CURE Childhood Cancer Association

June Newsletter

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Cheryl Dinolfo, County Executive, Proclaimed June 5th, 2016 as CURE Childhood Cancer Association Day!

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A Message from the Executive Director

Hello CURE Friends & Supporters,

Happy Summer and Happy June! There is a lot to celebrate during this month – National Cancer Survivor’s Day, the end of a school year, graduation, Father’s Day…here at CURE, we are celebrating Mary Gallis. As you may know, Mary is retiring from CURE after a 17 year long career here. If you have had any interaction with CURE over the past 17 years, chances are that you have, in some way, been in contact with Mary. In 2014, I nominated her for the RBJ Nonprofit Career Achievement Award. I would like to share with you how much Mary has meant to me and to CURE. (I apologize about the length, but it doesn’t nearly express enough how integral Mary Gallis has been to this organization):

11377303_980337418672542_1579062875267836382_n“I am writing to you today regarding my nomination of Mary Gallis for the Career Achievement Award. Mary’s official title is the Director of Operations for the CURE Childhood Cancer Association, but a more appropriate title would be the “lifeblood” of CURE. The definition of “lifeblood” is “the indispensable factor or influence that gives something its strength and vitality”. This is absolutely true of Mary. She has been an integral part of CURE for 15 years. If you ask anyone who has been involved with the organization over the past 15 years, no matter what level of involvement they had, they would smile and say that they know Mary Gallis. It is very apparent that she gives 110% to CURE each and every day. She selflessly does whatever she can for the organization, attends as many events as she can (regardless of her own personal schedule) and is a true advocate for the organization. She truly believes in our mission as a nonprofit and does whatever she can to fulfill the mission. The knowledge she has about the events, the families we help and our organization as a whole is incredibly immense. She takes the time to get to know the families, show them compassion and still manages to fulfill her specific job duties. She is such a role model to me and I aspire to be like her, even if I only end up being just ½ the person she is because I know that will still be incredible. Her strength is admirable, especially her strength in making decisions and doing the right thing. She is a quick-thinker, optimistic, a hard-worker and innovative. She is the pulse of this organization and it would not be the same without her.

Mary is a leader. I came across an article in Forbes recently about the “Top 10 Qualities That Make a Great Leader” (http://www.forbes.com/sites/tanyaprive/2012/12/19/top-10-qualities-that-make-a-great-leader/) and couldn’t help but think this article was written about Mary. You see, she was previously the Associate Director of the CURE Childhood Cancer Association, but wanted to step back from the organization a little bit because her daughter (who is a Leukemia survivor) had her first child – Mary’s first grandchild, a granddaughter. Despite the incredible celebration of this miracle baby, Mary still continues to devote an incredible amount of her time and efforts to CURE and, quite frankly, to me. She has been mentoring me, teaching me about different aspects of the job and overseeing my planning of our two very large fundraising events. I couldn’t do my job without Mary’s help. The Forbes article describes leaders as honest, communicating with others, a sense of humor, committed, have a positive attitude, are creative, intuitive and can inspire. I was trying to cut down on how many of these qualities to discuss in regards to Mary, but I can’t, because she possesses all of them. Mary makes honest and ethical behavior a key value, which sets an incredible example for myself and my colleagues. Honesty should be at the forefront of our minds in all decisions we make – especially in the nonprofit sector. It is important that we articulate what we are doing and are transparent to those outside of the organization. Mary is a phenomenal communicator. She has helped me to create timelines and set goals to ensure the large fundraising events occur as they should. Despite her busy schedule, she always takes time to communicate with me about where certain items stand and how we can achieve the specific goals we have set. Mary is funny; she has a great sense of humor that keeps things light. Given the nature of the individuals we are working with (families coping with childhood cancer and chronic blood disorders), it is important to keep things light sometimes and to add humor to our day. Mary is so great at balancing humor with compassion. Again, I admire her ability to do this and hope that someday I can do the same. Mary’s commitment to CURE is unwavering. As I mentioned above, she goes above and beyond with everything she does – including attending as many events as she possibly can, helping everyone in the office as much as she can and dedicating her energies to improving the lives of local families. Her positive attitude is admirable as well. Working for a nonprofit can sometimes bring you down, especially if the economy isn’t doing well and people are unable to donate as much as they had in the past. But Mary puts a positive swing on just about everything. Her optimism is commendable. The creativity displayed by Mary over the past 15 years is inspiring. SHE is inspiring. She walked the journey of having a child with cancer and has dedicated a large part of her life to helping other families who are experiencing the same things she once experienced with her daughter. I believe that takes an incredible amount of strength. She is constantly coming up with new, creative, innovative ideas (including holding our volunteer appreciation dinner at Raymour & Flanigan, which sounded unconventional but worked out great for everyone involved). Mary is a leader.

Mary has stayed in touch with past CURE families and makes it a priority to get to know new CURE families…on top of all the other tasks she undertakes. She has put in countless hours of overtime (with the expectation of not getting paid). Last year, for example, she worked almost every weekend from mid-summer through the two major fundraising events in the fall. She makes CURE a priority and has for the past 15 years. She understands the importance of what we do here and fits her life in where she can, rather than fitting work into her life. CURE has undergone many changes and challenges in the past 15 years and I truly believe that Mary helped everyone adjust and succeed. The very fact that CURE is still up and running and successful is attributable to Mary.”

With that, Mary, we thank you. We thank you for your tireless dedication, compassionate disposition, your friendship, your love and your time. You have been an incredible gift to CURE and to the many families we have dedicated ourselves to helping. You have made a difference. We appreciate you.
Now, go and enjoy your family. Just don’t be a stranger because we will most definitely miss you.

40 Friends of CURE

Penguin Life Safety Corp.:

penguin life safety corp

CURE is so incredibly thankful for the friendship of Penguin Life Safety Corp. They have been both financial supporters and volunteers with CURE for the past 11 years – donating a total of over $24,000 and countless hours of volunteer time. Chances are you have seen the Martorana family at our Survivor’s Day Picnic. The Martorana family celebrates their son Jodran’s survivorship through volunteering and running the games at our annual picnic. Every year, they contact the CURE office and ask if they can run the games. They even provide most of the prizes for the games!

We appreciate the support and friendship from the Martorana Family. The genuine kindness that comes through just in talking with the family is overwhelming and shines. We also admire how they give back to CURE and our families, turning their own experience into an opportunity to help others. Thank you!

Gary Siwicki:

I am positive you have seen Gary at many CURE events over the years. He has always been an advocate for CURE, by spreading the word and showing his support when ever he gets the chance to. Gary is ALWAYS there when you need him and calls to check in and see how things are going at the office. He joined the CURE  board in 2000, was a recipient for the CURE Statuette and was the chairperson for the CURE Kids Cancer Classic Golf Tournament for many years. Gary was the one responsible for the creation of the golf tournament in 2003, which was when the first tournament was held. He is also helping with the 1st Annual Patrick Carr Memorial Golf Tournament, that is taking place on July 25th. Gary and his fiancée Linda Pierleoni, have been volunteering at all CURE events and fundraisers for as long we can remember. We are beyond grateful for his faithful and continuous support to not only CURE staff and volunteers but the families as well.

Tom & Theresa Passero:

When we think of long time volunteers, we think of Tom and Theresa Passero. They have been supportive volunteers at the Survivors Day Picnic, Recipe for a CURE brunch and Holiday Party for over fourteen years now!  Theresa and Tom have given of their time, talent, and continuous support to CURE’s programs and fundraisers.  Theresa was chairperson and co-chairperson of the Recipe for a CURE’s silent auction from 2009 to 2014.  Their generosity extended to encouraging friends to attend the Recipe for a CURE Sunday Brunch, and soliciting sponsorships and donations.  For many years, Tom offered his truck and moving van to transport the silent auction items to the venue.  We are grateful to Theresa and Tom for all their contributions to The Recipe for CURE Brunch and for helping to make it the success it is today! CURE would not be the same without volunteers like Tom and Theresa! Thank you so much.

Larry Masci Electric:

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Have you ever wondered who donates the awesome raffle ticket prizes at CURE’s Annual Survivors Day Picnic? That’s right, Tara and Larry Masci of Larry Masci Electric. For many years (5 to be exact), Tara, Larry and the staff not only provide these prizes for the Picnic, but they are huge supporters of CURE’s Holiday Shop, where we provide toys, gift cards and food to families who need some extra assistance around the holidays. They donated toys and food for these families and even came into the CURE office to help wrap gifts. This year, Larry Masci Electric donated 4 bikes, 4 helmets, a 32″ television, blue ray player and 2 razor scooters. With support from Larry Masci Electric, Inc. our families have had wonderful holidays and fun picnics and at CURE we are so thankful because we are able to serve even more families who are in need.

Save These Dates!


Shave for the Brave/ROC the Bald

June 12 | 12:30-6pm

Finns Tap Room

14 Railroad Street, Victor NY

for questions: Lynne Stiefler

lstiefler@frontier.com

585-746-8566

Click Here for the Website


Cutting 4 A CURE:

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Please help us to make this our most successful year yet!

 Please Join Us

Sunday July 17, 2016

Simply Glamorous Salon & Spa

from 10am-4pm

(1780 East Ridge Rd, 14622)

Beau Monde Salon & Spa

from 10am-4pm

(7181 NY-96, 14564)

for a fun-filled day to raise money and awareness for

CURE Childhood Cancer Association

and to collect hair donations to send to

Children With Hair Loss

Lydia Tata Kohls Cup:

July 15th – 17th

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The Churchville Soccer Club will host the Annual Kohl’s US Youth Soccer Lydia Tata Memorial American Cup at Churchville Park.

The Under-6 through Under-19 boys and girls participating will bring together more than 50 teams on 11 soccer fields . The athletes  will compete in honor of Lydia Tata, our 9 year old Recreational Soccer Athlete that succumbed to cancer last year. Proceeds from the Tournament will go to the CURE Childhood Cancer Association, based here in Rochester NY, in Lydia’s name.

Early Bird pricing ends 5/10/16

churchvillesoccerclub.com


Photo Scavenger Hunt: July 24th

Timeline:

  1. June 6 – Registration Opens
  2. July 1-4 – List of items will be provided to team leader via email (if you register after this date, list will be provided ASAP)
  3. July 1-23 – Take photos, print and make display
  4. July 24 – Picnic and Prizes
    1. 1:00 – Check In and submit photo display
    2. 1:30 – Picnic & activities
  • 2:45 – Prizes awarded

Location: Henrietta Veterans Memorial Park- Stevens Lodge – 595 Calkins Road, Henrietta

Rules:

  1. Each team member must be named on the registration form.
  2. A photo of each item on the list must be taken with one or more team member in it. (Please keep photos tasteful.  Please do not use computer screen shots.  Multiple photos of the same item will only count once.  Not all items are necessary.)
  3. BE CREATIVE.
  4. Each item will have a predetermined point value. Extra points for creativity.
  5. Photos should be printed and displayed in any fashion you would like. (Loose sheets, photo album, collage, etc.).  Make sure your display has your team name on it.
  6. Individual photos may be displayed on event page on the “CURE Childhood Cancer Association” Facebook page. (In addition to being printed. A printed display still needs to be submitted.)
  7. Encourage your friends to vote for your photos on Facebook. A “Friend Favorite” award will be given for the photo with the most likes by 6:00 a.m. on July 24.
  8. Photo displays will be submitted at the picnic on Sunday, July 24.
  9. Photos will be scored by committee members at picnic.
  10. Prizes will be awarded for Most Points, Most Photos, Most Creative (individual photo or display) and Friend Favorite.

Patrick Carr Memorial Golf Tournament:

July 25th

REGISTER TODAY!

https://curecca.ejoinme.org/PCM2016

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Chili Country Club- 760 Scottsville-Chili Road

Starts at 9:30 am

$85 individual, $340 foursome

includes golf, cart, lunch and dinner

Proceeds benefiting CURE


Gathering for Hope Gala:

July 29th

presented by:

Ontario Insurance Company

with proceeds being donated to CURE Childhood Cancer Association

Friday, July 29th

Club 86, Geneva, NY

5:30pm

Stay tuned for sponsor and ticket information!


Harmony Hill Farm Fun Day:

harmony hill farm

July 30th

2242 SR 444. Bloomfield, NY 14469

FREE OF CHARGE FOR ALL FAMILIES

includes lunch, ice cream, games, crafts, pony rides, animal feeding, water balloon tosses, music, and prizes!

there will be puffy paint t-shirts! please bring your own shirt if you have one. There are a limited amount.

please no extended friends and neighbors

if you would like to attend, please go to https://harmonyhillfarm.eventbrite.com

you can also contact chelsea.lepore@curekidscancer.com or call the CURE office at 585.473.0180

visit their website http://hamonyhillponyrides.com or call Sheila, Farm Owner at (585) 233-0975


Focus of the Month!

The Home Depot:

On May 1120160511_171059th, Brad DiLeo, a CURE parent of a survivor, and his team from The Home20160511_171035 Depot updated the Julie Roberts Children’s Memorial Garden outside of the CURE office. They generously donated their time, mulch and flowers. They also dug out old bushes, weeded and stained the arbor. The garden now looks beautiful for any family who wants to come look at the memorial bricks in the walkway. Brad and his team also donate their time and materials at the Survivors Day Picnic every year, so kids can create their own tool boxes!

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Tips for a CURE fundraising event:

the Tips for a CURE event was held May 21st at Micginny’s sports bar on East River Road from 1-3pm by a longtime CURE volunteer (and 2016 volunteer of the year) Laurie Doyle-Yohe.

it included free pop corn, drink and lunch specials, guest bartenders from Rochester sports teams and sponsorship’s from Blue Moon and Captain Morgan.

the event raised almost $400!!


Southeast YMCA lemonade stand:

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The preschoolers at the YMCA in Pittsford held a lemonade stand in honor of their friend, and hero, Craig Winter. Craig was diagnosed with Astrocytoma in 2012 when he was just 2 years old. In the top picture is Craig, who attended the YMCA for school last year and his sister Lily, who currently attends. The YMCA has been very supportive of the Winter family over the years and Craig’s mother, Kim, very generously suggested CURE to receive the proceeds from the Lemonade Stand. Together, the YMCA raised close to $300!

United Way Day of Caring:

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May 12th was Rochester’s’ United Way Day of Caring and Thomson Reuters volunteered at the CURE office again this year! They weeded the back garden, planted flowers, cleaned the shed, washed the windows and helped prepare for upcoming events. Every year they help CURE out so much on this day and have become huge supporters and we CANNOT thank them enough.


Larry Masci Electric

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Tara, Larry and the staff at Larry Masci Electric donated amazing gifts again this year for the raffle at CURE’s survivor day picnic. They bought a princess bike with training wheels, a basket and a helmet, a spider man bike with training wheels, a basket and a helmet, a youth purple bike with a helmet, a youth yellow bike with a helmet, 2 razor scooters, a 32″ LED television and a blue ray player. Because of Larry Masci Electric, our families are going to have the chance to win amazing gifts at this years picnic. We are forever grateful for their sponsorship’s.


Coniber Bake Sale:

hailey updateOn Memorial Day, Hailey Coniber (9 year old survivor) and her sister Mckenna, baked and sold food at their camp site in Alexander, NY where they were csmall haileyamping for the weekend. Below is the picture of both Coniber girls who donated the proceeds to from the bake sale, to CURE. You might also know Hailey from “Keeping Tabs on Cancer With Hailey”. She collects aluminum pop tabs, brings them to a local recycling center, and
donates the money she makes back to CURE. We at CURE are so appreciative of the continuous support Hailey and the Coniber family have given to this organization.


CURE would like to acknowledge:

Wegmans– for donating the food and drinks at the Survivors Day Picnic every year

Tiny Fish Printing– for discounting t-shirt purchases for CURE programs and events

Radisson Riverside Rochester Hotel– for donating all the snacks at the survivors day picnic,

donating water at CURE’s 5K and Fun Walk and provide princesses and character at events

Rita’s Italian Ice– Rita’s flavored ice is not only at the survivors day picnic every year providing sweet treats to our families, they also donated their time at CURE’s 7th Annual 5K and Fun Walk


We are currently in NEED of committee members for our 8th Annual Recipe for a CURE Sunday Brunch this October!

volunteers-needed

Committee members are needed in the following areas:

Silent Auction

Sponsorships

Table Captains

YOU can make a difference and have fun, too!

Email Holly Dutcher (holly.dutcher@curekidscancer.com) for more information.


 

QuitSmokingCommunity.org

want to make our new scholarship opportunity available to your students and visitors (it’s free to apply for everyone).

They award $3,000 in scholarships each semester to students who bring awareness to smoking-related diseases. This is an essay contest and the winning applicants will be determined based on the content, style, and originality of their essays.

There are no costs associated with submitting an application for this scholarship and the application deadlines are:

July 21 and January 21 of each year.

 trying to get the most visibility for the scholarship so that students who need financial aid most may apply.

Additional information about this opportunity can be found at https://quitsmokingcommunity.org/scholarship/ or simply contact me and I will provide you with any required explanations.


 

Upcoming Meetings

Bereavement Group:

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The first Wednesday of every month

Hosted by Jim and Andrea Spencer

located at 200 Westfall Road, Rochester 14620

from 7-830pm

June 1, 2016

extended family and friends welcome

Sickle Cell Support Group:

ROC City Sicklers Logo

The third Tuesday of every month

June 21, 2016

6-7:00 pm

ACF Conf RM C  2-1361 (2nd floor off silver elevators)

UR Medicine 601 Elmwood Ave Rochester, NY 14642

Free Parking

Painting with a Twist: For CURE Parents!

Thursday, August 11th

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Register Here

passcode: CURE

Wish List Items Needed

We are so grateful to the community for all of the wonderful donations we receive throughout the year. We could not service all the families we do without this generous support.  If you or a community group you belong to is looking for something to do for a charity, please consider donating items from CURE’s wish list so that we can continue to provide for our families.

Items Needed:

  • A cure for childhood cancer!
  • Gift cards for Wegmans, Tops, Wal-Mart, Target and gas cards
  • Small pocket/purse-sized calendars
  • Gifts for boys
  • manicure sets
  • Items for teens or young adults
  • Toys for kids under 3 years old

We ask that all items be new and recently purchased.  Thank you!


Ongoing Programs

Provided free of cost to our families

  • Boost Tutoring (See article above for more information or go to our website at www.curekidscancer.com) or contact Linda Bolan atLinda.Bolan@curekidscancer.com
  • Coffee Group meeting for on-treatment families; Thursdays from 1-2 pm in the Kaiser Room, 4th floor Golisano Children’s Hospital near the red elevators.
  • Voyage Beads- Patients can use colorful beads to build a tangible representation of their journey through cancer treatment.
  • Vouchers for free parking are provided to families of CURE children who are hospitalized or visiting the outpatient clinic.
  • CURE Bears for Hope and Love. Build-A-Bears are sent to children who are undergoing treatment for pediatric cancer.
  • Emergency financial assistance for on-treatment families.
  • Comfort bag for newly diagnosed families.
  • Emotional support and guidance from CURE’s Parent Advocate.
  • Educational Programs about school issues for patients and long-term survivors.
  • Bereavement Support for families experiencing loss.
  • Social Gatherings including Cancer Survivor’s Day picnic, Holiday Party and Morton Fall Family Fun Day.

Boost Tutoring

For Kids and Teens

Boost tutors are available during and/or after treatment for as long as needed, even after returning to school.  These services are provided free of charge by highly qualified teachers who are dedicated to making a difference in the lives of children.  If your child is struggling with schoolwork, even if treatment was completed long ago, please contact Linda Bolan at 585-317-7269 or Linda.Bolan@curekidscancer.com to learn more about how boost tutoring may be able to help.  Tutors are available during the summer as well as during the school year.

Boost Needs Volunteer Retired Teachers

If you have K-12+ experience and are interested in making a difference in the life of a child with a chronic illness, who is struggling with school work and needs supplemental tutoring, please contact Linda Bolan at 585-317-7269 or by email at Linda.Bolan@curekidscancer.com for more information about Boost.