Spotlight On Eric
Our journey with CURE began in October 2016. During a routine physical in July, Eric mentioned to his pediatrician he felt more tired than usual. From there, Eric went for routine blood work which revealed ‘Global Bone Marrow Failure’- meaning his blood counts were abnormally low. The next day we met the specialists at the Children’s Hospital who scheduled the first bone marrow biopsy. We were relieved to hear the preliminary results were negative for leukemia and the team most likely suspected Aplastic Anemia. We held on to that diagnosis until the results of the biopsy. Unfortunately, the results were concerning for Myelodysplastic Syndrome (MDS) and required a second biopsy which confirmed the diagnosis. We had come to understand the curative treatment for Aplastic Anemia was a Bone Marrow Transplant so we started the process of having Eric’s sister, Alyssa evaluated for a potential donor. MDS is technically a blood cancer, the treatment still required the bone marrow transplant- however the sense of urgency became much more significant. Fortunately for Eric, his sister was a perfect match. He was admitted in October, started is chemotherapy, and received his transplant on October 12, 2016. The first days were overwhelming, CURE was (and still is) an amazing support for us.
Fast forward to ~ day + 140 Eric is doing amazing. He turned 16 during his recovery and is learning how to drive. He is also back to school and starting to play soccer again. He is looking forward to the day when he no longer needs to take maintenance medications and takes great pleasure in negotiating with the providers about the doses. If everything goes per the plan he will be off his medications between 9 months and a year. Eric has demonstrated resilience during this difficult time and has appreciated the support from friends, family, and staff. Eric’s team has respected his sense of humor, candor, and wit throughout this journey.
Meet our new Program Coordinator Sam!
Sam joined CURE on March 1, 2017, with two years’ experience working in non-profit. Previously she was a Communications Coordinator and Grant Writer for Center for Disability Rights. She is a graduate from SUNY Oswego where she studied Public Relations. In her free time, she loves to figure skate and is a part of the Genesee Synchronized Skating Team here in Rochester. She also has two cats that she adores. She is incredibly excited to be joining the team and looks forward to contributing to the important work done by CURE. Welcome Sam!
Focus of the Month
ConServe Jeans Day
Our friends at ConServe hosted a jeans day for CURE. It was so easy and they raised $4,000!!! Thank you ConServe for your support to CURE!
Frisbee Tournament Fundraiser
In early February, 60 of Rochester’s ultimate frisbee players who are apart of GRADA – Greater Rochester Area Disc Association played in the 12th Annual Ultimate Bandanna Frisbee Tournament. They raised $1,000 for CURE!! Thank you so much for thinking of CURE and our families. You are amazing!
Headbands of Hope
Heather and her daughter Gracie stopped by the CURE office to donate headbands from Headbands of Hope and beanies from Love Your Melon. Heather, who is a cancer survivor herself, is a Hope Representative( New York Wears Hope) for this incredible company. For every headband purchased from Headbands of Hope, one is given to a child with cancer. We are so thankful for this donation; we know our CURE kids will love these!
CURE received a very generous donation of over 6,000 books from customers of Barnes & Noble over the holidays. We held two bookfairs at the CURE office in January and February for CURE families to come and get books.
Larry Masci Electric
CURE definitely felt the love on Valentine’s Day from our friends at Larry Masci Electric, Inc.. They donated 4 new IPads and covers for our CURE families to use when they are at the hospital! You are so wonderful!! We also got the sweetest visit from Angelina, who brought us a Valentine’s Day card signed by the whole office. We can’t thank you enough for your continued generosity!
CURE Kid Chefs
Over February break, CURE partnered with Gilda’s Club to put on a kids’ cooking class with Chef Dustin from Grappa at the Hilton Garden Inn and Chef DarLyn, the Chair of the Education Committee with the ACF Rochester. The kids learned how to make homemade meatballs, two kinds of pasta sauce and cannolis! Our CURE families had a such great time. Thank you Chef Dustin and Chef DarLyn for teaching them and to Gilda’s Club of Rochester for hosting!
Upcoming Events and Opportunities to Support:
8th Annual 5K and Fun Walk
Presented by The Cornerstone Group of Wells Fargo Advisors
OH THE THINGS YOU WILL SEE
IN LOWER SENECA PARK.
When: April 29, 2017
Where: Longhouse Shelter, Seneca Park
5k Run and Fun Walk kicks off at 9:30 AM
New for 2017!
Price for registration is $15. This includes a CURE bracelet and CURE sunglasses.
Raise additional funds through donations and/or fundraising teams. Your direct donation and those made to your fundraising page contribute to your level of reward*.
$30- receive a cotton t-shirt and CURE sunglasses
$60- receive a tech t-shirt and CURE sunglasses
$100- receive a hooded sweatshirt and CURE sunglasses
Register yourself and your team today by clicking here!