CURE Childhood Cancer Association

January Newsletter

CURE main logo pic

A Message from the Executive Director

Happy New Year, CURE Families and Friends.

I am completely in awe of the giving spirit that surrounded us here at CURE during the months of November and December. This holiday season, we were afforded the opportunity to assist 31 CURE families (16 through the generosity of our community and business partners) for the holidays. We also coordinated obtaining wish lists for 22 families so the organization Anna’s Wish could make Christmas wishes for oncology families currently on treatment come true. We had private sponsors drop off gifts and tell us that in lieu of purchasing gifts for each other, their family sponsors a CURE family. The selflessness of our CURE families also never ceases to amaze me. We had one family decline holiday help and, instead, created a Go Fund Me page to raise money for CURE. The CURE mom then went out and purchased wish list items for the families CURE was sponsoring, ensuring a happy holiday. I was even blown away on Christmas Day as I went to Legends, the restaurant within The Radisson Hotel Rochester Riverside, to pick up food for our families who were in the hospital. We ordered food for the three families we knew would be admitted and in the hospital on Christmas Day. They not only added beverages and dessert assortments, they also wrote cards for the families and donated the food! I know I have mentioned this over and over again, but CURE would not exist without the generosity of our neighbors. You all truly make what we do possible. Together, we are helping families during some of their darkest days. Together, we are alleviating burdens from families. Together, we are making a difference.

To quote Dr. Seuss: “Unless someone like you cares a whole awful lot, nothing is going to get better. It’s not.”

Because of you, we are able to help.

…because kids can’t fight cancer alone.

Hoping this is your BEST year yet!

Warmest Wishes,

Holly

CURE is currently in search of a Parent Advocate. This individual will be working Wednesday through Friday and will also be at various events and activities throughout the year. Any applicants MUST be the parent of a childhood cancer survivor or child with a chronic blood disorder. Additionally, experience or education in counseling or mental health is preferred. If you are interested in the position and want to learn more, please contact Holly Dutcher (holly.dutcher@curekidscancer.com) with your resume.

Spotlight On Braxton Anjo

Braxton is a kind hearted, brave and energetic 5 year old.  He always seems to make people smile with his unique personality and sense of humor.  Braxton lives on his family’s apple farm with his Dad Mark, Mom Chelsie and two dogs, Sissy and Franky.  He is most happy and himself playing outside. Braxton loves to swim, camp, learn about apples and tractors, go on vacation and spend time with all of his family, especially his cousins.  This year Braxton has taken on many new adventures such as Pre-K, Camp Good Days Jr, soccer camp and swimming class.  When Braxton grows up he wants to be a farmer.

Braxton was diagnosed with Acute Lymphoblastic Leukemia in September 2013 when he was just two years old.  He has been on treatment for over 3 years. With his mom and dad by his side on December 21st, Braxton rang the bell signifying his end of chemo!! Braxton is so brave and such an inspiration to anyone that loves him, knows him or has heard his story. Way to go Braxton!!

Focus of This Month

Congratulations, Frank!

Frank was diagnosed with A.L.L. in May of 2013. Surrounded by his family, he rang the bell of hope signifying his last chemo treatment at Golisano Children’s Hospital at Strong!

Our friends at Lacy Katzen LLP 

 

Thank you to our amazing friends at Lacy Katzen LLP for their very generous donation to CURE! They also donated food baskets which were donated to CURE families this holiday season. CURE is blessed to have friends like you.

Every year at the holidays CURE provides holiday assistance to over 50 families. We could not do this without the amazing help and generosity of our wonderful community. We would like to give a HUGE thank you to some of our awesome CURE friends who sponsored families this holiday: Wendy Monks, Sonya and Family, Frontier Pioneers, Rowe Family, Lanie Bittner, Home Depot of Rochester, Diana Stanton Bronson, Laurie Bauer, Rochester Youth Hockey Bantam Minor Red Team, Pixos Print, Lacy Katzen LLP,  Kevin &  Ann Marie Clar, Kara Long, #TeamAngeline, Mark’s Pizzeria, Fight Club of Rochester, Anna’s Wish, Greater Rochester Orthopedics, Johnson & Johnson, Barnes & Noble, Pittsford Pre-Med Club and Fairport Spanish National Honor Society. We would also like to thank Janelle, Loretta and Connie for volunteering your time to help us wrap gifts for all of the families. 

3rd Annual Tacky Sweater Party 

Despite being a snowy cold night, our 3rd Annual Tacky Sweater Party was a huge success! We are so appreciative to our friends at Nosh, ButaPub and Black Button Distilling for hosting an awesome food and drink throwdown.

 

Some of our friends dressed in their tacky sweaters from the Radisson Hotel Rochester Riverside and the winner of the tackiest sweater contest was Carlos.

Honorable mention goes to Norah Pritchard, who had the tackiest getup, but was unable to attend the event due to the weather.

Hatsgiving

Check out all these amazing hats that were donated to CURE by Jeremy from Hatsgiving. They donated 175 hats for our CURE families to help them stay warm in the cold winter months. Jeremy started Hatsgiving in 2012 when he was just 8 years old and since has donated over 5,771 hats to pediatric cancer patients across the country. Thank you Jeremy and Hatsgiving for all the great work you do!

We are so thankful to Kay Jewelers, both their Greece and Victor Stores, and Jared The Galleria of Jewelry for donating stuffed animals to our families for the Holiday Party! It is always so great to see a smile on a child’s face as they hug their new stuffed animal! Thank you Lynne Stiefler for facilitating this program for CURE!

Look at how awesome these Pittsford Pre-Med students are! They collected food and made them into food baskets for our CURE families. Thank you so much for thinking of our CURE families during the holidays!

For the past 3 summers our CURE friends Kate, Ryan, Megan and Tosh Shaughnessy have put on an outdoor movie night and talent show for their neighborhood to help raise funds for CURE. This year they raised $635 and over the past 3 years they have raised $1700!! Thank you so much for thinking of our CURE families and having fun while doing it! 

On December 1st the Barnes and Noble Pittsford store held a bookfair for CURE which raised $121.  In case you missed out on this awesome event, we had fun filled night of activities at the bookfair including Princess Belle, Santa and carolers from Spencerport. We are also thankful to Duffy from WCMF for coming to wrap gifts! The Pittsford Barnes and Noble store has also been collecting items for CURE over the past 2 months during their book drive. They have donated over 6,200 books, stuffed animals, DVDs and more! We can’t thank them enough for all their generosity and promotion of our organization.

      

A HUGE thank you to Raider Nation Rochester for your generous donation of $2,000 to CURE!!! Raider Nation Rochester has been collecting donations throughout this year’s football season. With their donation they raised the equivalent of over a month of parking passes for our families!

Upcoming Events and Opportunities to Support:

8th Annual 5K and Fun Walk

Presented by

 

New Year’s Resolutions tend to revolve around improving oneself and the environment around you. If your resolutions involve becoming more active in your community and helping others, CURE has opportunities for you!

We are currently in the planning stages of our 8th Annual 5k and Fun Walk which will be held on Saturday, April 29th at Lower Seneca Park. If you would like to join a committee for this event, you would be fulfilling your promise to yourself to become more active in your community AND you would be helping out a great local cause! We need help in the areas of participant recruitment, sponsor recruitment, registration, and much more! If you would like to become involved with this event and have an area that you would like to work on, please contact Kim Collins (kim.collins@curekidscancer.com)

Section V Hockey:

This year marks the 30th year of the Monroe County High School Hockey League William J. Quinlan Memorial Senior Select Hockey Game – Dedicated to the loving memory of William and Marguerite Quinlan. Section V Hockey has been a supporter of CURE for many, many years. This year’s big games will be played March 18th. We appreciate the Booster Clubs of these teams submitting ads for our program book, year after year, in support of CURE. Additionally, we appreciate the players purchasing tickets to the game, which also benefits our organization. The Senior Select Hockey Tournament recognizes the top Senior Hockey players in Section V, giving them one more opportunity to represent their high school and play a great game of hockey!


Painting with a Twist Fundraiser:

 painting-with-a-purpose 

To benefit CURE Childhood Cancer Association

January 22, 2017

Henrietta Location

3259 S Winton Rd #104, Rochester, NY 14623

6 – 9 PM

Bring your own beverages, we will provide the treats!

We will have raffle items, too! It’s sure to be a great time! Invite your friends! We will be painting the image above!

Sign up today, Click here to register


logo

Laser Wash car wash bundles are being sold for $32.75! Buying car washes through this page helps us raise $15 for each 3-wash package sold. You receive an email with wash codes good for 3 premium washes for use at participating locations. This is a zero-cost fundraiser for us, and it gives you a good value on something you already use.

HURRY before the program ends!

Purchase washes here.

Embrace Your Wild Side with WEC’s Animal School

Did you know that reindeer actually do have red noses? Or that North America is home to bison, not buffalo? Animal School will get you chirping about all sorts of things you never considered within the Animal kingdom.

Animal School is an educational program run through the Wildlife Educators Coalition nonprofit group. We are a mom-and-pop operation managed by Nick Hadad and Katie Gill that is based out of the Rochester, NY area. Animal School teaches people of all ages about animals, wild and domestic, through interactive demonstrations and stories. Our talking animal characters – i.e., mascots and puppets – have a plethora of fables handed down through their families that they are eager to share with you. They also teach about hunting, gathering food, migration, their species’ social orders, and how animals impact ecosystems. At present, our talking characters include an arctic fox, a red fox, a coyote, a kestrel – the world’s smallest bird of prey, a hawk, and a wolf. There are also a vulture and bison in the works. We even have Rudolph available for holiday events and activities!

Whether at schools, arts festivals or senior centers, Animal School has something for everyone.

For more information, visit Animal School’s blog, https://animalschoolapaws-onblog.org/, and follow us on social media for all sorts of fun animal facts, photos, videos and updates from the animal world.

Twitter: @WECAnimalSchool          

Facebook: https://www.facebook.com/WECAnimalSchool/

Instagram: https://www.instagram.com/animal_school/

YouTube: https://www.youtube.com/playlist?list=PLI0kQykroXfLe8_JT_YK8VEwcllHwZY-_

Stay wild, friends, and happy holidays!

We want to hear from you!

  • We have a “Wall of Fame” at the Twelve Corners Starbucks that features artwork of our CURE kids. We would love to feature your work and the wall could use a little love. Please do not include last names on your pieces. They can be sent to the CURE office or given to Kiersten or Tonia at the hospital.
  • Has CURE helped you? We would love to hear stories about how CURE has helped you and your family. These stories will be shared with grantors, donors, on our website and social media. We want the community to know their contributions are making a difference! Submissions can be sent to staff@curekidscancer.com
  • What programming would you like to see at CURE? We are working on developing more Parents’ Night Out events (where would you like us to set one up??) as well as joint programming with other local organizations. What would you like to see us work on? Please send suggestions to staff@curekidscancer.com
  • Are we doing a good job? Share stories about staff members helping you and your family. We’d love to hear!

Our most sincere condolences…

Abigail Spring– November 26th

Brianne Margeson– December 3rd

Braddock Young – December 6th

Support:

Bereavement Group:

illustration of the forget-me-not flowers over white background

The first Wednesday of each month

Hosted by bereaved parents, Jim & Andrea Spencer

200 Westfall Road, Rochester 14620

Next meeting is January 4th, 2017

From 7-830pm

No reservations required


ROC City Sicklers:

ROC City Sicklers Logo

The third Tuesday of each month

UR Medicine

Conference room ACF A/B

Next meeting is January 17th, 2017

6-730pm

Free Parking

Food provided by Wegmans


Outpatient:

2nd Wednesday of the month

10am-11am

CURE Office- 200 Westfall Road, Rochester 14620

no RSVP needed


Facebook Live:

Kiersten Kunick, Parent Advocate, goes live on Facebook every Wednesday at 1pm.

She can answer any questions during this time, share upcoming news, provide support and connect parents with other parents. Feel free to ask Kiersten to cover a specific topic by contacting her at kiersten.kunick@curekidscancer.com


Brian Bisgrove Home of Courage:

The Brian Bisgrove Home of Courage , located an hour away from Rochester) is a retreat and respite home for families with children who have life-altering conditions.   Children and their families are invited into the beautiful , handsomely-appointed log cabin for a 3 or 4 day stay of rest and repose, all comepletely free of charge.  At the Home medically fragile childere can experience a different kind of healing, one of the mind and spirit.  Its a place to let go of anxiety and stress and focus on the family.

The website (with more detailed information on the Home and the application) is www.homeofcourage.com.