CURE Childhood Cancer Association

May Newsletter

CURE main logo pic

Spotlight On Amanda


I am honored to have had the pleasure of interning at such an incredible organization.  CURE Childhood Cancer Association has a very dedicated and compassionate faculty, providing for a very enriching and educational internship opportunity.  My main project was the Million Penny Drive and I am proud to say with the help of local schools we raised just over $5,000 to help support local CURE children and their families.  Although I am about to start nursing school this summer I know this will not be my last time helping out at CURE.  I plan to volunteer at more upcoming events and continue to spread the word about CURE in the Rochester community.  Again it has truly been a pleasure to intern for this amazing organization and I highly recommend students consider choosing CURE Childhood Cancer Association for their future internships.

Sincerely,

Amanda Klein
The College at Brockport, State University of New York


Not a goodbye, just I’ll see you later! Note from Kim Collins

This is very hard for me to write but for those of you that don’t already know, I put my notice in to leave CURE. This decision was not an easy one to make and one that I didn’t take lightly. This decision was one that I needed to make for me personally. I truly have been lucky to have worked at CURE and especially with the amazing staff. I have been so blessed to get to know the wonderful CURE families and the amazing volunteers. I have learned so much in my short time working here and I will forever be grateful for the opportunity to have worked for such an amazing organization. I will still continue to volunteer at different events throughout the year, so I hope to see most of you sometime soon. For those of you that know me well, know that you will definitely find me volunteering at the Senior Select Hockey Game next year.  This is not a good bye, just an I’ll see you later!

Free CURE Programming and Events

Save the Date!!
 Join us for Parents Night Out!
May 18, 2017 from 6:30 – 8:00 pm.
Put your detective skills to the test
at the Great Escape Room!
Limited availability – first come first serve!
Please RSVP to Sam at sam.corrigan@curekidscancer.com 

Art Work Needed

We have a “Wall of Fame” at the Twelve Corners Starbucks that features artwork of our CURE kids. We would love to feature your work and the wall could use a little love. Please do not include last names on your pieces. They can be sent to the CURE office or given to Kiersten or Adella at the hospital.

Kate D. Mahoney, author of The Misfit Miracle Girl: Candid Reflections, will be at the Pittsford Barnes & Noble on May 18th for a book signing! Kate was diagnosed with state four germ cell ovarian cancer at age 14. The Misfit Miracle Girl: Candid Reflections is a collection of tumultuous, hilarious essays that follow her journey of personal transformation as she humanizes her experiences as patient, caregiver and life as an often misplaced, misunderstood mis-fit miracle girl.

May is Brain Tumor awareness month
Wear Gray in May! 

Join us for Reading with Loretta!
The first one will be on May 18th!




Upcoming Fundraisers

We need help with the 6th Annual Cutting 4 A CURE!

Sunday, June 11th from 10 AM – 4 PM

Event is being held at Simply Glamorous Salon and Spa (1780 East Ridge Road, Irondequoit)

and Pigtails and Crewcuts (100 Marketplace Drive, Henrietta).

Salons are offering discounted services, where proceeds will be donated directly to CURE!

Donated ponytails will be sent to the organization Children With Hairloss.

We are looking for a volunteer to represent CURE at an information table, facepainters and volunteers!

If you want to help make this event even greater, please reach out to cutting4acure@gmail.com.

We’d love for more salons to participate. Please contact us if you are interested!

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Open a checking account with Canandaigua National Bank and tell them about this flyer and receive $25! CURE will also receive $25! 

MONDAY JUNE 19, 2017 ⏐ 10AM SHOTGUN START

Victor Hills Golf Course

• 8:30AM BREAKFAST/REGISTRATION
• 10:00AM SHOTGUN START
• 3PM-5PM OPEN BAR/NETWORKING/AWARDS/AUCTION
• 6PM OFF-SITE AFTER PARTY (TBA)

EACH REGISTERED GOLFER WILL RECEIVE 18 HOLES OF GOLF, LIGHT BREAKFAST, BEVERAGE STATIONS, BBQ LUNCH ON THE COURSE, OPEN BAR, NETWORKING MIXER, GRAZING STATIONS, AUCTION AND ENTRY TO AFTER-PARTY EVENT

Farley’s Friends FOREforFOUR Charity Golf Tournament charitable partners are Causewave Community Partners, The Community Place of Greater Rochester, Inc., and CURE Childhood Cancer Association!

It’s that time of year, wash away the salt and traces of winter all while supporting CURE!

www.causewash.com/curekidscancer

SAVE THE DATE:

June 4th: Survivors Day Picnic

June 11th: Cutting 4 A CURE

June 11th: LONGSHOTS 1ST ANNUAL & 2017 CURE CHILDHOOD CANCER GOLF TOURNAMENT IN MEMORY OF MADDOX LAWRENCE

June 19th: Fore for Four Golf Tournament

July 8th and 9th: Corn Hill Arts Festival

July 24th: 2nd Annual Patrick Carr Memorial Golf Tournament

August 5th and 6th: Park Avenue Festival

August 27th: Poker Run

September 23rd: Morton Fun Day

October 15th: 9th Annual Recipe for a CURE Sunday Brunch


We are excited to announce that we have partnered with Rite Aid and are now an official KidCents charity! KidCents is a program created by The Rite Aid Foundation that allows Rite Aid customers to round up their purchases to the nearest dollar and donate their change to help support kid-focused charities.

Here’s how you can enroll in the KidCents program and round-up to our charity:

Step 1: Enroll in wellness+ with Plenti (Skip to Step 2 if you are already a wellness+ with Plenti member)

  • Visit KidCents.com and click ‘Sign In’ on the left
  • Click the box on the right to ‘Enroll in wellness+ with Plenti
  • Complete registration process for wellness+ with Plenti
  • Click through to finish signing up in Plenti
  • When finished with both processes, you will be directed to RiteAid.com

Step 2: Enroll in the KidCents Round-Up Program

  • Visit KidCents.com
  • You should see your account logged in on the left. If not, sign in with the account information.
  • Click ‘Start rounding up today!’ dial on the left

Step 3: Designate Your Charity

  • Click ‘Select a Charity’ on the left
  • Type [INSERT CHARITY NAME HERE] and click ‘Select This Charity’

By rounding up, you are helping us to reach our goals by simply shopping at Rite Aid. Feel free to invite your friends and family to participate in the program. Imagine the change that your change can make!


Thank you for your support!

Women for WineSense – Rochester Chapter On April 11th CURE was invited to speak at the Women for WineSense – Rochester Chapter dinner at the Plantation Party House. We left with a full stomach and overflowing heart. The incredibly generous participants donated $1,120 to CURE!! Thanks so much for making a difference to our families.

St. Rita School Thank you so much to the students at St. Rita School who sold bookmarks and donated the proceeds to CURE! They raised $72.42!! Every bit helps and we are so thankful for their support!! 

Friends of Jason

Thank you so much to Friends of Jason who donated $2,428.50 to CURE!! Anne and James Latham raised the funds through a chicken barbecue and selling chocolate in memory of their son, Jason. We are so thankful for the generous support from Friends of Jason. 

A.P. Enterprises Property Services

We are so thankful for our friends at A.P. Enterprises Property Services who held an Easter Egg Hunt to benefit CURE on April 8th! Everyone had a great time and they raised $1,500 for CURE!! This is the equivalent to the cost for CURE to provide one month of parking passes! We are so thankful for the continuous generosity and support from A.P. Enterprises Property Services

Iroquois Middle School

Thank you to Iroquois Middle School who raised $712.26 for CURE!! The middle school participated in CURE’s Million Penny Drive and made it a competition of which homeroom could raise the most money! Congratulations to Mrs. Gottfield’s class who won the school competition and raised $99.01 for CURE!

CURE Million Penny Drive

Thank you to all the schools that participated in the CURE Million Penny Drive! Our Intern, Amanda worked very hard to coordinate with the schools and make the Penny Drive such a success! Participating schools include: Canandaigua Middle School, Community Nursery School, Chestnut Ridge Elementary School, Greece Athena Middle School, Iroquois Middle School, Pembroke High School, Perry Junior and Senior High School and St. Rita’s School! So far the Million Penny Drive has raised $4,436.36 and it isn’t over yet! Congratulations to Amanda on almost reaching her goal of $5,000!! Thank you to all participating schools!! 

We Want To Hear From You!


Wish List Items Needed:

We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support.  If you or a community group you belong to is looking for something to do for a charity, please consider donating items from CURE’s wish list so that we can continue to provide for our families.

Items Needed:

  • A cure for childhood cancer!
  • Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
  • Small pocket/purse-sized calendars
  • Paper towels and toilet paper (save your rolls, too! We have a project we are working on 🙂 )
  • Items for teens or young adults
  • Toys for kids under 3 years old
  • Gifts for the Survivors Day Picnic, June 4th – toys for boys and girls of all ages

We ask that all items be new and recently purchased.  Thank you!

We are currently looking for interns for the summer and upcoming fall semester.

If you are interested please reach out to Holly Dutcher at holly.dutcher@curekidscancer.com

Has CURE helped you? We would love to hear stories about how CURE has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com

What programming would you like to see at CURE? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to staff@curekidscancer.com


Bereaved Families Corner

“Spring Clean” Your Grief

By Megan Meade-Higgins, Licensed Master of Social Work

Winter is finally almost over! Trees are budding, animals are coming out of hibernation – even people are “thawing out” after the long, cold days of winter. It’s time to get ready for spring!

After A Loss

The death of a loved one can feel like the bitter days of winter. You go into hibernation, and turn yourself to cope with your pain and sorrow. It may be months before you pick your head up and look around and realized you’ve been immersed in your grief for so long that you’ve turned out everything else – your family, your friends, even the change of seasons. You can only just now start to look around and move a little more outside yourself. This is what I call the heart and soul’s “spring awakening.” It is the time in your grief journey when your heart and soul begin to “bud” with little shoots of hope – where you can recall your loved one’s death and still feel sorrow, but you can also begin to remember the joy of your relationship.

“Spring Cleaning” Your Heart and Soul

You will feel a momentum inside you when it is time to start “spring cleaning” your grief. Man people in your life may think they know when it’s best for you to start this process. Friends and family may tell you to “get over it and move on,” often before you are ready. But only you will know when the time is right. Respect your own timeline for grief; it will be different from everyone else’s.

One suggestion for everyone, however: DO NOT DO ANYTHING DRASTIC FOR ONE YEAR. The first year after a loved one dies is full of “firsts:” first holidays, birthdays, anniversaries, etc. Your loved one’s death is often too new the grief too overwhelming for you to make any major decisions such as moving, changing careers or beginning new relationships. Let yourself ease back into life. How you feel right after a death and how you will feel in a year will be different. Commit to the one-year rule, and when that is over, take a deep breath and take stock of your life. Where are you now?

The “Stuff” Does Not Equal The Person

When you are ready to begin to “spring clean” your grief, you will begin to go through your loved one’s “stuff,” clothes, belongings, etc. It will be sort of “life in review” for you. As you look through those papers and clothes and files and personal items, the things they loved and used and cherished, don’t be surprised if it opens up the sadness all over again. The intensity of this grief may take you by surprise, like an unexpected snow in April. This is normal! Remember: as you go through their belongings, you are NOT giving away the person; you are only giving away and throwing out the stuff. You can never give them away; your love for them will always be with you and comfort you. It is actually very healthy for you to reminisce and cry and daydream of your loved one. While you are literally cleaning out your house, you are also cleaning our your heart and soul…and that is healing.

“Spring Cleaning” Tips

One really great way to do this “spring cleaning” is with someone who loves you and understands this bittersweet time. Reminisce about your loved one. As you go through their belongings, tell stories of the life you shared with that person. There is comfort in the shared joy and sadness this task will bring. Sometimes, knowing you are helping others can relieve some of the grief you are feeling. Many people give away some stuff they clean out to charities so that the gift of your loved one’s life can go on. Keep your most treasured, favorite items to celebrate the life of the person who has died, and if you want, display them proudly!

Time by yourself can often be good for “spring cleaning” your heart and soul, too. Alone time gives you the chance to reflect on your life with your loved one, and to start thinking about where you are headed. Lots of people will tell you it will take time, but you’ll get “back to normal.” A very important thing to understand about losing a loved one is that you will never be “back to normal.” Things can never be exactly the same as when your loved one was alive. Instead, you will have to go on without that person physically in your life and create a “new” normal. Your loved one will always be with you, but now, it will be in a different way as you learn to live in the world without them there. How will it all turn out? No one knows…you cannot control the future or plan too far in advance. Make small changes, lean on your friends and family for support, and take it one step at a time. You CAN do it.

Seasons Change, But Love Never Dies

The death of a loved one is devastating. But death and loss are NOT the final word. Seasons change, and with death, relationships change, too. But in the circle of life, spring always follows winter, and new life grows from the greatest despair and loss. Embrace your pain, and when you are ready, do some “spring cleaning” and start letting go. Your emptiness will be filled with new gifts and ways of living your loved one, and you will be able to move on to the season of your life.

* This article was featured in the 2015 Spring Edition of the national newsletter of the Bereaved Parents of the USA

Support:

Are you looking for someone to help tutor your child? Boost provides supplementary tutoring for children with cancer and other chronic diseases, which may prevent normal educational development. This group of teachers will not replace the tutoring being provided by the school, but will coordinate with the school when possible and supplement the instruction the child has missed due to absences.  Boost tutors act as a “boost” to a child by helping him/her better understand material being presented at the child’s grade level.  Parents can call Linda Bolan at 585-317-7269.  Also the group is currently in need of  more volunteer tutors. For more information please go to www.boost4kids.com or contact Linda Bolan.

Educational Consultant Services from CURE

Do you have questions and concerns about your child’s schooling after diagnosis of cancer, brain tumor or blood disorder? CURE can help. Kathryn Wissler, M. Ed is available for educational consultation with Pediatric Hematology Oncology Patients seen at Golisano Children’s Hospital at Strong.  If you would like to speak with Kathy Wissler either in person or via phone, please contact Kiersten Kunick , CURE Parent Advocate, at 585-697-4470, or call the CURE office at 585-473-0180 and she will make a referral. This service is provided free for CURE families.

Outpatient/On treatment Support Group:

Kiersten Kunick will host an Outpatient/On treatment Support Group for parents at the CURE office once per month.

This meeting will be held from 12pm – 1pm on the 2nd Wednesday of every month.

Join us and connect with other outpatient caregivers!

Feel free to reach out to Kiersten kiersten.kunick@curekidscancer.com


Long-term Survivor Support Group:

Adella Ivison will host a Long-term Survivorship Support Group for caregivers at the CURE office once per month.

This meeting will be held from 6:30pm – 8pm on the 4th Wednesday of every month.

Join us and connect with others about late effects and more.

Feel free to contact Adella at adella.ivison@curekidscancer.com.


Facebook Live:

Kiersten Kunick and Adella Ivison, Parent Advocates, go live on Facebook every other Wednesday at 12pm.

They can answer any questions during this time, share upcoming news, provide support and connect parents with other parents.

Have a topic you’d like to hear about? Feel free to reach out to Kiersten kiersten.kunick@curekidscancder.com or Adella adella.ivison@curekidscancer.com and share!


Bereavement Group:

illustration of the forget-me-not flowers over white background

The first Wednesday of each month

Hosted by Kiersten Kunick and Adella Ivison

200 Westfall Road, Rochester 14620

Next meeting is May 3, 2017

Following our Brick Laying Ceremony

From 7-8:30pm

No reservations required


ROC City Sicklers:

ROC City Sicklers Logo

The third Tuesday of each month

UR Medicine

Conference room ACF A/B

Next meeting is May 16, 2017

6-7:30pm

Free parking provided by CURE Childhood Cancer Association

Food provided by Wegmans


Brian Bisgrove Home of Courage:

The Brian Bisgrove Home of Courage , located an hour away from Rochester) is a retreat and respite home for families with children who have life-altering conditions.   Children and their families are invited into the beautiful , handsomely-appointed log cabin for a 3 or 4 day stay of rest and repose, all completely free of charge.  At the Home medically fragile childere can experience a different kind of healing, one of the mind and spirit.  Its a place to let go of anxiety and stress and focus on the family.

The website (with more detailed information on the Home and the application) is www.homeofcourage.com.