Parent Advocate Program

Through the work of our Parent Advocate, staff and devoted volunteers, CURE offers families a wide range of emotional support and care by:
• Helping families understand their child’s diagnosis and acting as their liaison to medical and psychosocial staff.
• Providing comfort and support through visits with patients and families who are hospitalized or at the Outpatient Clinic / Treatment Center.
• Supplying a CURE Tote Bag filled with comfort items for newly diagnosed patients and their families.
• Holding weekly Coffee Group meetings at the hospital allowing families to share their experiences and support each other.

    • Providing passes for free parking at the hospital when a child is hospitalized or has an appointment at the Pediatric Hematology Oncology Outpatient Clinic / Treatment Center.
    • Delivering CURE’s Patient/Parent Organizer, a tool to help newly diagnosed patients and caregivers keep track of vital information about the patient’s illness and treatment.

How We Help

Funeral Assistance:
Upon the referral of the social worker in the Pediatric Hematology/Oncology Department at Golisano Children’s Hospital, CURE offers a $500 grant to each family who loses a child to cancer or chronic blood disorder. We at CURE understand that families may financially struggle to pay for after life services and we want to ensure we do what we can to help these families.

Bereavement Support Group
A support group for parents and family members who have lost a child to cancer is led parent volunteers and co-facilitated by one of our parent advocates, this is a place where parents may talk openly about the loss of their child and receive peer to peer support. All support group meeting times and places will be posted on the CURE’s calendar. For more information about the parent support groups please email the CURE’s Director of Family Programs.

Bereavement Meetings are held at CURE from 7-8:30 pm on the 1st Wednesday of each month.

Reservations are not necessary. Extended family and friends are welcome.

Dates:
August 3, 2016
September 7, 2016
October 5, 2016
November 2, 2016
December 7, 2016
January 4, 2017
February 1, 2017
March 1, 2017
April 5, 2017
May 3, 2017
June 7, 2017

CURE Resource Library furnished by the John F. Wegman Fund
The CURE Office is home to many books and resources that are free for our families to use. We have books available for families to take home and read, some to keep and some to borrow. Every family who experiences a loss is sent Tear Soup: A Recipe for Healing After Loss by Pat Schwiebert. Additionally, we have multiple copies of Life After the Death of My Son: What I’m Learning by Dennis L. Apple in addition to many others.

The Julie Roberts Children Memorial Garden at CURE
The Julie Roberts Children Memorial Garden was established in 2003 at the CURE offices located at 200 Westfall Road.  The garden is a memorial to the children who died of cancer or blood-disorders. Engraved bricks line the walkway, with the names of children who are never forgotten. These bricks are provided by CURE to our CURE families who have lost a child to cancer.

Blake Cognata Brick

Brick Laying Ceremony
Each year in the spring, parents, family and friends are invited to a special ceremony to remember and celebrate the precious lives of children lost during the calendar year as we place their memorial bricks in the Julie Roberts Memorial Garden located at the CURE office at 200 Westfall Road, Rochester, NY 14620.

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