CURE Childhood Cancer Association

August 2016 Newsletter

CURE main logo pic


candle

We would like to extend our deepest sympathy to the family and friends of

Charlotte Dewey

7/5/2016

Jonah Moshier

7/17/2016


A Message from the Executive Director

13466329_931896705015_7796494209366456423_nHappy August, CURE Families and Supporters!

I am hopeful you have all been enjoying your summer. We have been blessed with some beautiful weather (although, it is hot…but I prefer this to snow any day). Hopefully, you have had opportunities to make memories with your loved ones during these long summer days. If not, don’t worry. We still have a whole month left to do so! Take advantage of this time. Slow down. Enjoy the sunset. Go outside. Take a walk. Be grateful for every single day.

I am certainly not wishing this beautiful weather or summer away, but I wanted to let you all know that we have some plans in the works for next month – Childhood Cancer and Sickle Cell Disease Awareness Month. CURE was founded under the principle of advocacy. Our founders were determined to make a difference to families like theirs by advocating for them. For those of you who are unaware, the very first project CURE worked on was providing roll away beds at the hospital for parents so they did not have to leave their child’s side while they were undergoing treatments for cancer. At the beginning of this year, I promised that we would advocate for families, especially this year, in honor of our big 40th anniversary. Year after year, I hear frustrations from parents and supporters about how September is not gold enough and isn’t promoted as heavily as October for Breast Cancer Awareness month. Now, please manage your expectations because we are one small group, but we are doing what we can to make a big impact this year. As such, we have partnered with some local businesses to turn September gold and red. Keep a look out for local businesses supporting the movement to spread awareness for pediatric cancer and sickle cell disease. Our friends at the Radisson Hotel Rochester Riverside will be flying a gold flag beneath their Radisson flag for the entire month of September. We are requesting local landmarks light up gold or red in an effort to raise awareness. We will be decorating the outside of our office for the month of September. We are working with a local radio group to run PSAs throughout the month. CURE is working with the RocCity Sicklers to put together a picnic for our Sickle Cell families. There are more exciting things coming down the pipeline and we CANNOT WAIT for you to see and hear!

Do you and your business want to join the movement and make a difference to our families? We will be selling lawn signs indicating that September is Childhood Cancer Awareness Month and September is Sickle Cell Disease Awareness Month (2 separate signs) for $10 each. The website to purchase these signs is: https://curecca.ejoinme.org/CUREAwareness . Pick up for the signs is detailed on the website above where you would purchase the sign. We are hopeful that businesses and families alike will help us spread awareness through purchasing signs. Have another idea? Reach out to us! We want to empower the Rochester community to advocate for our families – their neighbors. Let’s start a movement so everyone knows September is Childhood Cancer and Sickle Cell Disease Awareness month. Working individually, our voice may not be heard. However, working together, our voices will be a roar! We can make a difference. Together.

I look forward to your feedback, e-mails and ideas! Don’t be shy! Let’s see what we can do to really make an impact!

Enjoy the rest of your summer!


Support Childhood Cancer & Sickle Cell Awareness Month in September!

Childhood Cancer Awareness Lawn Sign:

$10.00

pick up at CURE office

August 22nd through August 26th

between 9am and 5pm

or Saturday August 27th between 2pm and 5pm

Click Here to Purchase

Or send a check to 200 Westfall Road, Rochester 14620. Please indicate on the memo line whether the check is for a childhood cancer awareness lawn sign or a sickle cell awareness lawn sign.


Sickle Cell Awareness Lawn Sign:

$10.00

pick up at CURE office

August 22nd through August 26th

between 9am and 5pm

or Saturday August 27th between 2pm and 5pm

Click Here to Purchase

Or send a check to 200 Westfall Road, Rochester 14620. Please indicate on the memo line whether the check is for a childhood cancer awareness lawn sign or a sickle cell awareness lawn sign.


Congratulations, Matthew!

matthew

Surrounded by his mother, father, sister and brother, 16 year old Matthew Przeporia, rang the bell of hope at Golisano Children’s Hospital to signify the end of  treatment after 22 weeks!


Congratulations, Addison!

addison

Addison Irwin, surrounded by his family, rang the bell of hope on July 17th on his last day of chemotherapy treatment at 19 years old, Addison was diagnosed with stem cell rhabdosarcoma just shortly after Easter of this year.


40 Friends of CURE!

Amy Margolis:

Amy

Amy Margolis is a very busy woman, but always seems to make the time to help CURE.  She is a business woman with her own graphic design company and has done work for the Memorial Art Gallery, Nazareth College and has created posters for the Lilac and Park Ave Festivals, just to name a few. She came to CURE nearly 11 years ago as a volunteer baker for CURE’s support groups. Within a short time she was offering her graphic design services and gave CURE’s logo a new look, encompassing the loving embrace of parent and child.  Incorporating her love of baking, graphic design and desire to support CURE, she created a cookie recipe calendar for CURE several years ago with her own recipes and photos of her desserts. In addition, she has designed many of CURE’s brochures and countless event invitations and posters with an artistic flare. She is always ready, willing and able to help.

We are so grateful for her contribution of time, talent and her dedication to the children and families of CURE!

Fusilli Family:

As part of our 40 friends of CURE, we would like to recognize the Fusilli Family. The Fusilli Family is a CURE family and has also given back to our organization tremendously. The family has participated and attended several CURE events. Additionally, the Webster Schroeder Lacrosse program was interested in organizing a clinic in 2014. The Fusilli Family kindly offered up CURE as the organization to receive proceeds from the clinic. Because of their thoughtfulness, $4,000 was raised for our organization!

We thank them for always thinking of CURE and keeping us in their minds & hearts.

Aladdin’s Natural Eatery:

aladdins-natural-eatery-logo

Aladdin’s Natural Eatery has been a friend to CURE for many years. We have been the recipient of generous donations of IMS Barter dollars from Aladdin’s for the past several years. IMS Barter money is especially handy for our printing needs, as we utilize donated IMS Barter to pay for much of our annual printing. We appreciate Aladdin’s Natural Eatery being so kind to our organization. Be sure to check out their restaurant on Monroe Avenue and in Schoen Place! The food is just delicious!

Rochester Press Radio Club:

RPRCComposite

The Rochester Press-Radio Club has been a friend of CURE for several years. This organization issues grants to local children’s charities annually. The Press-Radio Club was formed by 12 local print and radio sports reporters, and its first money-raising effort was a basketball game between local press and radio personalities between halves of a Rochester Royals National Basketball Association game. The following year, a capacity crowd was at the first fund-raising dinner at the old Seneca Hotel on South Clinton Avenue near East Main Street. Taken from their website: “We honor Chris Welch for her strength and courage, and for being the spark that began a wonderful charitable organization, that has given over a million dollars to local children’s charities. We also would like to take a moment to thank her dad, Charlie, for his instrumental role in making it all happen.” Over the past 5 years, the group has donated nearly $10,000 in grant monies to CURE for our Emergency Financial Assistance fund.

Thank you, Rochester Press-Radio Club for not only making a difference to our families, but to so many families in the Rochester area.

Additional Resources:

Pediatric Brain Tumor Foundation

For additional resources, please click the link below-

Click Here

includes: Advocacy, camps, scholarships, clinical trials, educational resources, financial aid, general information, grief and loss, peer-to-peer support, survivorship, transportation and much more!

Jamie’s Journey

cancer from the voice of a sibling

www.siblingcancerbook.com

a book for siblings

please email chelsea.lepore@curekidscancer.com if interested


Focus of the Month!

CauseWash:

https://rochester.causewash.com/partners/cure-childhood-cancer-association

CauseWash provides a simple way to support local causes by purchasing car washes through CauseWash.com. You get a quality car wash at a competitive price. $6 of each $29.97 goes to CURE. We have two matching donors, so your impact is doubled!


Corn Hole Tournament:

Raider Nation Rochester’s 2nd annual Corn Hole Tournament, hosted on June 26th raised a total of $750!!!!

We would like to thank our friends at Romig’s Tavern for allowing the corn hole tournament to be played at their restaurant AND to Joe Spinelli and all of our friends at Raider Nation Rochester for donating the proceeds of the event to CURE!


Radisson Riverside 4th of July Pool Party:

Monday, July 4th, the Raidsson Riverside Rochester Hotel hosted the roof top pool party for anyone who wanted to come! They had grilling and a prime spot for the fireworks. There was no admission, but the Radisson generously offered to have a walk in donation box for people who wanted to make a donation to CURE! We would like to thank everyone at the Raidsson who has been so generous to CURE over the past year. The event raised over $200.


2nd Annual George Park Memorial Golf Tournament:

george park golf

On Sunday, July 17th, our community remembered George Park, who passed away early last year. Robert Park and his family organized the 2nd Annual George Park Memorial Golf tournament, which was held at CenterPointe Golf Club in Canandaigua. Hosting 95 players, the group raised over $4,000 for CURE!! We are sincerely appreciative of their support. Be on the lookout next year for the event, too, as they are hoping to not only host it again but also beat this year’s number of golfers! Thank you to the Park family for keeping CURE in your thoughts and for advocating for our families.


Randy and John Cena:

randy prue

Randy Prue, a 27 year old cancer survivor from Brockport, NY

had his dream come true on July 25th, with the help of the Dream Foundation.

Randy’s wish was to meet WWE Professional Wrestler, John Cena.

John and Randy spent the day together taking pictures and getting autographs and Randy even had front row seats to Johns Cena’s match.


Back to School Assistance

If your kids are heading back to school this September and you’re looking for some help, please let us know. CURE can provide a draw string backpack filled with a folder, a notebook, card game, construction paper, crayons, tissues and a water. If you’re interested, please contact chelsea.lepore@curekidscancer.com or call the office at 5854730180. Please be prepared with: the family’s last name, number of kids who need backpacks, genders of the kids and a pick up time and date. The bags will need to be picked up at the CURE office Monday-Friday between 9am-4:45pm or August 27th from 2pm-5pm.


Thanksgiving Day Meal Assistance

Irondequoit Kiwanis Meal Drive

Delivered on Thanksgiving Day!

includes: Turkey, gravy on the side, mashed potatoes, stuffing, vegetables and desert

deadline- November 18th

If interested, please contact chelsea.lepore@curekidscancer.com

or call the office at 585-473-0180

Be prepared with: first and last name, home address for delivery, valid phone number and number of meals needed

for more information, call their office at 585-544-5650


Recent Events!

C4ACCutting 4 a CURE:

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A fun-filled day to raise money and awareness for CURE Childhood Cancer Association and to collect

hair donations to send to Children With Hair Loss

We would like to thank Simply Glamorous Salon and Spa in Irondequoit and Beau Monde Salon and Spa in Victor

for hosting the event

we would also like to thank all the vendors involved!


1st Annual Patrick Carr Memorial Golf Tournament:

pat golf

We would like to thank Brighton Securities for being the presenting sponsor at the Patrick Carr Memorial Golf Tournament, ASP Industries for being the albatross sponsor and Chili Country Club for holding the tournament at their course. This tournament would not have been possible without the friends, family and supporters of Lil’ Fighter (Patrick Carr).


Harmony Hills Farm Family Fun Day:

Thank you to Sheila Sulli, Harmony Hills farm owner, for donating all her time, services and food for a day of fun for our CURE families! They had a blast!

The families also LOVED the princesses from The Princess Project, a non profit organization located in NYC that donated their time for the day and their trip up to Rochester to spend the day with the kids! Be sure to check both out online and via social media!

farm dayfarm day 2


Upcoming…

Morton Fun Day:

Saturday, September 17, 2016

Morton Baptist Church

1152 County Line Rd,

Morton, NY 14508

FREE OF CHARGE FOR ALL CURE FAMILIES

Includes: lunch, horse rides, wagon rides, games, prizes, pumpkin picking, animal petting and feeding

all services generously donated by the Morton Baptist Church


Annalise’s Friends

Annual 5k and Fun Walk

anna

Saturday, September 24th – Canandaigua, NY

Register today!


8th Annual Recipe for a CURE Sunday Brunch

October 9, 2016

volunteer, committee and sponsorship opportunities available!

Contact holly.dutcher@curekidscancer.com with more information.

Celebrate our 4oth Anniversary by walking with us down the yellow brick road!

For more information, please visit: https://curecca.ejoinme.org/8th-annual-recipe-for-a-cure


Group Meetings

Bereavement Group:

bereavement

the first Wednesday of every month

hosted by Jim and Andrea Spencer

located at the CURE office

200 Westfall Road, Rochester 14620

7-830 pm – August 3rd

no reservations required


ROC City Sicklers:

ROC City Sicklers Logo

the third Tuesday of every month

Sickler Advocates of Rochester

UR Medicine

Conference room ACF A/B

6-730PM

Free parking

August 16th


Painting with a twist for CURE families:

Painting

Click Here to Sign Up!

password: CURE

August 11th


LaserTron for CURE parents:

October 21st, 2016

lasertron

stay tuned for more details!

contact chelsea.lepore@curekidscacer.com if interested!


Spot Light On….

Nosh:

Nosh Restaurant located at 47 Russell Street in Rochester is now open! Make sure you go and check it out and don’t forget to get an amazingly delicious pork belly corn dog! $1 for every corn dog sold will go directly to CURE. Bostrom Farm will match that donation by giving an extra $1 for every corn dog sold!

better corn dogs

Ongoing Programs

CURE Picasso Art Program Needs your Art

 We are searching for artists who love to paint, color or draw.  CURE will be making note cards to send to families and sponsors throughout the year and would love to have original art pieces from CURE kids to create these note cards. Pieces should not be larger than 8 1/2 x 11.  No lined paper please. It can be any theme but please refrain from using words in the art work. It can be sports or nature or self portraits or whatever the artist would enjoy creating. Artwork will be debuted at the Starbucks at Twelve Corners in Brighton this summer.  Names should go on the back of the piece, not the front.

Artwork will also be hung on our Wall of Fame at the Twelve Corners Starbucks. HELP US PAINT THE TOWN GOLD FOR CHILDHOOD CANCER AWARENESS MONTH AND RED FOR SICKLE CELL DISEASE AWARENESS MONTH and submit your artwork so we can have a new display for September!!

Please send artwork to the CURE office (200 Westfall Road, Rochester, NY 14620).


Boost Tutoring

Boost tutors are available during and/or after treatment for as long as needed, even after returning to school.  These services are provided free of charge by highly qualified teachers who are dedicated to making a difference in the lives of children.  If your child is struggling with schoolwork, even if treatment was completed long ago, please contact Linda Bolan at 585-317-7269 or Linda.Bolan@curekidscancer.com to learn more about how boost tutoring may be able to help.  Tutors are available during the summer as well as during the school year. Boost is also in need of Volunteer Teachers- K-12+ experience – who can help facilitate the tutoring. Please contact Linda Bolan if you are interested.


Keeping Tabs on Cancer with Hailey

Slide4

CURE has decided to support Hailey in her quest to collect pop tabs and has started a program called “Keeping Tabs on Cancer with Hailey”. If you would like to participate, you can collect pop tabs off of aluminum cans and can even ask if your local school, girl scout or boy scout troop or even place of work would like to participate. It doesn’t cost anything to you; all it takes is just a few seconds to pop the tab off your can. You can either drop the tabs off at the CURE office, ask us to pick them up (if there is a large number) or take them to your local recycling center and pop the check in the mail to CURE. Every little bit helps in support of our families and even this small act can add up.


Amazon Smile:

amazon smile

Did you know that Amazon Smile works JUST like Amazon except you can be supporting your favorite charity while shopping?! If you select CURE (see link below), a percentage of your purchase will be donated to us! Shopping AND helping local families? Can it get any better?!


Smallprint:

small print roch
Captures your child’s fingerprint, hand print, foot print or artwork in silver pendants for necklaces or bracelets, cuff links or key rings. Smallprint has offered that 15% of all jewelry pieces purchased would go to CURE Childhood Cancer Association.  You can see more online at www.smallprint.com or you can contact owner, Alicia Thompson, for more information and how to order.  Her contact information is 585-402-9028 or email her at alicia.thompson@smallprint.com