40 Friends of CURE
Spotlight On Kailee Kwiecien!
Kailee was diagnosed with rhabdomyosarcoma at age 2. After undergoing three surgeries, twenty-five days of radiation, and 42 weeks of chemo, Kailee was found to be cancer-free! Her port was removed six months later. At her 9-month post-treatment scans, Kailee continued to appear completely healthy. Just weeks after that scan, Kailee complained of leg pain and could barely walk. A tumor had grown in her pelvis so large it broke the tip of her femur. After surgery and biopsies, they found that the cancer was not only in her pelvis, but also in her bone marrow, and small spots were developing on her lung and kidney. Her family was absolutely devastated. Kailee immediately had a new port placed and began chemo. She was to undergo 36 weeks of chemo. Although chemo was proving to be effective, at week 28 chemo was changed to a different protocol. Kailee underwent an additional 42 weeks of intensive outpatient chemotherapy. In August 2016, Kailee completed chemo and is doing wonderful! Her mother, father, and little sister were thrilled to send her off to kindergarten this past fall without worrying about weekly doctor appointments. Kailee has defied all odds through her battles. Her family knows there are no guarantees, but feel blessed to have Kailee in our lives.
Through three years of treatment, ups and downs, appointments and hospitalizations, family and friends have always been there for the family, but so has CURE. A CURE parent has been there to greet us, comfort us, help us through every step of the way. Three years of parking that we did not have to worry about. Meals for parents during inpatient stays were provided by CURE. We cannot thank them enough!
Focus of This Month
3rd Annual Canvas for a CURE
The 3rd Annual Canvas for a CURE event was held at Saint Bonaventure University (GO BONAS!) on Saturday, October 22nd. The event was founded by a friend of CURE and a friend of a CURE family, Stephanie Dolliver. As she is in her graduate year, the event was co-organized by Gabrielle Howard this year, to ensure it will continue on in future years. This year, the event had a fantastic turn out and phenomenal sponsors! The organizers suggest a donation of $5 (which in turn comes to CURE) and the participant is given a canvas to paint. The participant can choose to donate the canvas to CURE upon completion or take it home. The canvases that are donated are given to CURE kids in our comfort bags upon diagnosis and at the Holiday Party. Over the past three years, 535 canvases have been painted and a total of $13,896 has been donated to CURE! The event is one of the projects for the University’s ENACTUS Program. This program, formerly known as Students In Free Enterprise (S.I.F.E.) teaches students the importance of social entrepreneurship and community service. Thank you to the Saint Bonaventure University community and the ENACTUS program for making a difference to our children and their families.
Pour a Little Love into Pediatric Cancer Awareness
A heartfelt thank you to the Beeman Family and their friends for coordinating and hosting “Pour a Little Love into Pediatric Cancer Awareness” – a fundraiser for St. Baldrick’s Foundation and CURE Childhood Cancer Association’s Phillip’s Gift Program. Through their efforts, $1,750 was donated to CURE!! Thank you for your dedication to families coping with pediatric cancer!!
Upcoming Events and Opportunities to Support:
26th Annual Race With Grace 10k
Thursday, November 24th (Thanksgiving morning!) 9 AM
The Race with Grace 10K is a USA Track & Field certified road race (NY12131KL) that was established in 1991. Held on Thanksgiving morning at 9:00 AM, the race begins in front of First Bible Baptist Church on Manitou Road. Following a flat, fast course that encompasses Latta, Manitou, North Greece and Frisbee Hill Roads, the route finishes in the north parking lot of the church, adjacent to the main auditorium.
The entry fee includes a tech tee for the first 1,000 registrants a cotton long-sleeved t-shirt for the remaining registrants. There will be plenty of food and refreshments, complete computerized race results available online, and if you are in the right place at the right time, a finishing photo. Awards are given to the top male and female finishers in the open masters (40+), veterans (50+) & seniors (60+) categories.
Proceeds from the race are generously donated to CURE Childhood Cancer Association.
To learn more and to register, click here.
We are seeking a special CURE Kid to be the official race starter! Interested? Contact Holly Dutcher at firstname.lastname@example.org ASAP!
Barnes and Noble Partnership!
Starting November 1st and running through the holiday season, Barnes & Noble Pittsford will be collecting donations of items for our CURE families! We are so excited about this partnership…but…THERE’S MORE!
We are hosting a Bookfair at the store!
Thursday, December 1st
Barnes and Noble Pittsford (3349 Monroe Avenue) – and online, too!
All sales in the store (including the cafe!) and ONLINE (from December 1st – December 6th at www.bn.com/bookfairs using our special code: 12032397)
We will be planning activities at the store throughout the day, so stay tuned for more info!
We are also looking for volunteers to help wrap gifts at the store on that day. Barnes and Noble is kindly donating the wrapping paper, we just need to provide the wrappers! Patrons will have the opportunity to have their gifts wrapped and can make a donation directly to CURE!
Save the date. Get excited! More information to come!!
Are you a craft beer fanatic?!
YOU can enter for your chance to win a Ruby Street Brewing, LLC 15 gallon brew system!
Our friends at AJ’s Beer Warehouse are raffling off this great piece of equipment and proceeds will be split between CURE Childhood Cancer Association and The Anthony Poselovich Foundation! Tickets are on sale at the store or virtually (here). Drawing will be held December 30th. What a way to bring in the new year!!
We will be holding a fun programming event for our CURE kids on Wednesday, November 16th in partnership with 13thirty cancer connect!
Save the date! Stay tuned for more details!