Spotlight On James
You never think your child who has been healthy his whole life can be hit with a devastating disease but that is what happened to our 15 year old son, James last April. James came home from school one day saying he had to sit out of gym class because he was getting dizzy. We took him that day to his pediatrician and found out how seriously low his blood counts were. James was immediately referred to Strong Memorial Hospital’s Pediatric Hematology/Oncology Unit. After several more blood tests and a bone marrow biopsy, it was determined James had a very rare blood disorder called PNH (Paroxysmal Nocturnal Hemoglobinuria). It was a shock to all of us, especially when we learned that James needed a stem cell transplant. We didn’t have to look too far for a donor as James has an identical twin brother named Jacob. James was admitted into Strong at the end of June and immediately started his chemotherapy treatment. It was around that time we first met the Parent Advocates from CURE. Besides answering the many questions we had, they also offered support in many other ways. When James was having his worst days, the CURE Advocate always managed to get him to smile and eased his mind. After many weeks in the hospital, James was finally able to come home just before his sixteenth birthday.
James is now more than 8 months post-transplant and feels terrific. One of his passions has always been volunteering and working within the community. James remembers the day CURE came in with this big comfort bag for him with games, a word search book, cards, a blanket, pillow case, toiletries and so much more. He knew one day he would like to do something to give back. Well that day happened at the end of March when the Youth Group he belongs to held a Lenten soup supper with all the proceeds donated to CURE. This was one of the first events James has been able to take part in since his transplant and he is looking forward to many more! Despite having a tutor at the beginning of the school year, James never skipped a beat with his assignments and is on the high honor roll with distinction at his school. He is slowly getting back into all his activities and is now learning how to drive. James hopes to be off all of his maintenance medicines before his one year anniversary in July! We are truly blessed and very grateful to everyone for their support and care during James’ illness.
Free CURE Programming and Events
8th Annual 5K and Fun Walk
Presented by The Cornerstone Group of Wells Fargo Advisors
OH THE THINGS YOU WILL SEE
IN LOWER SENECA PARK.
When: April 29, 2017
Where: Longhouse Shelter, Seneca Park
5k Run and Fun Walk kicks off at 9:30 AM
New for 2017!
Price for registration is $15. This includes a CURE bracelet and CURE sunglasses.
Raise additional funds through donations and/or fundraising teams. Your direct donation and those made to your fundraising page contribute to your level of reward*.
$30- receive a cotton t-shirt and CURE sunglasses
$60- receive a tech t-shirt and CURE sunglasses
$100- receive a hooded sweatshirt and CURE sunglasses
Register yourself and your team today by clicking here!