CURE Childhood Cancer Association

October Newsletter

CURE main logo pic


Our sincere sympathy to the friends and family of

Durra Jarrah: September 3

William (Tyler) Conti: September 24


A Message from the Executive Director

Happy October, Friends –

I am absolutely blown away by the level of support that was displayed during September in honor of Childhood Cancer Awareness Month and Sickle Cell Awareness Month. I feel as though every other day, I was receiving messages and pictures from individuals who spotted support throughout the community or who were creating the awareness on their own. The buildings that went gold, the lawn signs that were purchased, the fundraisers that were held, the gold or red attire people sported…it’s unbelievable! I truly feel as though we made a difference in September. Together, we helped to shine a light and increase awareness. I have people contacting us already about next year and what they can do. We are making a difference. We are being heard. Let’s keep this streak going!!!

We just hosted our annual Recipe for a CURE Sunday Brunch and I am again humbled by the support from the community. Businesses have been incredibly generous with their donations and monetary support, individuals are purchasing tickets and our families have contributed baskets for the auction. It truly brings the statement “There’s no place like home” to life. We are so incredibly fortunate to be living in this beautiful, philanthropic, caring City.

With the changing of the seasons comes change in life. I would like to wish Chelsea the best of luck with her new endeavor – teaching children. She’s enriched the office and brought new energy to the team. Her attention to detail, creativity with activities that our children could do during events and organization of basically everything will be missed. We look forward to seeing you volunteer at future CURE events and hearing all about your new role shaping the lives of little ones in the community.

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We at CURE Childhood Cancer Association would like to express our most sincere gratitude for the unwavering support of the community. We are forty years strong and looking forward to many more…until no parent has to hear those words “Your child has cancer” or “Your child has a blood disorder”.

In closing, I’d just like to say thank you. Thank you. Thank you. And thank you again.

There’s no place like home.

Have a happy fall ya’ll!


Marks Pizzeria:

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For those who have not yet heard, Mark Crane very generously donated $40,000 to CURE in memory of Julie Roberts and in honor of our 40th Anniversary. Mark and the staff at Mark’s Pizzeria have been incredibly kind to CURE over the past month. They created a campaign for the month of September, encouraging the community to wear gold or sport their gold the whole month of September by wearing gold t-shirts, handing out gold t-shirts to CURE kids, putting box toppers on all orders during the month, donated all the change bucket donations to CURE, and made a commercial to be played during football games.


40 Friends of CURE

Clar Family & Constellation Brands

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The Clar family lost their son Kenneth in 1979 to A.L.L, and ever since, they have been committed to supporting CURE and helping local families throughout their cancer journeys. Dick and Mary Clar were involved in the early years of CURE, working closely with the founders to help CURE become the amazing organization it is today. The Clar family have been involved in the Recipe for a CURE Sunday Brunch since day 1. Their son, Kevin, carried on as treasurer on the Board of Directors and is still involved through his company, Constellation Brands. 8 years ago, Kevin connected CURE with Constellation Brands, and they have continued to be a generous brunch sponsor. He and his family regularly donate to CURE, whether it is items for our comfort bags, or Red Wings tickets so our families can catch a game together. Kevin’s children are also very involved with CURE, especially his daughter, Kim. She was an invaluable volunteer this past weekend for the Founders Recognition Luncheon and the Recipe for a CURE Sunday Brunch. She even assisted with decorations for the CURE Brunch as well. She worked for hours creating decorations for the event and making sure things were perfect throughout the event. Starting November 1st, Kim will be the Community Coordinator here at CURE. We are so excited for her to start and so thankful for everything the Clar family has done for CURE over the years. Even their Aunt Millie donates to CURE’s Holiday Heroes Campaign in memory of Kenny!


Radisson Hotel Rochester Riverside

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Our friends at the Radisson Riverside are, hands down, some of our favorite people in this city. They not only work with us in hosting our annual Recipe for a CURE Sunday Brunch, but they truly support CURE. They believe in our mission. They want to help us make a difference in the community. The Radisson Riverside staff are amazing to work with every year as we plan our annual Brunch. From several (and we mean several) e-mails from the CURE staff to arriving extra early the day of the event (some on their day off) to ensure the event goes without a hitch, we couldn’t be more appreciative of their friendship. They’ve donated water and snacks to various events including the annual 5k and Fun Walk and Survivor’s Day Picnic. The team even came out to the 1st Annual Patrick Carr Memorial Golf Tournament this past July and added a fun extra to the event – green Jell-o shots at the putting contest. They were one of the first businesses to contact us about wanting to be a part of Childhood Cancer Awareness Month, purchased a solid gold flag and held a special flag raising ceremony. That flag flew high in the Rochester sky for the entire month of September, reminding neighbors that September is childhood cancer awareness month and they stand with our families. To the team at the Radisson Hotel Rochester Riverside, thank you for your enthusiasm, passion and unwavering support of our children and families. You truly have and continue to make a difference.


Laurie Doyle Yohe

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Our world is full of change, especially in the non-profit sector. There are constantly new laws, new rules, new faces, new trends…But for the past 10 or so years, we at CURE have been lucky enough to have one constant – Laurie Doyle (although now it’s Laurie Doyle-Yohe…so you’ve thrown us a little).  If you have been to any major CURE function over the last several years, you’ve seen Laurie. A firey red-head who is typically one of the first to arrive and one of the last to leave. She is a leader, always willing to lend a hand or step up to make sure volunteers have a go-to person. Sometimes, she signs up to participate even if she doesn’t quite know what she is signing up for. She found CURE through a volunteer group, Single Volunteers of Rochester. She became more and more involved with the organization as time went on. Over the past several years, she has acted as Chairperson of the Recipe for a CURE Sunday Brunch, which is no small task to organize and package over 200 items (most of which occur in the last two weeks leading up to the event). She corrals her husband and his pal and they unload trucks, set up events and volunteer their time to CURE. She rounds up the troops to puts together baskets and to add special flair at the events. Laurie has acted as Volunteer Coordinator at a number of events, which is especially helpful with us having such a small staff. We know we can depend on her and that she will get the task done how we would do it. I recently asked Laurie “Why CURE? After all the volunteering you did with other organizations, what made you pick and stick with CURE?” Her answer: “CURE is so small. I know I am really needed and can really do something and I always feel like I’m appreciated and making a difference. Some other organizations take their volunteers too much for granted. What drew me to CURE is the fact that CURE is hands on with the families as opposed to organizations that fund research. I know both are important but I would rather see what we are doing is helping as opposed to the wait and see what happens in the long run.” Laurie’s friendship and dedication to CURE are both sincerely appreciated and we are gracious for her and her talents. Keith, thank you for continuing to share your wife with us. We appreciate your patience with us (especially me) as I chit chat with Laurie at the end of meetings, jeopardizing even more of her precious time.  Laurie, you have made a difference. You are making a difference. We are humbled you have chosen CURE and appreciate everything you have done and continue to do.


American Culinary Federation: Rochester’s Professional Chefs and Cooks Association

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We cannot say enough about the ACF Rochester. Our annual Recipe for a CURE Sunday Brunch would not be the amazing event it is every year without their support. This group volunteers their time, their talent and their support year after year for our children and families. We have been working with them for 8 years and we couldn’t be more pleased with our relationship and their continuous support. The food they prepare every year at the Brunch is so incredibly delicious, our mouths water just thinking about it! Last year, ACF Board Member John Venturo, spoke with Holly at an event. He is the reason we have used the Wizard of Oz as our theme for the year. His great idea about 40 year anniversaries and rubies sparked a creative campaign for our big anniversary year. We cannot begin to express our gratitude for their kindness, their friendship and their enthusiasm. We hope you will join us at this year’s event to experience their craft for yourself and thank them for always keeping our children and their families in their hearts.


Focus of the Month!

Congratulations Dominic!

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4 year old, Dominic Caracci, diagnosed in 2015 with Rhabdomyosarcoma, rang the bell of hope on September 14th, after 42 weeks of chemotherapy!


Congratulations Dajah!

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2 year old Dajah Sinclair, diagnosed in January 2016, rang the bell of hope on September 7th signifying her last chemotherapy treatment!


Congratulations Ella!

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10 month old Ella Suhr, rang the bell of hope at Golisano on September 28th. Ella was diagnosed with PNET (Primitive Nueroectodermal Tumor) in March of 2016 at just 4 months old.


Recipe for a CURE Sunday Brunch:

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Sunday, October 9th was CURE’s 8th Annual Recipe for a CURE Sunday Brunch at the Radisson Hotel Rochester Riverside. This fundraiser consisted of an amazing brunch buffet by the American Culinary Federation Professional Chef/Cooks Association of Rochester, accompanied by 9 young CURE kid chefs, a ruby red slipper raffle to win a $100 Nosh Gift Card, silent auction, and live auction. We are incredibly thankful of all of our sponsors, partners, volunteers and supporters for walking down the yellow brick road with us to Emerald City. This event would not be successful without all of your generosity and kind heartedness.


Alex and Ani Charmed Event

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On September 13th, Alex and Ani at Victor and Culver Road Armory held their annual fundraiser for CURE. From 6 to 9pm, 15% of all purchases were donated to CURE! We are so thankful for their ongoing and continuous support.


Morton Family Fun Day:

Saturday, September 17th was Morton Family Fun Day at the Morton Baptist Church. The church has been hosting this event for over 30 years now! They cook and provide lunch, take families on tractor rides to the pumpkin patch to pick pumpkins and paint them, apple picking at the apple orchard, and games and prizes at the church! Our families always have so much fun at this event, even when its raining….

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ROC City Sicklers Picnic:

On Sunday, September 18th, the ROC City Sicklers held their family picnic at Genesee Valley Park at the Round House Shelter. Everyone enjoyed the carnival games and prizes and they gave out more backpacks for back to school assistance.

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DEGC Putting Contest:

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Durand Eastman Man’s Club participated in a putting contest over the summer. Eddie Gartz very generously matched the donation, making the total $800!


Maddox Lawrence Memorial Golf Tournament:

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Longshots Bar and Restaurant held a golf tournament in May, in memory of Maddox Lawrrence. Maddox Lawrence was a toddler cancer survivor from Syracuse, NY, and sadly passed away February 20, 2016. John Kegel and his staff wanted to hold a memorial tournament and donate the proceeds to CURE. In total, the tournament raised $1,613.25!


CURE Fest:

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Coming from Rochester NY for Curefest, in honor of Mackenzie Bennett, a 6 year old diagnosed in March 2016 who is currently fighting DIPG (Diffuse Intrinsic Pontine Glioma).

Thanks for showing your support be going gold!! #GoGoldForKids


Lemonade Stand in Memory of Amanda Conrow

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A HUGE thank you goes out to Owen, Grace, Kelly and the Conrow Family for hosting the 3rd annual lemonade stand in memory of Amanda Conrow. They had delicious cookies, brownies, fruity pebbles treats, muffins and – we can’t forget – yellow AND pink lemonade!! What a phenomenal group of people!! Thank you!


Hearts for Hailey

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On September 13th, just a few days out of surgery, 9 year old Hailey Conniber, met a princess! Princess Belle visited Hailey’s Hospital room and spent time with her as they walked the halls and chatted. Princess Belle even brought Hailey a princess crown so she could be a princess, too!


Thank You Upstate Farms:

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upstateUpstate farms shows their support by donating gallon milk jugs to CURE when we start our Annual Penny Drive fundraiser! The Penny Drive Fundraiser starts in September and runs until June. CURE brings gallon milk jugs into Rochester schools and students fill them with spare change. The drive usually lasts 1 week and CURE picks up the jugs and calculates the total amount raised. We cannot thank upstate enough for their generosity. Annually, the penny drive raises around $4,000!

                                           Are you interested in hosting a Penny Drive at your school?

                                                        E-mail staff@curekidscancer.com


Annual Remembrance Service

We would like to thank Deb Bullock and Northfield Church in Pittsford for allowing CURE to hold our annual Remembrance Service again this year, to honor all the children who have passed away. We are extremely grateful that the church not only allows us to use their venue, but also provides all the refreshments for the service, including subs, salad, cookies, coffee, tea and cocoa. This would not be possible without the help of, Jim Archibald (sound/audio), Rosie Obi(music therapist), Dr. Korones and Dr. Shand for speaking, Liz Conrow, Jim Spencer and Andrea Spencer (committee/content), Joan Reeves (candle lighting ceremony), and Marty Moynihan (speaker). Thank you for all that you do for CURE.


Dominic was on the news!

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On Monday, November 30, 2015, Dominic was diagnosed with Stage 1, type 2 Rhabdomyosarcoma. On Wednesday, December 9, 2015, he began his 42 week cancer protocol.  After 30 total chemo therapy treatments,  and 25 total radiation treatments, Dominic is now cancer free. On Wednesday, September, 14 2016, he proudly and  anxiously  rang the Bell for hope. Dominic is one of this year’s Recipe for a CURE Kid Chefs. He was able to spend some time with the staff at WHEC TV to talk about the Brunch! He had a blast!


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Thank you to Governor Andrew Cuomo for declaring September#ChildhoodCancerAwarenessMonth !


Ogden Bears Cheerleading:

Look at these great hairbows that were sported by the Ogden Bears cheerleading and football team this weekend!! Thanks for helping us spread awareness for Childhood Cancer Awareness Month!

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Raider Nation

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Thank you to our friends at Raidernation Rochester. So far, they have raised a total of over $1,000 for CURE!!! They are hosting events at Romig’s Tavern weekly to raise money and awareness. Way to go, guys!!


Nosh

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Thank you to our friends at Nosh, who think it’s important to spread awareness of childhood cancers.

You are making a difference!!


Spot Light On..

Prynce’Ayr Warren:

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Hi! My name is Prynce’Ayr but you can call me Prynce for short. I am 5 years old, i’m in Kindergarten and i have sickle cell disease. My favorite foods are CANDY, pizza, chicken nuggets, french fries and hot dogs. My favorite places to go are the park, Sky Zone, Chucke E Cheese and the beach. I love to hang out with my brother Jordan and play on our electronics.


Extra Assistance & Resources

Lifetime Care:

A Caring Place-

Bereavement Programs for kids, teens and their families

A Caring Place is offered to children and teens who have faced the loss of a significant person in their lives, be it a family member, close friend or peer. It was created to provide families a safe place to come together to receive support and comfort in their grief and to learn effective ways of coping with their feelings and experiences.


Coming Up..

There is still time!

Trick-or-Treat for CURE!

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Trick-or-treat for spare change this Halloween instead of candy, so you can help local families who have a child diagnosed with cancer or blood disorder. Interested? staff@curekidscancer.com

86 cents of every dollar donated goes directly into the programs and services we offer for families.

Every Penny Counts!!


lasertron

Friday, October 21st @ 7 PM

Lasertron located in Henrietta.

Space is limited. SIGN UP TODAY!

Please contact Holly Dutcher if you are interested in attending.

(holly.dutcher@curekidscancer.com)


New Family Program

Fun cooking class for kids – assisted by professional Chefs from the American Culinary Federation

Stay tuned for more information in the upcoming months!

February Break 2017

@ Gilda’s Club of Rochester – 255 Alexander Street



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Bereavement Group:

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The first Wednesday of each month

Next meeting is October 5th

200 Westfall Road, Rochester, NY 14620

7-830 pm

Hosted by bereaved parents- Jim & Andrea Spencer

No reservations required – extended friends and family welcome


ROC City Sicklers: Sickle Cell Support

ROC City Sicklers Logo

The third Tuesday of each month

Next meeting is October 18th

UR Medicine – 2-1361 ACF C

6-730 pm

Free Parking

Food courtesy of Wegmans


Out Patient Support:

2nd Wednesday of the month

10am-11am

CURE Office- 200 Westfall Road, Rochester 14620

no RSVP needed


Facebook Live:

Kiersten Kunick and Tonia Jones, Parent Advocates, go live on Facebook every Wednesday at 1pm.

They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.


Long Term Survivor:

4th Wednesday of the month

Held at the CURE office – 200 Westfall Road, Rochester 14620

11am-12pm  |  no RSVP needed


Karate For Kids!

Presented by Gilda’s Club of Rochester

Saturday mornings from 9am to 10:30am

at the clubhouse

October 1st, 15th & 22nd

November 5th & 12th

Instructor from Master Kim’s Taekwondo

coffee and complimentary breakfast for parents during the class

RSVP to JJ at 585-423-9700 ext 315 or jjohnson@gildasclubrochester.org