Parent Advocate Program
Through the work of our Parent Advocate, staff and devoted volunteers, CURE offers families a wide range of emotional support and care by:
• Helping families understand their child’s diagnosis and acting as their liaison to medical and psychosocial staff.
• Providing comfort and support through visits with patients and families who are hospitalized or at the Outpatient Clinic / Treatment Center.
• Supplying a CURE Tote Bag filled with comfort items for newly diagnosed patients and their families.
• Holding weekly Coffee Group meetings at the hospital allowing families to share their experiences and support each other.
- Providing passes for free parking at the hospital when a child is hospitalized or has an appointment at the Pediatric Hematology Oncology Outpatient Clinic / Treatment Center.
- Delivering CURE’s Patient/Parent Organizer, a tool to help newly diagnosed patients and caregivers keep track of vital information about the patient’s illness and treatment
How We Help
CURE’s Voyage Beads
CURE Voyage Beads are a visual way for children to record their voyage through cancer treatment. Beads of various colors and shapes, each representing a particular treatment or procedure, are strung on a necklace. For example, the red bead represents a blood transfusion while a white bead represents a chemo treatment. Children will add beads as they go through treatment and will build a tangible documentation of their journey.
How do CURE Voyage Beads work?
The Voyage Bead program is a voluntary program and children who wish to participate in the program will be given a length of string or cord strung with beads that spell their first name. Colored beads representing treatments and procedures will be available to add to the necklace.
Parent Support Group
Each Tuesday at 1:00 pm, CURE hosts a support group in the CURE Conference Room on 7 North at Golisano Children’s Hospital. This group offers families whose children are currently in treatment an opportunity to meet and share their thoughts and experiences.
CURE budgets more than $20,000 annually to help each and every family who is fighting childhood cancer or chronic blood disorder cover their parking expenses while visiting their child in the hospital. When a child is hospitalized, parents are provided with parking vouchers for as long and as often as their child is an inpatient.
In addition, a parking voucher is provided to parents during each outpatient/clinic visit.
The parking voucher program has been an enormous source of financial relief as hospitalizations can often last a month or longer, creating a huge financial burden for many families. CURE’s parking program saves families up to $85,000.00 annually.
CURE Resource Library furnished by the John F. Wegman Fund
The CURE Office is home to many books and resources that are free for our families to use. We have books available for families to take home and read, some to keep and some to borrow. We have a wide selection of books in which we have one or two copies of. We have multiple copies of the following books:
Learning to Dance in the Rain by Rachel A. Ormsby
I Want to Grow Hair, I Want to Grow Up, I Want to go to Boise by Erma Bombeck
Young People With Cancer; A Handbook for Parents
Chemo, Craziness and Comfort by Nancy Keene & Trevor Romain
Helping to Heal by Patti Wood
Perfect Vision: A Mother’s Experience With Childhood Cancer by Sharon Higgins Brunner
Purpee the Purple Dragon and the Stone-Eyed Snake by Anthony Fasano & Brianna Fasano
Oliver’s Story: For ‘Sibs’ of Kids with Cancer by Michael Dodd