Checking in with Holly

It seems as though in the blink of an eye, the year is more than half over.
How does this happen so quickly, this change? In thinking about it, though, it makes sense.

“Life is what happens when you’re busy making plans.”
Here at CURE, we are constantly making plans. Our latest endeavor is our mission to Paint the town Gold and Red during September to honor the warriors – the children who bravely face a childhood cancer or sickle cell diagnosis. Childhood cancer and sickle cell disease impact the entire family. So how can we help? Raise Awareness. People don’t know what they don’t know. With sickle cell disease being the most common genetic disorder, you would think better coping mechanisms and medications would have been developed. With 1 of every 330 children being diagnosed with cancer before their 20th birthday, why haven’t we developed a complete cure – one that won’t have long-term physical effects on the children being treated? I would like to work together to raise awareness. Let’s advocate for children and their families. The first step to doing this is to shine a light on these diseases. Go Red or Gold for the month of September. There are SO MANY ways to do this. More importantly, share what you are doing with our community. Please send photos or details to CURE and we will share on our social media and with our supporters. We plan on creating a special blog post on our website for mid-October to highlight everything our community did during September to raise awareness. We heard you last year regarding the childhood cancer signs. They are double sided this year. You can reserve your sickle cell or childhood cancer sign online (https://curecca.ejoinme.org/cureawareness) or come into the office to purchase your sign during business hours. Talk with your friends, family, co-workers, neighbors. Tell them why it is important to you that we increase awareness. You’d be surprised how easily you can influence those close to you. I’m asking that you DO something. Even just one small thing. Come into the office and say hello to our staff. We will have both gold and red ribbons to hand out to our visitors, which we will encourage them to wear throughout the month. Please help us raise awareness. With increased awareness, we can establish new community partners and hopefully offer more services and better services to our families.

We continue to make plans to help families throughout their journeys. I am truly looking forward to our fourth Parents’ Night Out in a couple of days. We are encouraging our parents to take time for themselves – reconnect, laugh, enjoy the company of others. We know it is a temporary distraction from the every day worries you are bombarded with, but hopefully you find value in escaping. Recharge your batteries. We’ve said it before (and will likely say it many more times), but you cannot take care of your family if you are not caring for yourself. As people, we can only handle so much. So please, take the time for yourself. If not at one of our Parents’ Night Out events, on your own. Take a walk and enjoy the summer breeze and then the autumn leaves (hopefully not for SEVERAL more weeks, though). Have an idea for a Parents’ Night Out activity? Let Sam know! We want to offer fun, different, useful things to all of you.

“Life is what happens when you’re busy making plans.
While planning the activities and awareness campaign and Brunch, life happened. This summer, we have been consented to help nearly 20 new families. We are here. We are here for newly diagnosed families. We are here for families on treatment. We are here for families of survivors. We are here for bereaved families. We are here. So when life happens, remember CURE and that we can help you. If we are not currently providing the help you need, tell us. We will try to help. Like I said above: People don’t know what they don’t know.

Most recently, we have been contacted to help a few families with beds. You read that right. The diagnosed child did not have a bed. On two separate occasions. CURE helped. Sadly, this past fiscal year we partnered with CompassionNet to provide Phillip’s Gift Palliative Care Services to five families. Five. Every new family is given a gift card to help cover gas costs – as transportation to and from appointments adds up. We recently helped a family with services in their home. In all of these situations, life happened and CURE did what we could to help.

So while we are all busy making plans, it is my hope that you all know we are here for you when life happens.
Once you are a CURE family, you will always be a CURE family.
Wishing you all a very wonderful last few weeks of summer.