CURE Childhood Cancer Association

April Newsletter

A note from our Executive Director

Hello, Friends!

April is a really special month: National Volunteer Appreciation Month. 
I truly do not know what we would do without our fearless, dedicated, kind-hearted volunteers. We at CURE could not do what we do without your tireless support. We have volunteers who lovingly prepare birthday cards to be sent to our kiddos every month. Individuals who meticulously care for our Julie Roberts Children’s Memorial Garden, ensuring the little angels who are engraved in our brick walkway are honored. Energetic friends who offer their time at events like the Survivor’s Day Picnic and Holiday Party. Advocates who join committees and help to solicit sponsors and auction items, and who transform ballrooms into jungle scenes for the Brunch. We could not do what we do without you. You impact our families’ lives and provide comfort and support during some really trying times. We appreciate you. Let me repeat that. We appreciate you. Our Board of Directors is made up of volunteers who attend monthly meetings, advocate for our families and services and attend events. Your time and efforts are appreciated. The cards that go out to families on the anniversary of losing their child are prepared by an incredible volunteer – your contribution is appreciated.
Way back in December 2010, I started my journey at CURE as a volunteer at the Holiday Party. I found the opportunity on the Community Wishbook, invited a few friends and we fell in love with the families and mission of the organization. I continued to volunteer, knowing I was making a difference through my contributions. In July 2013, I joined the Board of Directors, which furthered my desire and ability to help this organization I have come to love. And finally, in April 2014, I stepped down from the Board to join the staff here at CURE. April marks five years that I have had the privilege of meeting friends of CURE and the CURE family. Anyone who knows me knows that I am a numbers person. Numbers are impactful. They are straightforward. Since I joined the staff in April 2014, 327 children have been diagnosed with cancer or chronic blood disorder in the Rochester area. It seems impossible. What a daunting number. But then, I have to remember that I have had the honor of helping to provide support to these families through their difficult days and beyond. You all have that same honor. You all – everyone reading this – have made a difference in some way to CURE families. And we thank you. Thank you for sharing our posts or commenting on our posts on social media. Thank you for attending our events. Thank you for hosting your own events. Thank you for sharing your skills, your talents and your time.
Thank you for volunteering.
We don’t say it enough. We so appreciate you and could not provide the support we provide without you.Here’s a high five to all of you.
Thank you for joining me for five years of helping local families…
…because families can’t fight alone.

Farewell, Adella!

We are sad to share that our dear Adella, our Program Coordinator and one of our Parent Advocates, will be leaving us at CURE. Her last day is April 15th. Adella joined the staff at CURE in March 2017, bringing her positive attitude and smile everywhere she went. She has made a tremendous impact on our families, volunteers and staff. We wish her the best of luck in her future and hope to see her at future programming and events.

Don’t be a stranger, Adella!

Spotlight On….

Evan is a sophomore at Holley High School.  On October 19, 2018, he was diagnosed with Acute Myeloid Leukemia.  His diagnosis came as a complete shock.  He didn’t have any of the normal AML symptoms, and in fact, was at school practicing for a soccer sectional game when we received his diagnosis.  Since then, he has gone through four rounds of intense chemotherapy and has spent more than 4 months in the hospital.  Currently, his leukemia is in remission!  Through all of this, Evan has remained positive and upbeat.  He is planning to get back to school by the end of April and he also plans to play on his school golf team this spring.  He’s quite the warrior!

To see “A Day in the Life” of Evan, check out our Instagram feed from Thursday, March 28th. Evan did an Instagram Take Over and chronicled his day at Golisano Children’s Hospital while he was inpatient. #EvanTakesonCancerWithCURE

Check us out at @curekidscancer_

End of Treatment Bell Ringings

Congratulations to Keith who rang the Bell on March 25th!  Check out the video here!

Winter Interns!

We are just finishing our 8th week here at CURE, which means we are officially half way done with our time interning here We have been doing so well with the Penny Drive and are so excited to keep seeing the progress as we collect jugs from more schools! In March, we were at Trivia Night and the Senior Select Hockey Game which both had great turnouts. We really enjoy meeting more people that are involved with CURE. Coming up, we’ll be at the Knighthawks game on 4/6, the Easter Egg Hunt on 4/20, and the 5k and Fun Walk Presented by The Cornerstone Group of Wells Fargo Advisors on 4/27!! These events are a great opportunity to support CURE and come together as a community for some fun. We hope to see you all there! If you don’t already, make sure to follow us on our Instagram and Twitter @curekidscancer_ , and our Facebook page Cure Childhood Cancer Association!

Free CURE Programming and Events


CURE’S New Book Club
Who:      Parents, patients, and caregivers
Where:    The CURE Office
                 200 Westfall Rd.
                 Rochester, NY  14620
When:    The fourth Wednesday of every month
               (April 24th, 2019)
               6:30-8:00 pm
April’s Book:  Okay Fine Whatever by Courteaney Hamiester (Please read before group so that we can discuss)
Please RSVP at
staff@curekidscancer.com
by April 19th, 2019 if you are new to this group in April

        Manicures for Mom

When:
May 13th, 2019
from 6:00 – 8:00 p.m.
Where:
200 Westfall Road
Rochester, NY  14620
Let’s celebrate Mom and all she does!
Join CURE Childhood Cancer Association for this very special Parents Night Out.
Life happens, take time to enjoy the company of others and have some fun!
*Space is limited on programs.  First come first serve. If you are interested please RSVP with us at 585-473-0180 or staff@curekidscancer.com*

A story-theatre presentation of a very special developing new musical for the whole family!  Seen through the eyes of a sweet, innocent puppy-dog, this very special musical of unconditional love, pure joy, and life’s discoveries – some fun, some not so fun…transcend barriers and become totally identifiable to everyone.  You’ll laugh, you’ll cry, tap your toes, and sing on your way out the door.  The LIKAH! enchantment will remain with you for a very, very long time!

Performances are May 17-19th.

Space is limited.  First come first served.  Please contact staff@curekidscancer.com for more information.

Thank You for Your Support!

Thank you to our amazing Board for supporting the Annual Trivia Night Fundraiser!

Thank you to Karin for creating a Birthday Fundraiser on Facebook!  Your support and kindness is greatly appreciated!

Thank you to Section V Hockey and all the High School Hockey Team Booster Clubs for supporting the 32nd Annual Monroe County High School Hockey League William J. Quinlan Memorial Senior Select Hockey Game to benefit CURE Childhood Cancer Association!  Also, thank you to Bill Gray’s Regional Iceplex for hosting the game, Amy Margolis for designing the program book, and the coaches and officials for donating their time to participate in the game. A special thank you to our friend Cooper for being our official puck dropper at the game, too!  Congratulations, Seniors, on an outstanding high school career!

Thank you to all the amazing schools that have participated in the 2019 Penny Drive this March!  Thank you so much for supporting our families, and making a difference! We are more than half way to our goal of $5,000!

Upcoming Fundraisers

Join us Saturday, April 27th at I-Square for our 10th Annual 5K & Fun Walk presented by The Cornerstone Group of Wells Fargo Advisors!  Start forming your teams and make sure to check out all our contests and challenges – including the new High School Challenge and High School Athletic Team and Club contest!  Click here for more information.

Register now to make sure you receive your race t-shirt!  T-shirts will be given to all participants registered by April 10th.  Click here to register!

Want more information about setting up a team, or ways to get involved?  Email our Community Coordinator Bridget Sadler at bridget.sadler@curekidscancer.com for more details.

Our boat is rising!  Help us raise the tide and meet our goal of $12,000 through donations for the 10th Annual 5K & Fun Walk presented by The Cornerstone Group of Wells Fargo Advisors.

Donate Today!

Did you know that $50 can purchase you a mile marker sign to honor that courageous warrior you know?  It’s really easy, and a great way to show your support. Purchase one online when you register, or contact our Community Coordinator, Bridget, at bridget.sadler@curekidscancer.com.

Did you see the big news?  We are making September big this year!  Join us Sunday, September 29th at our Recipe for a CURE Sunday Brunch and help us close out Childhood Cancer Awareness Month in a big way!  Keep following us on social media and we continue to reveal more information!

Join us Saturday, April 6th as the Rochester Knighthawks host their 2nd Annual Cradle for a CURE game.
7:30 PM | Blue Cross Arena | Against Toronto Rock
Some of the Knighthawks players will be wearing CURE kids’ names on the backs of their jerseys!
Wait….it gets better…
The limited edition, game worn jerseys will be available for AUCTION with proceeds being donated to CURE!
BOTH teams are participating in the jersey auction.
How cool is that??
Fans can bid on the game-worn, signed jerseys at www.knighthawks.com/Auction. The auction will begin on Sunday, March 31 at noon and end at 9:30 p.m. on Saturday, April 6.

The Penny Drive Fundraiser starts in September and runs until June. CURE brings gallon milk jugs into Rochester schools and students fill them with spare change. The drive usually lasts 1 week and CURE picks up the jugs and calculates the total amount raised. We cannot thank Upstate enough for their generosity. Annually, the penny drive raises around $4,000!

Are you interested in hosting a Penny Drive at your school?

E-mail staff@curekidscancer.com

Did you know that registration is now open for our 4th Annual Patrick Carr Memorial Golf Tournament on Monday, July 29th?  Don’t miss out on a day full of golf, food, games, and prizes.  The tournament has sold out the past two years, so be sure to secure your spot now!

Click here to register!

Sponsorship opportunities are still available.  Email our Community Coordinator Bridget Sadler at bridget.sadler@curekidscancer.com for more details.

Looking for a special gift for Mother’s Day?
Contact our friends at Smallprint Northeast to create a custom, one-of-a-kind special gift for the mother in your life.  Mention CURE and we will receive a portion of the proceeds!
The deadline to order for Mother’s Day is April 26th.

Our wonderful friend is hosting a Thirty-One Party and will be generously donating a portion of the sales to CURE Childhood Cancer Association.  Be sure to check it out here!
Orders must be placed online by 4/26/19.

Our friends at Awareness Coffee are helping to spread awareness about Pediatric Cancer with their coffee made from a specialty bean out of Peru, and roasted to perfection with subtle floral and chocolate notes.

A portion of proceeds will be donated to CURE, Golisano Children’s Hospital and Camp Good Days – your choice at checkout!

Buy the coffee here!

We are excited to announce that we have partnered with Rite Aid and are now an official KidCents charity! KidCents is a program created by The Rite Aid Foundation that allows Rite Aid customers to round up their purchases to the nearest dollar and donate their change to help support kid-focused charities.

Here’s how you can enroll in the KidCents program and round-up to our charity:

Step 1: Enroll in wellness+ with Plenti (Skip to Step 2 if you are already a wellness+ with Plenti member)

  • Visit KidCents.com and click ‘Sign In’ on the left
  • Click the box on the right to ‘Enroll in wellness+ with Plenti
  • Complete registration process for wellness+ with Plenti
  • Click through to finish signing up in Plenti
  • When finished with both processes, you will be directed to RiteAid.com

Step 2: Enroll in the KidCents Round-Up Program

  • Visit KidCents.com
  • You should see your account logged in on the left. If not, sign in with the account information.
  • Click ‘Start rounding up today!’ dial on the left

Step 3: Designate Your Charity

  • Click ‘Select a Charity’ on the left
  • Type [INSERT CHARITY NAME HERE] and click ‘Select This Charity’

By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!

Check This Out!

Calling all friends of CURE!
We are in need of volunteers to assist with traffic control, and directing runners at our 10th Annual 5K & Fun Walk presented by The Cornerstone Group of Wells Fargo Advisors.  If you are interested in helping out, you can sign up for a corner along the route by clicking here.

To learn more about other ways you can help, contact Bridget at:
bridget.sadler@curekidscancer.com

Calling all friends of CURE!
We are putting together our silent auction for the 11th Annual Recipe for a CURE Sunday Brunch and we could use your help!

We need help making phone calls to follow up with businesses we sent letters to
AND
We need donations of pre-assembled baskets! Themed baskets always go over well with our crowd!

To learn more about how you can help, contact Bridget at:
bridget.sadler@curekidscancer.com

If you are in the Hornell area, check out this DELICIOUS Chicken BBQ on Saturday, April 6th at the Hornell VFW.

Proceeds of the event will be donated to CURE & the Ronald McDonald House of Rochester.

Anne, Jason’s mom, has a TON of incredible homemade Easter candy every year at this event. Go and stock up. You won’t be sorry. 

Help support St. Baldrick’s Foundation by eating at Buffalo Wild Wings on West Ridge Road in Greece!  Mention “Team C” to your server March 17th – May 4th for 10% of your total to be donated.

And don’t forget about the annual St. Baldrick’s Fundraiser in Rochester on Sunday, May 5th. You can find details of the event here:

https://www.stbaldricks.org/events/mypage/951/2019

We Want To Hear From You!

Join Our Team!

We are currently looking for interns for Summer & Fall ’19!!

If you are interested, please email staff@curekidscancer.com

Has CURE helped you? We would love to hear stories about how CURE has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com.

What programming would you like to see at CURE? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to staff@curekidscancer.com



Wish List Items Needed:

We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support.  If you or a community group you belong to is looking for something to do for a charity, please consider donating items from CURE’s wish list so that we can continue to provide for our families.

Items Needed:

  • A cure for childhood cancer, blood diseases and brain tumors!
  • Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
  • Weighted blankets
  • Essential oils
  • Mini diffusers
  • Dry shampoo
  • Facial Cleansing Wipes
  • Cases of water
  • Playing cards and card games
  • Paper towels and toilet paper
  • Items for teens or young adults
  • Toys for kids under 3 years old

We ask that all items be new and recently purchased.  Thank you!

Bereavement Corner

Camp Heartstrings / Camp Dreams

Camp Heartstrings/Camp Dreams is a three day camp for children (entering grades 2 – 11 in September 2019) who are adjusting to the death of a loved one. Developed by Licensed Master Social Workers, this camp promotes understanding, acceptance, healing and hope through a comprehensive program of activities. It is staffed by credentialed professionals and trained volunteers, and is sponsored by Visiting Nurse Hospice, Pittsford Youth Services, and Dreams from Drake.

Camp registration is now open!

When

July 10th-12, 2019

12:00 – 5:30 p.m. daily

Families are invited to a complimentary dinner at the end of the last day at 5:30 pm
Campers are required to attend all days and times.

Where

Nazareth College
(4245 East Ave., Rochester, NY 14618)

How camp can benefit your child

Grief is difficult for everyone. It can be especially confusing for children who do not have the life experiences and resources adults draw on during difficult times. Camp helps fill that gap by:

  • Developing campers’ coping skills for expressing and processing their grief.
  • Offering campers an opportunity to be with peers who also experienced loss; this helps them realize they are not alone.
  • Providing therapeutic and social activities such as pet therapy, games, art therapy, a balloon release, music therapy, and a family style dinner at the conclusion of camp.
  • Teaching campers that it is ok to have fun and still honor their loved ones.
  • Assisting campers to talk openly about their loved ones with camp staff and peers.

Cost

There is no cost to campers or their families. We are happy to provide this program free of charge.

Registration

For 2019, you can download and fill out the PDF application here. Please see the contact info below on where to send your child’s application.

For questions, please contact Michele Allman, LMSW, Bereavement Coordinator at Visiting Nurse Hospice, at 585-274-4069 or at URMHC-CampHeartstrings@URMC.Rochester.edu.

Support

Bereavement Group:


The first Wednesday of each month

Hosted by Kiersten Kunick, Liz Conrow and Debra Zalar

200 Westfall Road, Rochester 14620

From 7:00pm-8:30pm

No reservations required

ROC City Sicklers:

ROC City Sicklers Logo

The third Tuesday of each month

UR Medicine

Conference room ACF A/B

6:00pm-7:30pm

Free Parking

Food provided by Wegmans


Are you looking for someone to help tutor your child? Boost provides supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. This group of teachers will not supplement the tutoring being provided by the school, but will act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level. Our tutors use their teaching expertise to fill the gap left when traditional schooling is not possible. The group is currently in need of volunteer tutors. For more information please contact Linda Bolan at paperl@ottcmail.com or  585-317-7269.

Educational Consultant Services from CURE

Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? CURE can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong.  If you would like to speak with Kathy Wissler either in person or via phone, please contact Kiersten Kunick , CURE Parent Advocate, at 585-697-4470, or call the CURE office at 585-473-0180 and she will make a referral. This service is provided free for CURE families.

Facebook Live:

Kiersten Kunick, Parent Advocate, goes live on Facebook periodically.

She can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.

Have a topic you’d like to hear about? Feel free to reach out to Kiersten kiersten.kunick@curekidscancer.com and share!

Brian Bisgrove Home of Courage:

The Brian Bisgrove Home of Courage , located an hour away from Rochester) is a retreat and respite home for families with children who have life-altering conditions.   Children and their families are invited into the beautiful , handsomely-appointed log cabin for a 3 or 4 day stay of rest and repose, all comepletely free of charge.  At the Home medically fragile childere can experience a different kind of healing, one of the mind and spirit.  Its a place to let go of anxiety and stress and focus on the family.

The website (with more detailed information on the Home and the application) is www.homeofcourage.com.