this year to support our families. For a $10 donation you can get your hair braided! Here’s a list of upcoming dates:

March 1st, 2018 at the Scotland Yard Pub 187 Saint Paul Street Rochester, NY 14604
March 15th, 2018 at the Dragonfly Tavern 725 Park Avenue Rochester, NY 14607
March 29th, 2018 at Parkleigh 215 Park Avenue Rochester, NY 14607
April 12th, 2018 at the Record Archive 33 1/3 Rockwood Street Rochester, NY 14610
May 10th, 2018 at the Scotland Yard Pub 187 Saint Paul Street Rochester, NY 14604
May 24th, 2018 at The Blossom Road Pub 198 Winton Road North Rochester, NY 14610

Shop the Embrace the Difference collection and make a difference! $10 – $100 is donated to CURE with every purchase! Stop in at Reeds Jenns or check out the Embrace the Difference collection online

Our friends at Awareness Coffee are helping to spread awareness about Pediatric Cancer with their coffee made from a specialty bean out of Peru, and roasted to perfection with subtle floral and chocolate notes.

A portion of proceeds will be donated to CURE, Golisano Children’s Hospital and Camp Good Days!

Buy the coffee here!

Have you started your Valentines Day shopping yet? Don’t forget to use Amazon Smile and designate CURE for an easy way to shop and give back at the same time!

It’s that time of year, wash away the salt and traces of winter all while supporting CURE!

Click here to purchase!


We are excited to announce that we have partnered with Rite Aid and are now an official KidCents charity! KidCents is a program created by The Rite Aid Foundation that allows Rite Aid customers to round up their purchases to the nearest dollar and donate their change to help support kid-focused charities.

Here’s how you can enroll in the KidCents program and round-up to our charity:

Step 1: Enroll in wellness+ with Plenti (Skip to Step 2 if you are already a wellness+ with Plenti member)

  • Visit KidCents.com and click ‘Sign In’ on the left
  • Click the box on the right to ‘Enroll in wellness+ with Plenti
  • Complete registration process for wellness+ with Plenti
  • Click through to finish signing up in Plenti
  • When finished with both processes, you will be directed to RiteAid.com

Step 2: Enroll in the KidCents Round-Up Program

  • Visit KidCents.com
  • You should see your account logged in on the left. If not, sign in with the account information.
  • Click ‘Start rounding up today!’ dial on the left

Step 3: Designate Your Charity

  • Click ‘Select a Charity’ on the left
  • Type [INSERT CHARITY NAME HERE] and click ‘Select This Charity’

By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!


Thank you for your support!

Our friends at Cordello’s Pizzeria held a fundraiser in loving memory of Lydia Tata. They donated $2 of every large pizza sold over one week to CURE and raised $200!

Thank you so much to the West Irondequoit Field Hockey team who held a fundraiser for CURE! They raised almost $900 for our families!! We are so thankful for the community’s support!

Thank you to Painting with a Twist who held a Painting with a Purpose night for CURE! They raised over $300 for our families! And thank you to Marks Pizzeria, Qdoba and The Melting Pot who donated food for this event!

Thank you to Corey and Jack who initiated a dress down day at Holy Cross with their fourth grade class in loving memory of their classmate Ashley Nagel. They raised $533 for CURE families! We are so appreciative of your awesome support!

We Want To Hear From You!

Has CURE helped you? We would love to hear stories about how CURE has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com.

What programming would you like to see at CURE? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to staff@curekidscancer.com


Wish List Items Needed:

We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support.  If you or a community group you belong to is looking for something to do for a charity, please consider donating items from CURE’s wish list so that we can continue to provide for our families.

Items Needed:

  • A cure for childhood cancer, blood diseases and brain tumors!
  • Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
  • Small pocket/purse-sized calendars
  • Paper towels and toilet paper
  • Items for teens or young adults
  • Toys for kids under 3 years old

We ask that all items be new and recently purchased.  Thank you!


Bereaved Families Corner

My Memory Library
By:  Sarah Blackstone

“Imagine if I was given one moment,

just a single slice of my past.
I could hold it close forever,
and that moment would always last.

I’d put the moment in a safe,
within my hearts abode.
I could open it when I wanted,
and only I would know the code.

I could choose a time of laughing,
a time of happiness and fun.
I could choose a time that tried me,
through everything I’ve done.

I sat and thought about what moment,
would always make me smile.
One that would always push me,
to walk that extra mile.

If I’m feeling sad and low,
if I’m struggling with what to do.
I can go and open my little safe,
and watch my moment through.

There are moments I can think of,
that would lift my spirits everytime.
The moments when you picked me up,
when the road was hard to climb.

For me to only pick one moment,
to cherish, save and keep,
Is proving really difficult,
as I’ve gathered up a heap!

I’ve dug deep inside my heart,
found the safe and looked inside,
there was room for lots of moments,
in fact hundreds if I tried.

I’m building my own little library,
embedded in my heart,
for all the moments spent with you,
before you had to part.

I can open it up whenever I like,
pick a moment and watch it through,
My little library acts as a promise,
I’ll never ever forget you”

For more poems on dealing with grief, click here

Our most sincere condolences…

Willow Pickard – January 10th 

Support:

Bereavement Group:

illustration of the forget-me-not flowers over white background

The first Wednesday of each month

Hosted by Kiersten Kunick and Adella Ivison

200 Westfall Road, Rochester 14620

Next meeting is March 7, 2018

From 7-830pm

No reservations required


ROC City Sicklers:

ROC City Sicklers Logo

The third Tuesday of each month

UR Medicine

Conference room ACF A/B

6-730pm

Free Parking

Food provided by Wegmans


Are you looking for someone to help tutor your child? Boost provides supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. This group of teachers will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. Our tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors. For more information please go to www.boost4kids.com or contact Linda Bolan at 585-317-7269.

Educational Consultant Services from CURE

Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? CURE can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong.  If you would like to speak with Kathy Wissler either in person or via phone, please contact Kiersten Kunick , CURE Parent Advocate, at 585-697-4470, or call the CURE office at 585-473-0180 and she will make a referral. This service is provided free for CURE families.

Outpatient/On treatment Support Group:

Kiersten Kunick will host an Outpatient/On treatment Support Group for parents at the CURE office once per month.

This meeting will be held from 12pm – 1pm on the 2nd Wednesday of every month.

Join us and connect with other outpatient caregivers!

Feel free to reach out to Kiersten kiersten.kunick@curekidscancer.com

Long-term Survivor Support Group:

Adella Ivison will host a Long-term Survivorship Support Group for caregivers at the CURE office once per month.

This meeting will be held from 6:30pm – 8pm on the 4th Wednesday of every month.

Join us and connect with others about late effects and more.

Feel free to contact Adella at adella.ivison@curekidscancer.com

Facebook Live:

Kiersten Kunick and Adella Ivison, Parent Advocates, go live on Facebook every other Wednesday at 12pm.

They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.

Have a topic you’d like to hear about? Feel free to reach out to Kiersten kiersten.kunick@curekidscancder.com or Adella adella.ivison@curekidscancer.com and share!

Brian Bisgrove Home of Courage:

The Brian Bisgrove Home of Courage , located an hour away from Rochester) is a retreat and respite home for families with children who have life-altering conditions.   Children and their families are invited into the beautiful , handsomely-appointed log cabin for a 3 or 4 day stay of rest and repose, all comepletely free of charge.  At the Home medically fragile childere can experience a different kind of healing, one of the mind and spirit.  Its a place to let go of anxiety and stress and focus on the family.

The website (with more detailed information on the Home and the application) is www.homeofcourage.com.